Alopecia World
LeslieAnn Butler
Female
Portland, Oregon
United States
Profile Information:
- Relationship Status:
- Engaged
- About Me:
- I'm an artist and author living in Portland, Oregon. I've had aa for about 45 years. My award-winning book, "If Your Hair Falls Out, Keep Dancing!" is still available at a number of online sources including Amazon and Barnes and Noble. Written a few years ago, it's not completely up to date on medical findings, but these are readily available on this site.
Here are a couple of reviews: This "how-to" book provides a much needed text on dealing with emotional and cosmetic aspects of hair loss, whether from alopecia areata or chemotherapy. It details where to find and how to use products for compensating with this loss. It is written in the same bold and bright style that characterizes LeslieAnn's illustrations." -Janet Roberts, M.D., Portland Oregon
"This book is helpful, hopeful, funny and fabulous. It's full of practical advice about wigs, intimate encounters, the inappropriate questions from strangers, and other issues you face when every day is a bad hair day. Women with alopecia, LeslieAnn Butler is your new best friend " -Margie Boul , Columnist, The Oregonian ..
"An essential read, whether you've lost hair, or care about someone who has. Leave it to Leslie Ann to bring humor and glamour to a difficult topic. She is a living testament that the lack of flowing locks is no reason not to live your most glamorous and joyful life. Be inspired and uplifted by this remarkable woman's personal journey." -Nita Lina Howard, Author of A Woman's Journey is Her Legacy
I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.
I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you're not alone."
Hear a live interview at http://www.insidescooplive.com/author-pages/Butler-LeslieAnn-readin....
Visit my artist web site at www.leslieannbutler.com. - Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
- Your Website (Leave blank if you don't have one):
- http://astore.amazon.com/ngp-20/detail/1933449586
Christine
I do well most of the time. I have had alopecia in some form or another since I was thirteen. I hope your book is successful. I am sure you will touch many lives through it.
May 28, 2008
Barbara
You look fantastic! I definitely need to buy a copy of your book. I think I deal pretty well with my AA. I've had some depression over the situation over the 36 years but for the most part I'm a happy woman. It's funny but I told 3 of my grandchildren that I don't have hair. They all took it very well. The 5 year old is really funny about it. She'll snuggle nex to me and look at my wig and say "it's our secret that you don't have any hair right?" I had to tell them it was a secret so that they didn't tell all of their friends at school. I think that it's too much information for kids 11 and under.
You look like you have a great life and have lived very with with this disease,
Take care.
Barbara
May 28, 2008
Becky.
May 28, 2008
Lee
May 29, 2008
Sarah S
May 29, 2008
Sarah McDermott
May 29, 2008
Becky.
By your own oppinion, do you think that if a person has alopacia, most likley all there hair will fall out? _and also do u wear a wig or something? or did all your hair come back? your hair is so pretty!
May 29, 2008
Lori Savage
lORI
May 29, 2008
Becky.
May 29, 2008
Babe
May 29, 2008
Shekeita
May 29, 2008
Shekeita
May 29, 2008
kastababy
May 29, 2008
Leslie
I'm doing okay with my Alopecia. Some days it really bothers me other days I think "WOW! If this is as bad as my life gets, that's pretty damn good!" I've had AT for about 21 years now. I really don't think about it much, unless I know I'm going to see someone that I haven't seen in many years. I do wonder sometimes, if people can tell I'm wearing a wig. Which is stupid, because no one has ever know. Even at the salon with my daughter, the hair dresser said what pretty hair I had and even felt it. She didn't realize it was a wig.
Leslie
May 29, 2008
Leslie
Leslie
May 29, 2008
Becky
Thanks for the note. I am very new to chat rooms (if that is what this is!) so I'm not used to checking in. My grandson is doing all right. He also has ADHD, which is really a bigger issue because he is taking medicine and that needs to be regulated. His personality has changed so much, but medicine is the only thing that keeps him focused for school. It is hard to be his grandma and love him so much, yet see him facing these major challenges. Like almost everyone else affected by AA, we are so grateful that he is basically a health kid. I only get sad when I look at pictures of him before he lost his hair (and before we knew he had ADHD). God has his reasons, I know...
