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lynne

42, Female

edinburgh, scotland

United Kingdom

Profile Information:

Relationship Status:: Single
About Me:: 6 years ago since I first lost my hair and its now april 2014. I had a full head after 3yrs and then its been in and out like mad, its just now growing and falling out which is so frustrating and confusing. I have lost a lot this time and was also diagnosed with a disease called endometriosis which I believe is what could have made my hair loss happen or worse. I still don't know how to cope with alopecia and just now wearing a hair piece while waiting on a wig for safety in case I lose more hair. Took a step back from this group as I was feeling positive with my hair but feel like im back to square one. Needing some support around me to help me accept whats going on.
Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older

Comment Wall:

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claire

great to heear from you ive sent you a message xx

May 16, 2009
LeslieAnn Butler

Hello and welcome, Lynne,
How are you doing?
LeslieAnn

May 16, 2009
Anastasia

Hello thank you for stopping by my page. The first thing I noticed about you were your eyes they are beautiful and so are you. I am so glad you have a wonderful support system because it can be overwhelming sometimes. I look forward to getting to know you better. Thank you for the invite :-)

May 17, 2009
karen

hi lynne sory for the delay in replying, my computer has been updated, im fine thanks, due to get a wig on june the 3rd, but i dont know if i will get on with it ive got a buff a friend on here recomended,best headwear ever ,and so comftable karen

May 17, 2009
ALMA

Welcome to you as well.

May 17, 2009
JeffreySF

Hi Lynne,

Hope tou are having a great day in Bonny Scotland.
All is good here with me. Were gonna head out to the park and go for a paddle boat ride on the lake.

Hugz,

Jeffrey

May 17, 2009
Kenny j

Hi lynne thanks for adding me as a friend.

Hope you are keeping well but i must mention your friends wig if i met you for the first time with it on i would never even notice it was a wig you look great in it.

Kenny

May 17, 2009
Kenny j

Ye i'm fine lynne thanks, my hair in three areas is coming back in but the hair is pure white so i am trying dermmatch hair concealer.

May 17, 2009
JeffreySF

Glad you had a good day Lynne.
Off for the sunshine for now.
Speak to ya soon.

Jeffrey

May 17, 2009
Linda

Hi Lynne, thanks for friending me! Wow, allergic to the sun, that's incredible. It's a good idea to wear high SPF sunscreen when in the sun at all times anyway because of the uv rays. Sorry, I went all MUM on you :-) Stay blessed Sweetie!

May 17, 2009
Kayleigh George

Hey
Sorry no one has, but ive decided that going to buy the t-shirt and my friends and family going to wear it for the day to raise awareness!

May 18, 2009
Kayleigh George

Im doing ok thankyou and yourself?

Yes I find people seem to think i have cancer... which i can understand but proves people really dont know enough about it!
x

May 18, 2009
Kayleigh George

Yeh i no the feeling
When i returned to work after being off 7 months!!! They were all ok and every thought i had my hair cut! But they all know i have alopecia and are cool with it and very suportive, im sure your work colleages will be to!

May 18, 2009
Nitza

Hi Lynn,
I had my son shaved what ever strings of hair I had left and felt better even look better..That's great your getting a wig.I don't wear wigs yet i want to wait and see what happens next so for now I wear scarfs,hats. went to the doc yesterday to get my 15 injections I hat them they hurt but I have to get them. well I hope your having a good day.talk to you soon

Nitza

May 19, 2009
Gaston Costa

hey hoe are you, im fine i am starting to think that my hear is no goring back at least the way i use to have it , how are you

May 19, 2009
Jude

Hi Lynne

Thanks for the message. Have you shaved your hair off yet? I felt so much better when I got rid of mine - neater and more in control.

J

May 20, 2009
Angie W.

