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LeslieAnn Butler

Female

Portland, Oregon

United States

Profile Information:

Relationship Status:: Engaged
About Me:: I'm an artist and author living in Portland, Oregon. I've had aa for about 45 years. My award-winning book, "If Your Hair Falls Out, Keep Dancing!" is still available at a number of online sources including Amazon and Barnes and Noble. Written a few years ago, it's not completely up to date on medical findings, but these are readily available on this site.

Here are a couple of reviews: This "how-to" book provides a much needed text on dealing with emotional and cosmetic aspects of hair loss, whether from alopecia areata or chemotherapy. It details where to find and how to use products for compensating with this loss. It is written in the same bold and bright style that characterizes LeslieAnn's illustrations." -Janet Roberts, M.D., Portland Oregon

"This book is helpful, hopeful, funny and fabulous. It's full of practical advice about wigs, intimate encounters, the inappropriate questions from strangers, and other issues you face when every day is a bad hair day. Women with alopecia, LeslieAnn Butler is your new best friend " -Margie Boul , Columnist, The Oregonian ..

"An essential read, whether you've lost hair, or care about someone who has. Leave it to Leslie Ann to bring humor and glamour to a difficult topic. She is a living testament that the lack of flowing locks is no reason not to live your most glamorous and joyful life. Be inspired and uplifted by this remarkable woman's personal journey." -Nita Lina Howard, Author of A Woman's Journey is Her Legacy

I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.

I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you're not alone."

Hear a live interview at http://www.insidescooplive.com/author-pages/Butler-LeslieAnn-readin....

Visit my artist web site at www.leslieannbutler.com.
Do you have alopecia?: Alopecia universalis
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://astore.amazon.com/ngp-20/detail/1933449586

Comment Wall:

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Georgie

I read the whole book last night! It definitely is helping to consider whether or not I feel like continuing treatments or not.....injections and squaric acid. I know, isn't that cool that I found your book at the library? It's the Wilsonville library that has it....they just got it in November. I live in Lake Oswego....7.5 years now. My dermatologist has told me about Janet...I have not contacted her yet because there really isn't anything different I can do about treatments. But, I am interested in support groups for sure. I contacted NAAF and they gave me the name and number of a lady here in PDX but she isn't currently running any support groups.....OY, it's a bit of a breezy day her today. I almost wore a hat but I think the hairspray is holding everything in place. FYI, I love the story in your book about the car accident and the hairpiece falling off into the woman's lap. It's a rat!!!!! HILARIOUS!!!!!

Dec 4, 2008
Lisa

Ordered your book from Amazon today. I'm looking for some encouagement. as I just got a second opinion from doctors at UW Madison...they said it is rare for someone with universalis to have their hair come back. My husband and kids have been great about the alopecia, but for the past year I have had a little bit of hope. Now that is gone. I have a good wig, but I don't like to wear it. Sometimes I have dreams at night that my hair is coming back.

Dec 6, 2008
VTW

Thank you! for the information, I will try to obtain your book.

Dec 7, 2008
Jamie

Hi LeslieAnn,
We had a pretty hard morning. She woke up with hair everywhere and tons came out in the shower again. She was crying and scared. I just saw that you have a book. Is this something that she can relate to at nine years old or is it more of a book for me to read? Any information you can give me, I'd be grateful.

Dec 9, 2008
Lee

Hi LeslieAnn,
I just got your book and I love it so far! Love your outlook. Very helpful! I am up to the dating part. I have been dating someone for about 6 months now who is very supportive...I am going to lend him your book when I am finished. Thanks!!

Dec 10, 2008
Alexis

BTW: I heard about you're book before I discovered alopecia world, I have been meaning to read it is it sold at barnes and noble?

