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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Sarah S

Hi Cheryl, thank you for the warm welcome. I just lost all my hair back in January so it has been so nice to find this site and read about the stories of others that are going through the same thing.

May 29, 2008
Elline Surianello

Just wanted to let you know that I updated my workshop/support group time for this Sunday - it's taking place at 5pm at my salon in New York City. Let me know if you can make it (I know you're in Montreal...but it's not that far!)!

May 29, 2008
Bill

Thanks for the welcome.

May 29, 2008
Jodi Wertz

Thank you for the invitation to this wonderful site!! You are such a blessing! And WOW are you ever beautiful!! I've already been showing Sarah Beth pictures of other people with alopecia to help her understand what's happening. I'm still looking for a local support group. I'd love for her to meet some other children going through the same thing. God bless you for all you are doing!! And...CONGRATULATIONS on your engagement!! You are a beautiful couple!!

May 31, 2008
Rachel

I'm getting there on the 18th leaving on the 22nd. Its going to be so exciting to meet you!

May 31, 2008
François

Thank you Very Much Cheryl, i really appreciate your welcoming.......Merci !!!

May 31, 2008
Jodi Wertz

Thanks for all the info Cheryl!! And the welcome! I just can't put into words what a blessing it is to have this site to meet other beautiful people, like yourself, for support. God bless you!!

Jun 1, 2008
Diane

Bonjour Cheryl,
It was indeed very nice to see you again! this meeting has given me a 'preview' of what the Conference will be... can't hardly wait to be there!
Diane :)

Jun 1, 2008
Brigitte

Hi Cheryl, Its was so nice to meet you and all the people yesterday.... Thanks !

Jun 1, 2008
kastababy

Yeah, that's a sneak peek at the pictures I took for Julia's book project. My photographer gave me 41 shots; I picked the 20 or so I liked the best and posted them and sent all of them to Julia. I'm glad you like them! Do you know that is the first time I've ever taken professional photos bare-headed? All of my other pictures are either of my own hair, with a wig or with a scarf or head covering of some sort??? That was an interesting experience, let me tell you!

Jun 1, 2008
kastababy

I won't say so much that I felt beautiful -- I was having a lot of fun because the photographer brought his little boy with him (he's 3) and he was being a little flirt! That, and because my photographer is my coworker at Comcast he was making me laugh telling me about his vacation while he was shooting the pictures!!! It was kinda liberating though; by the time the shoot was over I was more worried about whether or not my makeup was running from the sweat (it was 92 degrees with 99% relative humidity and not a single cloud) than anything!!!

Needless to say, summer has arrived in Memphis with a vengeance!!!

Jun 1, 2008
kastababy

OMG -- you won't catch me dead in Houston right now; until they get all the thugs and criminals that ran there after Hurricane Katrina out of there I would be scared to walk down the street by myself!! Find out where it is during the conference; if it's in Houston count me out -- I would rather meet somewhere else like Orlando or Miami!!!

Jun 1, 2008
Emily

Hi Cheryl,
I can't believe how long it's been since I was on here. I don't know what happened..school, I guess. Wow. I just wanted to stop by, say hi, and see how you're doing. I hope all is well!

Jun 1, 2008
T

So far I have enjoyed it. Thank you ma'am ;)

Jun 1, 2008
kim trivett

Thank's for the website it's great.

Jun 2, 2008
Will Jelliffe

Cheryl,

Great! This seems like an exciting and supportive network. I just wanted to inform you that your blog post has appeared on http://blog.ning.com/. You can find a permanent link to the post here. Good luck with the network!

best,
Will

Jun 2, 2008
Allie

Thank you for the warm welcome

Jun 2, 2008
Jenn

Thank you for taking the time and having the motivation to create this community.

Jun 2, 2008
Char

Thank you :) It's one of the photos my cousin took for Julia's book :)

Jun 3, 2008
claire

i think you and your fiance are an inspiration to us all x

Jun 3, 2008
ASHLEY

MISS CHERYL ITS JUST ME NOT MY MOM BUT THANKS FOR INVITING ME

Jun 3, 2008
Maggie McCubbin

Thanks, I'm just trying to get comfortable with the flow of the website...I'm hoping to learn from everyone.

Thanks

Jun 5, 2008
Matt

Hi Cheryl! Good to see you. Nice creation on line. I'm doing good. How about you. Seee you in Kentucky!

Jun 6, 2008
Tracy

Thanks for your kind words. its good to find this place .hope to learn more for each other and thanks for starting the website

Jun 7, 2008
Rachel

Lol, how many wigs? Ohhh . . . I dunno, they are laying all over the house so its hard to count! I can think of 5 that I wear more often than not.