Hello Lynn, thank you for friending me...and thanks for the compliment. I've only started in the past year (since finding this site) becoming more comfortable going without wigs in public (although I've not gone totally uncovered), I wear scarves or bandanas and I'm really loving the freedom. My next step is to go out totally bald (gotta give that one time). I love having options (different styles, colors) of wigs or options with scarves or bandanas. I'd never thought about it before, but since having Alopecia, I am much more sensitive to sun...I break out in certain areas that I'd never had problems with in the past; but I'd never thought about linking it to my Alopecia. I'm sorry that has happened to you and maybe one day you'll get your hair back, but know you're beautiful either way.

May 20, 2009
Lizzie

Hi Lynne :)
Thanks for the add, really nice of you! :)
My Brother's in Uni up in Edinburgh! I've been to see him a few times, it's a really nice city :)

Anyway, How are things going?

Hope you have a brilliant week!

Liz x

May 20, 2009
Kevin J. Kozak

Thanks Lynne.

Yes, all is well here. Hope the same is true by you. :)

May 21, 2009
Lizzie

Aw! Thats excellent, congrats!!
I know it's really though to just ignore everyone around you. I have AA since I was young, so I've gotten used to it, what with going to school and everything. But honestly, it get so much easier, I forget that I have no hair!

God bless.
Liz x

May 21, 2009
Rebecca Rae

Hello, thanks for the comment :D
Yeah it would be great to have a chat with loads of people that have alopecia, cause none of my friends really understand what its like to have this. Thanks again.

May 22, 2009
Anastasia

Hi there!

I figured I'd check on you to see how you are doing. I hope your week went well. I've been pretty busy this week myself. I think I might try to do something fun this weekend, but I have no idea what. Anyway, take care hope to hear from you soon :-)

May 22, 2009
Rebecca Rae

Hmm, thats not so good for you!! Yeah i have had alot of that, at school and stuff this one girl thinks its funny to talk about it to other people and say rude and nasty comments, but everyone else is backing me up 110% so thats always a confindence booster:) Its always good to talk to someone who understands what your going through, but sometimes it can get alittle to much, if you know what i mean. Speak to you soon :).

May 23, 2009
Andrea Olberding

Hey! thank you hope you're well too. Thanks for the welcoming. We should chat sometime
-andrea

May 23, 2009
Rachel Taylor

thank you so much!

I hope you are doing well!

May 25, 2009
Alex Teodoro

Hello! Thank you!

May 26, 2009
Kayleigh George

Heya Lynne, how are you?
How is work as you said you were returning and a bit nervous.
Hope all is well
x

May 26, 2009
Jackie

Hey Lynn, I responded to your post before looking at your pics....now that I have checked them out, I am convinced that you are hot with and without hair...don't get any more down on yourself..walk tall and confident (even if you feel small and nervous)..it really does help.

May 26, 2009
Kayleigh George

Oh im sorry.. I really dont think anyone has the right to see you bald head. The thing is that if they havnt been through or a close family member hasnt they dont have a clue and someitmes dont know how to act. But in all you are strong because it is you that has lost the hair and you that is going to work and getting on with your life.
I have someone at my work that when she talks to me she stares at my wig and it frustrates me just want to say to her yes i am human i just dont have hair is that a problem?!
Yeah Im doing ok thankyou
Keep your chin up
xx

May 27, 2009
Tracy and Amanda

Hi Lynn, I am doing okay. I hope you are as well. I just joined and I am so glad I did everyone has been very friendly here welcoming my daughter and myself.

May 27, 2009
Sue F

Hi Lynn, Thanks for adding me as a friend. My son and I are doing okay. I hope you are too. I read your blog about rude people. I'm sorry you've had to go through that. I can't believe how some people can be so rude and hurtful. My son, Sam, still has to put up with the stares and unkind comments even after 11 years. It's so heartbreaking. He says it doesn't bother him, but it surely bothers me. He says he wishes people would just ask him about it rather than constantly stare. He's come a long way over the years. I hope things get better for you. I'm sending lots of hugs your way. Oh yea, about the article on my blog, I just found it yesterday. It was all over the news today, but no more information was given. Hopefully, there will be an update soon.