Dec 10, 2008
Laura

Hi Leslie, I was reading of the book that you have written and it would appeal to a lot to me to be able to read it… The book is only in English? Thanks thousands… Laura

PS: excuse for my very bad English… kisses

Dec 11, 2008
Aspen

I have a wig to my wig is kind of long it is dark brown and it has blond highlights. were would u find your book? u are a very nice women u are also a very pretty women would u mind if i emailed u every day and told u what happened at my school b/c u sound like i good talk to u all the time=]
aspen=)(=

Dec 13, 2008
Eileen Simpson

Hi Leslie, thank you for the note.

I will be ordering your book as soon as I can.

Hugs
take care

Dec 15, 2008
Zoe

Hey Leslie Ann, I received your book last week from the UK!! Finally. I can't wait to read it. I'm just kind of stressed at the moment so I might find some time over the christmas holidays. Here in Germany we're off for 3 days and all the stores are shut and all cities look like gost towns!!! Crazy.

I still don't know about he haircolour. As I told you I have a Noriko in Vanilla Lush. I totally like it but I'd like to have my hair a little bit lighter the next time. So if I order a Rene of Paris in Vanilla Lush, that might be the hair colour I want. I think that'S what you said. Rene of Paris is a bit lighter than Noriko. I just sent the wig I received back to the store in the USA. The colour was gold blond and I was too unhappy with that.

Dec 17, 2008
Sol

Hey Leslie Ann, thankyou for the sweet comment. I'll definitely give your book a look! By the way, my friend has exactly the same breed of kitty as you. Your cat looks identical to his. Those cats have sooooo much fur I often find myself wondering if I could make a wig out of it lol!

Dec 17, 2008
Stephanie Jacquelyn

Thanks for the note. I'm hanging tough.. it's kind of been my mantra lately.

I've got your book on my Christmas list this year. I look forward to reading it soon. Hope all is well!

Dec 18, 2008
Nicole

Hi Leslie Ann,
Thank you for welcoming me to Alopecia World. My babies & I are doing great! I am so amazed to read that you have been living with AU for 20 years and striving in life. You are truly an inspiration to me like all the others I am reading about on this website. I am so happy I found Alopecia World & joined the community. I will be purchasing your book very soon and look forward to reading it.

Dec 18, 2008
Barbara Bruckenstein

Thank you so much .. I am going to look at the book you wrote. I really do appreciate how nice and welcoming you and everyone has been.

Dec 21, 2008
Sabrina

I am doing better now that I found this site. Thanks for asking. I am going to look for your book because I need to read about others who are experiencing the same things and feelings that I am. Happy New Year hope to hear from you soon!

Jan 2, 2009
Stephanie

I can't wait to read your book!! Thanks so much!!

Jan 5, 2009
Couture Glam

Hello, how are you? I read your profile and will be purchasing your book from Amazon.com It's always great to need women you are insprinal. I wish you continued success, have a blessed and wonderful year, Donna.

Jan 6, 2009
Tracey L.

LeslieAnn, thank you for the kind words. I am definitely going to pick up your book. I need to feel part of something bigger than me and my loss of hair. Having people to communicate with that can relate is very liberating.

Jan 6, 2009
Nicole

Hi LeslieAnn,

I am waiting for your book to arrive anyday now :-) I cannot wait to read it. I know it will be inspirational and help me face alopecia.

Jan 8, 2009
Kimberly

Hello LeslieAnn,

My husband and I are doing well so far. He developed a small bald patch about 2 years ago and it has been growing and spreading since. The patches are now growing in completly gray hair, and he is not received any treatment yet since we currently do not have any medical coverage. I think in my husbands case, something has triggered the Alopecia such as diet or stress. Hopefully we'll get to a doctor soon. Thanks for your comment and I hope I can get your book soon

Jan 9, 2009
Ali T

I will be looking into getting your book - I am so amazed that you are all out there and that there is so much help and support, I really didnt know it was there and I felt like the only person in the world who is going through this- how ridiculous!!!!!!!

