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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Angela

Thanks, I'll check it out while I have time which doesn't happen very often.
Angela Rietschel

Oct 12, 2008
Lisa

Hi Cheryl,
Thank you for developing this organization. I am looking forward to sharing and learning.

Oct 14, 2008
rj, Co-founder

Babe, I know I shared this with you via email yesterday, but I also wanted to post it on your Alopecia World profile since it's visited by countless other women who also might find the poem to be encouraging. Not only do I love you, Babe, but I love you just the way you are. :-)

Oct 15, 2008
Lori M

Cheryl you are making me blush....LOL It isn't the same thing as some of the paintings I have seen on here. What I do is icing and trust me anyone can do it if I can. I just took cake decorating courses at Michael's...Easy and a lot of fun if you have the time. Unfortunately I haven't had much time since Lauren arrived in Feb...I guess my next project is her birthday cake in December....Like a two year old really cares!

The last cake I did was the dinosaur. I had to turn down another Birthday cake for a friend just because too many things going on..

By the way that is all the cakes I am adding...LOL Don't want to clog the system...

Oct 15, 2008
stacy

I just wanted to say thank you for everything =]

Oct 15, 2008
LadyBee

Thank you Cheryl, you are a beautiful woman. And according to RJ, inside AND out.

Oct 16, 2008
Carol

Hey Cheryl
I'm doing alright thanks for asking. How about yourself? I'm slipping back into my game steadily growing stronger every day. Soon I'll be back to normal and even better ;)
I'm looking forward to Julia's book coming out as my story will be included in it and I've also been asked to go to CAP's conference next August and I really do hope to get to that as well. Hope everything is going well for you and say hi to rj for me! Take care Cheryl!

Oct 16, 2008
nikki

ty cherylxx

Oct 16, 2008
Georgia Van C

thank you for your lovely pic comment! This is a pic form my kids tv show that is about to come out - such a wonderful project I am so so proud of it!
Sending huge huge hugs!!!
G
xx

Oct 17, 2008
Alessandro

Hello Cheryl,
thank you for warm welcome, I'm glad to meet you here.
All the best
Alessandro

Oct 17, 2008
NADIA

thanks cheryl, it's really nice of you. I am sooo looking forward to meet everybody...

Oct 19, 2008
frida.ofc.

Hi, thanks! I think i will like it here. It feels good to have other people to talk to in the same situation. People that can understand how it is.

Oct 19, 2008
Jbkny

Oct 19, 2008
Jbkny

Have a good week

Oct 19, 2008
Catherine

Hi cheryl! I just got your email about being interested in MTV's true life.. I was wondering if it was too late?! I would LOVE LOVE LOVE to take part in that! I am a 21 year old college student who has expereience Alopeica in middle school, high school, and college. please keep me posted!
Thank you!
Catherine

Oct 20, 2008
Amber

thanks for the warm welcome!

Oct 21, 2008
Wendy McFarlane

hi there, thank you for your warm welcome to the Alopecia World. We are currently living in Brisbane but are moving back to Whangarei on the 20th November to be closer to family and freinds since I have been diagonsed with AA it has been a little hard over here. Do you know if there is a support group that I will be able to visit when I get to Whangarei, also just to get some confidence boosting. Wendy

Oct 22, 2008
gymtee

Hi Cheryl, thanks for the warm welcome and for (with RJ) creating a nice place to get information and support.

Oct 22, 2008
Pat Carvery

hey cheeryl hru

Oct 22, 2008
rick

Thank you for welcoming me. I dont know anyone with this condition and feel very isolated. What a great site. any input or suggestions will greatly be appreciated. Thank you

Oct 22, 2008
***SaraKai***

Hi Cheryl, you are so beautiful in your pictures!!!! You and rj are truly an inspiration to the entire community. I had Alopecia Areta about 13-15 years ago and with cortocosteroid injections my hair grew back. The only support group I knew of back then was by attending a conference in Portland, Oregon but can't remember what it was called. Of course this was before internet was in family homes, so there was little, or if anyone to reach out to.

My sister Jenn was recently diagnosed in May and allthough I cannot completely understand what she is going through, I do know and feel a portion of it. I had AA and she has gone through AA and is now going through potential scarring and we don't know what else. I really want to give you and rj my deepest warmest thanks, prayers and thoughts for devolping and providing such a wonderful site. I knew many months ago about Jenn's alopecia. She has not discussed it in such freedom as she had this past weekend. I have never heard her speak so positivly and freely about it until she mentiond your site. You and rj are truly an inspiration, as is my sister Jenn, in that I would have never have known the spiritual power this site provides to so many. Sarakai.
GOD BLESS AND TAKE CARE

Oct 23, 2008
Royalty

Hi Cheryl, thank you for welcoming me! I'm glad that I found this community...everyone is so supportive!!

