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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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LeslieAnn Butler

Hi, Cheryl! No, I didn't go to the conference this year -- I found out about it too late! Next year I am going to go.
Thanks for asking about the book! People are loving it and I am so happy to help. Writing the book was not a choice, it was an inner urging I couldn't ignore.
Big Hug! LeslieAnn

Jul 3, 2008
Anyana Simpson

thank you for such a warm welcome and I have not been on in awhile, but I am always praying I was invite to this page by one of my good friends who daughter is struggling. You are such a blessing to so many people and I am going to say a special prayer for you and all of the founders so the Lord can continue to bless you guys to keep doing what you do. God Bless.

Jul 3, 2008
Elizabeth

Good Lord...I know right???? It seems like yesterday...LaLaLa...
Anyway...
Im doing well...Altho I am actively pulling apart my picture albums to find some beautiful BALD pics.
You know what is SO awesome that I see on ALL of us here??? THE prettiest smiles, and happy happy faces.
Good Day to you...Thanks for the message!

Jul 5, 2008
rj, Co-founder

Greetings, Ms. Carvery. :-) Aren't you the alopecic and adorable, bald and beautiful, hairless and heart-stopping eye candy that seized my attention downtown Detroit today? I'm compelled to confess that you had me at hello and stole my heart with your grace, dignity, intelligence, and soul made of heaven's gold. I love you already, always and forever and can't wait to spend the rest of my life with you. Honored to love and be loved by you, rj. :-)

Jul 5, 2008
Carol

I'm happy you enjoyed your visit. It was an interesting video at least LOL
Hope to meet up with you again sometime! :)

Jul 6, 2008
Orbit

Cheryl, thanks for your kind compliments! I hope to do a bit of modeling of more headscarves - of The Beaubeau for Susan from 4women.com. Its fun wearing them, I can't believe it took me so long to become comfortable in my own skin :-)

Jul 7, 2008
Wesley Marr

Thanx, everyone has made me feel so welcomed and loved here. I did not know what my condition was until someone told me what he had...even though I was not officially diagnosed by a doctor.

Jul 7, 2008
pete

Hi Cheryl nice to meet you

hoop to chat somethime

Jul 7, 2008
Wesley Marr

I had bald spots as a boy that grew back in. As I got older, started noticing that I was losing hair, such as eyebrows etc, I assumed it was stress causing it to fall out. The last thing was in 2003 when I lost all but one portions..so off it came.

Jul 7, 2008
Frank

I always enjoy the conference, I hadn't been to the conference in about 5 years so it was good to see everyone again and meet all the new people. Did you have a good time?

Jul 8, 2008
hasna

hi Cheryl
thx for the warm welcome, and i think that this group will help me because my psyco is down this day
nice to meet u and hope we keep in touch...

Jul 8, 2008
John LeBlanc

hello thank you for welcoming me here i dont no anyone else with alopecia so this really means alot to me thank you

Jul 8, 2008
Dina

Cheryl - I just viewed the video of you trying on a wig at the conference. You looked amazing in that wig!! You have a very cute face and I honestly thing you look awesome bald. I was wondering if you knew much about the wig. I absolutely fell in love with it, it is the exact style I would purchase. You wouldn't happen to know price on something like that? Well, thank you in advance for any information you can pass along.

Jul 8, 2008
Mandy

Cheryl,
Thanks so much for commenting my blog. Everyone's kind responses made me feel much better after my lonely day.

Hugs,
Mandy

Jul 9, 2008
Mandy

Jul 10, 2008
KATHLEEN WEIBE BROWN

CHERYL, YOUR BEAUTIFUL GIRL IN EVERY WAY. THANK YOU FOR DOING THIS FOR US. YOUR LOVE IN MANY WAYS. YOUR GOD SEND.

Jul 10, 2008
KATHLEEN WEIBE BROWN

CHERYL LOVE, YOU KNOW WHO I AM I WANT TO TELL YOU THAT YOUR SO AWESOME FOR DOING THIS. I CAN NOT STRESS ENOUGH THE PASSION YOU HAVE PUT INTO THIS SITE. I LOVE YOU AND I TANK YOU FOR THE SUPPORT YOU HAVE GIVEN ME IN THE PAST. I THANK YOU SO VERY MUCH. LOVE YOU GIRL
KAT

Jul 10, 2008
KATHLEEN WEIBE BROWN

CHERYL, YOU ARE GOD SEND. YOU KNOW WHO I AM AND I WANT TO THANK YOU FOR YOU SUPPORT AT THE PREVIOUS CONFRENCES. I APPERICATE YOU AND YOUR LARGER THAN LIFE VALUES.

Jul 10, 2008
ebrahim

hi
thank u very much for your welcoming comment...
i am very proud to be part of this great commuinty for support and help...

Jul 10, 2008
Jessica

Thanks Cheryl! I forgot to congratulate you on your engagement! The conference was so much fun and I absolutely cannot wait until TX, i wanna get more graduates of the kids/teens camp back as counselors with us again! alopecia world is a great way to get the word out.