Thanks for responding

Ali

Jan 9, 2009
sgomez

Hi Leslie!
It's been a while since we've chatted. I just wanted to say that I saw your video clip about your new book the other day. I was touched that you metioned my jello story (and that you said I'm still in my twenties lol!) You're a jewel! I was so impressed by your interview. Not only are you beautiful, but I saw that you are a very sweet and genuine person. Keep up the good work in raising more awarness while inspiring us all. God bless! Sarah:-)

Jan 12, 2009
Debbie

Hi Leslie,
I haven't been on the site in a while, but I want you to know I finally found your book. I went into the two big book stores, Barnes & Noble and -- I forgot the other one, but one said they could order it and the other one said they can no longer get it. So I found it on Amazon.com. I haven't finished it, but it's a great book.
Sorry I missed the luncheon, but it's hard for me to get into the city myself. I'm not familiar with it and don't know my way around. I really wanted to go. I hope there is another one around here soon, but not in the city.
Hope you're doing ok. My hair stated to come back and now the whole top came out again. I don't get it. I still have it in the back. Makes no sense at all.
Debbie

Jan 16, 2009
Roger

I order yours and Julias book =)

Hugs.

Roger.

Jan 16, 2009
Natalie

Hey LeslieAnn, thanks for the kind words. I'll definitely have to check out your book-- it looks really neat. Hope all is well on your end. :)

Jan 17, 2009
Tyla

Hello, nice to hear that you wrote a book :) congragulations! How is it possible to get your book for those who dont live in USA?

Jan 18, 2009
Patti Burkholder

Hi Leslie ....sometimes I'd rather listen then talk. I'm doing well nearing my 5 years of hair loss. I 've handled it well and try to let others know about alopecia. Most people are kind and my community is very supporting. This is a family thing for me grandfather dad and sister. I'm so gratful it's not something that's going to take me but it is something I must accept. I've learned no need to waste time in the negative lane make way for learning new things about myself. I chose to be bald most of the time from the begining. My wig is great when it gets cold and for a new do but... So I need to read the book it sounds great and would be nice to share with others.

Jan 23, 2009
James

LeslieAnn is your book geared more towards helping woman? Either way I think it is incredible of you to tackle this issue for others. Cheers!

Jan 28, 2009
Katya

LesliAnn, many thanks for welcoming me on this site!!!!!! It is soooo more comfortable to know that there are so may people who also keep living and enjoy live with this trange thing called 'allopecia"... is your book sold only in USA or you can order and deliver it to Russia somehow??? have a nice day!!!!

Jan 30, 2009
Sheila Burton

Thank you for your lovely welcome and we are doing well thanks. Congratulations on your book, it sounds amazing and very positive. I wish I had been able to read it 8 years ago when I didn't think a lighter side to alopecia existed!
Sheila

Feb 2, 2009
ellen schwartz

Sorry I haven't written sooner. I am amazed at how happy and beautiful you and everyone looks. Actually no one knows except my chldren and a few friends that I have no hair! Being a hairdresser I have been able to find beautiful wigs, got my eyebrows tatooed, I use great fake eyelashes everyday. Soon I will post a picture and have more time to talk. Going out of town for a week in a couple of days. I'll get your book when I get back. Ellen

Feb 2, 2009
jackie

I am fine today...my daughter is busy living her life so it is a good day. She is a beauty like you (inside and out) and will figure this out but it does have a long shadow, this hair loss. Thank you so much for your concern and I know your book will soon be on my shelf. I am hoping that soon Jenny will be on this site to know wonderful people like you. Thanks again, Jackie

Feb 8, 2009
GENNY

Hi Leslie,
I will definetely check out your book, it sounds interesting. Your profile page is really cool. I am still in the works of getting a profile page. Since i am new to the site I have to get some time to create a page.