I am getting to KY on thursday, I was going to be there on wednesday, but there is an audition in town that I want to be here for, so I changed my flights so I could make it. Really want the part of Peter Pan, so I am willing to miss the inital meet and greet thing for a chance at it!

Jun 10, 2008
Donna Evans

What kind of stuff happens at the NAAF conference? I'm thinking of going next year. I couldn't make the plans for it this year because we are taking a trip to NY for New Year's Eve at the end of 2008. I'm excited about that!

Jun 10, 2008
Scott

Thank you for the comment! Hopefully you are having a great night!

Jun 10, 2008
MoMi

than you for the nice words. this platform gives power :-))

Jun 11, 2008
Stacey, Olivias mom

Thanks yes Paris is a popular name in the big ole town you must still have alot of relations in the area!

Jun 11, 2008
Mari

thanks so much for the welcome- I am so glad I was told about this place. You are all wonderful!

Jun 11, 2008
Mari

this is funny- I am on a dating site and one of your members saw me and referred me here :o)

Jun 11, 2008
Donna Evans

Would they have an itinerary for the weekend with speakers and a banquet or sightseeing around the area? From your pictures it looks like they hold a dance.

Jun 11, 2008
Silje H Teig

Thank you very much for the nice welcome words! I like it "here" already:) It would be nice to get to know others with alopecia, and this seems to be the right place.
Thanks,
Silje

Jun 11, 2008
Emily

Thanks. Is areata alopecia where you loose all your hair?

Jun 11, 2008
Rachel

Yeah, its Thursday evening. Depending on how late it goes, I may make it. I am also going to be helping with the marketplace stuff, I have a friend that will be selling stuff, and I am a very good salesperson so I have been recruited! Lol, working as a tour guide at this tiny museam in the middle of nowhere in the mountains, I sold this random box set of encyclopedias to this guy for $300!! They thought they would never sell it, it had been there for over 10 years! LOL!!

Jun 11, 2008
Mari

Conference??? Hadn't heard of one

Jun 11, 2008
Mari

Darn, I wish I had heard earlier. I bet that will be a good one to go to :o)

Jun 12, 2008
Shane McPartland

Thank you for such a great welcome! I am looking forward to meeting everyone!
Shane

Jun 12, 2008
Roger

Hi Cheryl. Now its very close =) Im off for Louisville in 6 days. Im so excited. Tonight were having a meeting with the Stockholm group here in Sweden.

Hope your ok.

Roger.

Jun 12, 2008
callie blackwell

Hi Cheryl,
Thank you for your postive words and I hope to find many more people on here who can share their experiences.
Callie
XXX

Jun 12, 2008
Billie

Hi! I dropped by your page. Remarkable.
We are so lucky to have this site. Just a small thanks in a Big way!

Jun 12, 2008
stacy

THANK YOU soo much for that comment! Such perfect timing, thats just what i needed!

Jun 12, 2008
Vicki

Hi Cheryl,
You were my first contact and I can't express how grateful I am. I've been so down lately since I've only just begun my symptons and I can't tell you how much it meant to see your smiling face. There is just so much info that I need and I'm sure you and others in this group can help lead me down this very "different" path.

Jun 12, 2008
Vicki

I'm glad I'm here too. What's hard for me is that my "friends" don't look at me anymore. I told them when this first started happening is to let me know if I had bald spots showing in the back of my head to please let me know and nobody said anything. I purchased a mirror last night and have this huge bald spot in the back of my head and no one said anything. Maybe I'm really sensitive, I don't know. My question is...when do you make the decision to go ahead and shave your head?

Jun 14, 2008
Roger

Hi Cheryl.

Yes, im so excited about this trip.

I have a 13 hrs flight in front of me, but its worth it!

See you there and have a safe journey. RJ too.

Roger.

Jun 16, 2008
Holly Ralston Oyler

Cheryl, Thank you for the welcome. I am looking forward to being a regular on this site.

Jun 16, 2008
Emily

Thank - you for telling me about Cheryn I have left her a comment.
Emily x

Jun 16, 2008
Stefan Dwornik

Hello, and thanks for the warm welcome. I hope to see you again at another meeting soon.
Stefan

Jun 16, 2008
Kathy

Cheryl,
Thank you for the welcoming words and this great site!

Kathy

Jun 17, 2008
Gale

I am new to this and not sure on how to chat. Any help would be good,lol. Thanks

Jun 17, 2008

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