May 27, 2009
Somaaya

Hi how you doing nice tae meet you hope you dont mind me asking but how long have you had alopecia?
x

May 28, 2009
Kayleigh George

Hey thanks for comment,
When you due your scan? I didnt know they can diagnose it with a scan!
There are quite a few treatments though!
x

May 28, 2009
Kayleigh George

Omy yes you have had a bit of downer time!
Im not too bad thanks
Just about to leave to go to cornwall!

May 29, 2009
Somaaya

Sorry tae hear that love well I have had it about 10 years now you just need tae be strong 7 weeks not long ago then. I think mine was stress but i dont know as of yet what really triggered it off.
x

May 29, 2009
Danny Mahon

Thanks Lynn, nice to meet u x

May 30, 2009
Danny Mahon

Would luv to talk more but just got in, nite nite if your there x

May 30, 2009
Kayleigh George

Heya you ok? Im back now!!!! How was your weekend?

Jun 2, 2009
Kristen Viveros

Hey Lynne. I think that my eyebrows are coming back but they are very misshapen so I'm not sure. I havent noticed any change in the rest of my hair. But I know the day is coming so I am just waiting for it now.

Jun 2, 2009
Tracy and Amanda

Hi lynne,
Just wanted to know how you are doing? My little girl made a comment earlier today that broke my heart. She mentioned she wish she had all of her hair because whenever she touches a bald spot she gets sad because she feels there is no hair there. I think it is starting to bother her for the first time in the 3 yrs she has had it. Try to stay strong. Talk to u soon.
Tracy

Jun 3, 2009
Kayleigh George

Hey thats brilliant that your going to be getting your wig. I felt a lot better when i had my wig it make me look "normal" to other people. If you know what i mean.
I am good thankyou. weekend was brilliant well lush weather... and didnt get burnt lol!
I brought a human hair wig for £50. i dont believe its truth though!!

Jun 3, 2009
Kayleigh George

Yes wigs are expensive and i know for fact that you cant get human hair wigs on nhs :(
Yeh thats how my eyebrows went and now i dont have nay. but you should go into clinqe or how ever you spell it in debenhams or boots and they sell a brilliant eyebrow pencil and they will teach you how to do eyebrows that look natural! Thats what i did :)
x

Jun 4, 2009
Rivkah Writes

Hi Lynn, I'm afraid I don't know what vacuum wigs are, although I could try to do some research on it. However, if you're looking for wigs, you will find tons of information about wigs, wig salons, locations, and stylists in the resources provided by my article, "Headed in the right direction: the head covering as marker of a Jewish woman’s identity Part II," which you can find at http://www.examiner.com/x-12088-Brooklyn-Jewish-Examiner. Be sure to click on the "All About Wigs" resources section on the right-hand bar of the page. My article also contains useful information on how to control cost and get the most out of your wig. Please feel free to ask me any further questions either here or on my page at the Brooklyn Jewish Examiner.

Best of luck!
Rivkah

Jun 4, 2009
Lauren

thanx

Jun 5, 2009
Pamela Garrahan

Thanks Lynne...it sounds to me like you might have what I have, the Lupus

Jun 7, 2009
Jess

Hi Lynne thanks for adding me im doing good thanks im still getting used to having au some days are better then others feel emotional at the moment my son takes my mind of it when hes running around with his lego everywhere! hope you okay be nice to chat to you jessxx

Jun 9, 2009
Alison

Hi Lynne

Thanks for the welcome message :) How are you today?
Alison.

Jun 10, 2009
Anabel

Thanks for the invitation :)

Jun 10, 2009
Heather L

Hello Lynne!

Thank you for the friend add! I look forward to talking with you more!

Don't have much time to write- I have a charity event this eve I've got to go ready for... BUT I noticed on your profile you are not able to be in the sun. Are you taking a Vit D supplement?? ( have you had that level checked )

thanks again!
Heather

Jun 10, 2009
LeslieAnn Butler

Hey girlfriend! I'm so glad you're enjoying the book!
It just won Book of the Year, a national award!
Hooray!
How are you doing today?
LelsieAnn

Jun 10, 2009