Feb 9, 2009
JoDeanna

LeslieAnn
I would LOVE to read your book! Is their anyway that I can get it besides the net. I really don't like to order on thecomputer........JoDeanna

Feb 12, 2009
Emma-Louise

Hi Leslie Ann
Thanks For The Message
I'm doing OK, thank you.
I'm not sure if I should be signed up to this site because I'm not sure I have alopecia because I've not had it diagnosed. My mum works at my Doctors as a receptionist so my Doctor could tell my mum.
I haven't been going to the hairdressers much because I'm scared of what people will say and think. Me and my mom go to the Hairdressers together, so I notice that none of my mum's hair fall out, so that's why I keep going round and round in my head saying I do have alopecia.

Feb 13, 2009
Flin

Hi LeslieAnn and thank you for your message and the information about the book. I have alopecia totalis a few months now and before I had areata for almost 3 years. It is so difficult for me, everything happened so fast. I really don't know what to do.Thanks for everything anyway.

Feb 15, 2009
JoDeanna

Thank you Leslie! I will call my local bookstore today. Love your photos!

Feb 16, 2009
Donna

Hi Lesley,
Thank you for the warm welcome. I look forward to getting to know you. Congratulations on your book, that's quite an acheivement.

Feb 19, 2009
Sherrie Laurie

Hi LeslieAnn....thank you for the welcome...since I found Alopecia world I feel like I have found a whole family of people that truly understand...it has been so refreshing and encouraging. I can't wait to read your book.

Feb 19, 2009
Natalie

Hi LeslieAnn, thank you for you comment, and i will definitely take a look at your book when I'm feeling a little better, at the moment I'm having a great deal of trouble accepting what might/might not happen to me. I'm petrified!!! I'm sure with some more time I will come to terms with it, at the moment all this seems a little sereal. Thank you for taking the time to contact me. xxxxxx

Feb 20, 2009
porcelinh

thank you leslieann for your warm welcome. i will definitly look up the book you have written. great title! take care, Holly

Feb 20, 2009
LouiseOxford

Hi LeslieAnn, all of your wigs look beautiful on you!

I loved your book, by the way, a good balance of experiences, practical tips and positivity. Well done!

Louise

Feb 23, 2009
Pamela Schlosser

Hi LeslieAnn,
Thank-you for your message. My daughter and I were going through your pictures. They are beautiful. Maygan Loves your blonde hair.
My daughter is 10, I think that your book would help her through the emotions.
I think sometimes that it is harder for me to see her go through this. Do you think that it is normal that I feel I need to be there where ever she goes,? She lately has been starting to hold my hand in public. She has that insurecrity at school too,since her long hair was a part of her! she could always hide behind her hair.But I feel I have to be there to protect her. Is that crazy? So I feel that maybe your book might just help her ,find her old self by using humor and more knowledge about the hair loss. Is your book avaliable in Chapters book stores?

Feb 23, 2009
ALLY

Hi Leslie,
I have just ordered a copy of your book. Cant wait to read it. I have been diagnosed with scarring alopecia. Will it be benefical for that. Thanks a mil.

Feb 24, 2009
Tammy Marcoe

Thank You for welcoming me. I would be very interested in reading your book.
As that is what I want to do keep dancing and be happy.

Feb 24, 2009
Pamela Schlosser

Thanks so much for responding.We ended up shaving her head except for some bangs. She looks so cute. Hopefully she can get her wig next week and than she may feel more comfortable. She can't wait to get your book too.

Feb 26, 2009
Susan McLachlan

thanks LeslieAnn, In my profile I should have said my daughter is 21 yrs old now. She was diagnosed with alopecia universalis when she was 2 1/2 yrs old. Book sounds good.

Feb 26, 2009
ALLY

HI Leslie,
How are you doing. I will let you know when I receive your book. Hve not received it yet. Cant wait.
Ally

Feb 28, 2009
ErinMichele

Actually I have been looking for your book after I researched it online. I looked at our local borders and they didn't have it so I am going to have to order it online. Thank you so much for your message it is so nice to be able to chat with other people who are going through the same things. No one really knows how losing your hair feels until it happens to you.

Feb 28, 2009
Jo Jo

I am going to consider purchasing this book.

Mar 1, 2009

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