P.S. My daughter lives in Portland. She's an OB nurse.
May 30, 2008
leanne dallen
May 30, 2008
Sara
So nice to see someone in the area... the photos of downtown are beautiful! We live in a great place! How are you?
~Sara
May 30, 2008
Dawn
May 30, 2008
LiZa Sims
May 30, 2008
Sara
Are you involved in the support group at all?
May 30, 2008
Sara
May 30, 2008
Erin
May 30, 2008
Kristen Ridenhour
May 30, 2008
Sandy
I'm not sure if it will help or not. My condition only effects my eyelashes and it has done wonders. My dermatologist told me after three months of every day, I could start using it once or twice a month, but I noticed once I quit using it every day they started falling out again, so I'm back to once a week. Its definitely worth looking into. Loved your pics!
May 30, 2008
samantha dawson
May 30, 2008
Cheryl
May 30, 2008
Sophie Ray
May 31, 2008
Roger
May I ask where I can watch your paintings?
Roger.
Jun 1, 2008
Ashley
Jun 1, 2008
Emily
Thanks for your comment. It's great to meet other people with alopecia, especially those who've studied counseling! I was just talking to a friend the other day about how I would be interested in doing some counseling with/for other women who have alopecia. I'm glad you said hi, and we'll have to chat more.
Jun 1, 2008
Jessica
Jun 1, 2008
T
Jun 1, 2008
Dotty
Nice to meet you. Thank you for the nice comment about my poem. You have some great pictures posted. Your hair is gorgeous and those scenery pictures are breathtaking. You are such an inspiration and I can't wait to get a copy of your book. Thanx again for the comment and I hope to meet you someday.
Love and Hugs,
Dotty
Jun 1, 2008
Katie
Jun 2, 2008
Pat
Jun 2, 2008
Jill
Jun 2, 2008
Heidi
Jun 2, 2008
Heidi
Jun 2, 2008
Roger
I looked at the paintings. Really nice. A little question. Do you only sell to people in the US/Canada. Im just curious.
Roger.
Jun 2, 2008
christy murphy
Jun 2, 2008
Roger
I wish I was an artist. My hobby is to take photos.
Roger.
Jun 2, 2008
JOAN
You are a very plucky lady. I am sure I would enjoy reading your book, when I get my hands on it.
I met my friend with universalitus just two weeks ago whilst walking our dogs, my Knute, and her Henry and Izzy at a local park. We get on famously, as do our dogs, and she laughs all the time, she has great spirit. She is the type of person, who puts a smile on your face and puts you in a good mood, just by seeing her. Such a young woman struck down with a great tragedy, but bounced back with a smile. Its not going to beat her. She has strong will, I think. I am honoured to have met her.
I must also comment, on your photos, they are amazing, your animals are fabulous, the scenery is breathtaking, your art is inspiring and you are so beautiful.. you ought to be very proud of yourself and your achievements.
Jun 2, 2008
JOAN
Give a cuddle to your cat and dog too.....I have already passed onto Knute her doggy cuddlee.......thanks so much. Look after yoursellf.......
Jun 2, 2008
JOAN
Jun 2, 2008
Lori
Jun 2, 2008
Betsy Rachel's Mom
I haven't been on the site for a while. I have 3 kids and the end of the school year is always so busy. Rachel is doing great. And you are right, so far, this has been harder on me than her. Though I suspect that when she gets to middle school that will change. We are going to the NAAF convention so she can go to the kids camp. She is really looking forward to that. Thanks for asking. Betsy
Jun 2, 2008
Allie
Jun 2, 2008
Jenn
Bald Girls Rock!
J
Jun 2, 2008
Ashley
Jun 3, 2008