Oct 23, 2008
Kathleen Smith

Cheryl.... Thank you so much for your welcome. There are just soooo many beautiful people here it makes me smile. Kathy

Oct 23, 2008
Elisabethanne

hi thanks for the warm welcome im very happy to see a site for alopecia :]

Oct 23, 2008
Kirstie

Hi thanks for that, I i will post a pic soon. this is a great site!

Oct 23, 2008
Ms. Erin

Thank you Cheryl...I hope to meet lots of new people and learn some new things here. I am glad I found this site!

Oct 23, 2008
Carrie Bell

Thanks for the welcome! I am looking forward to being on this terrific informative and supportive site!

Oct 26, 2008
Beth

Thanks Cheryl... I've had Alopecia since I was 6 years old. I just happened to find your site yesterday while doing some research! I can't believe i hadn't found it before!! It is great to see people with my same problem. THanks!

Oct 29, 2008
Cindy Alday

Thanks for the welcome! I was just poking around on the web and thought I'd look up some info AU. Looks like this is going to be a great friend builder. Cindy

Oct 30, 2008
Raymond

Thanks alot :) , Have a further great day :)

Nov 3, 2008
Cheryl

Thank you for your welcome! This place is amazing. I am very thankful to find others like me. Not just for my personal growth but to have a community to contribute to.

Nov 3, 2008
Ella

Hi Cheryl, and thank you so much not only for the warm welcome, but also for all of the amazong work you have done and contnue to do! I am so happy to have found this place and look forward to meeting everyone. My goal is to become stronger and be able to help others as others have and are helping me. Everyone seems so kind, finding you is truly a blessing. All my best, Ella.

Nov 3, 2008
carly

hey cheryl
i was just wondering
how do you become a featured member?

Nov 4, 2008
Jenny Austin

Cheryl, didn't realise you were across the pond. Our brummie night out is like this: we get as many alopecians together as we can and hit the town! Brummie is just another word for Birmingham UK where I live, we'll be out bald and proud in December and will post pics on my page. Best wishes to you and your lovely family.
PS what about an alopecian for president? Jen

Nov 5, 2008
bugzmom

Cheryl, Thank you so much for the warm welcome to Alopecia world. everyone has been so helpful. I also read some of your blogs, and I think it is amazing.
Thanks again,
Jessica (Amelia's mom)

Nov 6, 2008
JeffreySF

Bon Jour Cheryl,

I wanted to say thanks for everything you are doing for all of us here on Alopecia World. I love to see your smiling face and all your words of encouragement to everyone here.

Hugz,

Jeff

Nov 7, 2008
Brandon White

hey Cheryl! Thanks for the advice. I think its just going to take time, which is hard for a college student to accept. Keep in touch. :P

Nov 7, 2008
kay kay

hi thank you

Nov 9, 2008
Raph-Paris

Thanks a million. It is much appreciated and congratulations on the great network.

Nov 9, 2008
Karen

Thanks for the welcome. I am really gaining a lot from this group. Thanks so much for getting it up and running - you are doing an awesome job.

Nov 9, 2008
lisa

Thank-You and hello Cheryl!
I appreciate your great site and look forward to being part of such a great group of beautiful people.

Nov 10, 2008
Melea Allen

Cheryl! You have no idea how excited and thrilled I am to become a new member of your community. I have had Alopecia almost my entire life. But now I am finding it very difficult loosing all my hair again as an adult. I feel as though I do not "fit in" in the work place as much as I did. I feel different now that I am bald agin. If that makes any sense what so ever. I have not met anyone well that I know of anyway who has Alopecia. So this site is very much needed in my life right now. Thank you. I look forward to meeting and talking with everyone about the ups and downs and having a place to go.

Nov 10, 2008
Camilla

Hi Cheryl... what whas very nice of you to write to me...
I hope to at i will like this communety...

Now i see that i am not alone to have this disease Alopecia..
Sorry But i still hate Alopecia... Sometimes i am afraid for it, and sometimes i dont care about it. Thats me.

Nov 10, 2008
Camilla

Thank you for the messeges you give me, it was very nice. I hope to at i going to enjoy this website. Now i know what i am not alone on this disease Alopecia..

Nov 10, 2008
Lia

BIG thank you for this site! u help me to believe that there is beauty in EVERYTHING. thanks again. alopecia world - genius! hehe

<3 Lia

Nov 10, 2008
***SaraKai***

find and share recovery images at anonymousspace.com

Nov 11, 2008
Betsy Ogrinc

Hi cheryl, thank you so much for welcoming me to this site I've only been on a few days and I already love it. thanks again, Betsy

Nov 11, 2008
Lyndsey

No problem... just glad to have a place where we can vent our frustrations unconditionally.

Nov 13, 2008
Christina

Thanks fore that messeges!
Now i know that i am not alone,
I have crying for my self, and for my alopecia.
But on alopecia world i have found more people too talke her,for the first time.

Nov 13, 2008
peggy

Thank you SO much for the lovely welcome! I am thrilled a place like this now exists! We are going to add a little blurb about Alopecia World in the next SF Group Newsletter. What a wonderful place to be! :-)

Nov 13, 2008

25 members like this