Jul 10, 2008
Karenda Carpenter

Thank you... I look forward to seeing what
this amazing website will offer!!!

Jul 11, 2008
Peyton

Hi.
Thanks for the welcoming comment!

Jul 12, 2008
Renee

Thanks - You've done great things here!

Jul 12, 2008
ruth

thank you for welcoming me...do you also go to any live support groups to talk about AA?

Jul 12, 2008
Kate

Hi I was just wondering how I leave a new comment for people without having to reply to an old comment or join onto someone elses? Im not very good with computers!
Thanks

Jul 13, 2008
James

Man....u have some great pics on ur page!!! Great to be here!

Jul 13, 2008
claire

cheryl i just wanted to say this site has been absolutely great since having my hairloss, you and lamji have been an inspiration to us all.
Loved the videos bet you wanted to kill him (lj)congratulations on your engagement you make a great couple.

Jul 14, 2008
Roger

Bonjour Cheryl!

How are you?

Jul 14, 2008
Roger

Hi! Im fine thanks. Yes, im busy too. Just changed work. I miss Louisville =(=(

Jul 14, 2008
Roger

Hej as we say in Sweden!

Yes, I was suprised about USA (It was my first time) but must say that I think Canada is better cuz I have a neighbor from Chicago and he says Canada is better =) Yes, Im going to go to Houston too! Hope you and Rj will come too! Wish I got more time with you next time!

Jul 14, 2008
Roger

Thanks! You two were (is) a wonderful couple. I will always cherish my meeting in Louisville with all the others.

Jul 14, 2008
Dotty

Thank you for the Happy Birthday wish. Hope all is well with you and RJ. This site is really taking off...it's great!!!

Jul 14, 2008
Lynn AKA Mom of 2 w/AA

Thank you Cherly! That's real sweet of you to take a moment to welcome me. I appreciate it :o)

Jul 14, 2008
susan

thank you! and haha i will..as sooon as i come back..or whenever i can borrow my friend's laptop. && are you suree that i'll forget about it?...b/c im only 13 so this is a little bit harder for me..

Jul 15, 2008
Linda

Hello, and thanks, I've been bald a week and three days, shaving my head was the most liberating thing I've ever done, and trust me, I've done some liberating things in my time, lol.

Jul 15, 2008
Laurie

Thanks!

Jul 15, 2008
Linda

Thanks Cheryl, you and many others here on AlopeciaWorld have paved the way for me, seeing you all step out confidently with your "bald bliss" strengthened my determination to "just do it"!

Jul 17, 2008
Jessica

thanks so much this is such a great site. my attitude has changed about this condition in so many ways. there are so many great people here.

jessica

Jul 18, 2008
Holly

Thanks for the warm welcome!

Jul 19, 2008
catherine

Hi cheryl! I am in the hospital after sitting up in a friend's top bunk and getting smacked in the face with a high-speed ceiling fan! I'm recovering and am SO BLESSED to have wonderful friends and family taking care of me. catherine

Jul 19, 2008
catherine

It just scared me to death because there was so much blood but I have had almost no pain.

Jul 19, 2008
Lori Younkman

Cheryl,
Thanks for the warm welcome! I am happy to be here and hope to be of service to anyone who may need a little expertise in the area of hair replacement! I can already see that you and Richard have created a wonderful and much needed outlet for the alopecial community!

Jul 19, 2008
Lori M

Thanx Cheryl! You know when I first started to look online for info about Alopecia your page is the one I came across. I am so glad I did. You are absolutely gorgeous "sans cheveux". I can tell you I certainly won't look like that once my hair goes. Hmmmm I am thinking maybe now I can use the lack of hair as an excuse to get a nose job....LOL

Anyways ....just being silly today. Thanx for the warm welcome and I can't wait to get to know everyone and get all the best tips for things.....

Jul 20, 2008
Roger

Hej Cheryl!

How are things over there?

Jul 22, 2008
Lori M

LOL Cheryl I don't have your beautiful bone structure...but thanx for the very good effort though! LOL Your point is very true.......

Jul 22, 2008
Roger

Im fine thanks. How is RJ?

I just began my new work. My second week. Hope to go somewhere later this year. One week vacation. Maybe to NYC.

Jul 22, 2008
claire

Hi cheryl hope you and rj are ok, my hair growth has gone again, so im back to being bald, ive put the photos on here to help others..........have a great day..

Jul 22, 2008
Roger

I help painters and carpenters so choose right materials for their works. =) Im also planning to go to Chicago. I think thats closer to your place? Its my first time to Chicago and NYC.

Jul 22, 2008
panuelo girl

Thanks for having the site...what a great idea!

Jul 26, 2008
Christina

Thank you for welcoming me to the site. I am really happy to be here. It is nice to talk to all of you. Everyone seems really nice on the site. I am so happy that there is a place to go for support.

Jul 27, 2008

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