julie, do you have celiac disease??? did u test that?

hii!! i asked you because .... I am following the free gluten diet, in some cases it could be the trigger, so i am stick with that, but i didnt test that because i dont have money for more test ...so i just dont eat gluten.
you were lucky if you trigger is the gluten because the important thing in the ellfuvium is to find the trigger, and besides the live without gluten is not difficul ....at first i was a mess with the diet but then it is easy.
i dont know if the diet is working for me yet

I went to my church yesterday. Told God how you were doing and was going to light a candle but all 250 candles were lit! At $2.00 a candle St. Valentine is making some money those candles. I guess there are a lot of people praying these days. I put 2 bucks in the basket anyway......this morning I read in the paper that the Vatican is being investigated for money laundering by the Italian government. :( I don't know what to say, how about some quotes.......
"Never give up, don't ever give up" Jimmy V. basketball coach
"Rise and Rise again till Lambs become Lions".. Sir Walter Loxley from the movie Robin Hood.

Hi dear, first of all you are very beautiful like a model!!
pls try think positive. All this kind illness is based on bad and dark thots.
dont allowd this to your mind and body, even i dont have hair most of the days feel good i dont have more medical problems thats is good thing to me. i dont know your problem i dont know anyone have it i am sorry you pain...but i am sure that your mind can make mirracle...! take care ...tolk to you soon.

Hi Julie Ann, I was talking to my friend about your problem. She recommends DOVE soap only. She has very sensitive skin. I took her to Heinz Field for a football game and at halftime she went into the ladies room. During the second half her hands turned red and were burning from the soap in the restroom. Millions of people visit Heinz Field but she is the only one I know who had a reaction to the soap.....another "one in a million".

Hi, I have the same scalp pain you have and I also have it in my eyelashes at times. My doctor put me on the same shampoo you were put on and a topical solution called fluocinonide. It takes the innflammation out of the hair follicles. He also has me taking biotin and AG pro. The ag pro is sold behing the counter. I know that this is hard. I just wish that I could except it but it is one of the hardest things that I have ever been through. I am working on my third year of having what ever I have CTE or alopecia do you have times where you don't shed as bad? Are you losing any body hair? Anyway I hope that it gets easier for you.

i would like to know how many hair are u lossing per day? at first i was lossing without shower about 200 hair just picking hair up not pulling, and at shower 700-900, now is it always 200 per day when i don not wash my hair i pull my hair to take the hair which was going to fall anyway, what about u?

Hi the shampoo did not make my hairloss worse at all. It helped me with the itching and discomfort. But it definately didn't make my hair come out worse. Sometimes I feel that it haelps with the hairloss but then it comes back so I don't know if it is the shampoo or a cycle. But I really wouldn't be scared to use it.

i am glad your shed is better, and besides your effluvium was normal not like my case 900 hair!! well i dont have enough hair now to that shed , i would be bald in a month!
dont u feel weird when you touch your hair, because in my case is like another head like not me i got 3 hair left!! arrrrgggg.
by the way i have read you about keto shampoo, i dont understand your fear this shampoo it is not big deal at least you have allergy to it hahaha,,,but you cant try it just in one litter zone and see

Hey!! I love your photo, is that an Owl???? so cute.
Well, I hope things are going ok?? I was just reading your blog, I don't know much about the pain but I feel for you. I know all about hair loss, and have had other immune problems, but that is not the same. I truly hope you feel better soon. Let me know how things are going. And remember how beautiful you are!!

Hey Girlie. How are you today??

Hi Julie, I'm sorry I've been out of touch with you. Just read your blog, the apology one. I think that it is pretty crappy that your other blog is missing. We've ALL been in that desperate situation, and some us are here to let know that and that we've survived. I'm SOOOOOO sorry that you feel so desponded. Yes, I too, have thought about the unthinkable MANY times. All I kept thinking about is how I would piss everyone off if I went through with it. Then I thought, what if i wake up tomorrow and I was fine...no more hair falling and no more burning. I was pretty hard to deal with, and no one wanted to talk to me about my "hair" problem. I was a walking time bomb. I told my husband, because the burning, i wanted to be hit by car. I WAS SERIOUS! BUT...here's the big but....it eventually went away. I still get little tinges of it. It took a loooong time, and my hair is still falling out. You go figure, cause I don't know. Maybe, it's the medication you are on...a side effect? People don't understand that the burning interferes with every aspect of your life. They just want you to be happy or the old you, but you can't...you are in severe pain. How would they feel if it felt like someone just dumped some acid on their heads?....NOT HAPPY that's for damn sure.

Polar Bear Cub

Thanks Julie! The hair gone feels real good. I forgot how much time you save in the shower with no hair and I always hated seeing the hairs fall out. Ya I like it, its tough having to explain to everyone you know because I dont wear a wig just a hat, so you have to explain to everyone you see. Its gets old, but other then that I like it.
Why are you considering taking the plunge? At least women can go with the wig and I love how some have many different ones and they can look like a different person every day if they want.

Hey! Hope all is well!

Hey Julie :-)

sorry for my late reply and thank you so much for your friend request!
I love your pictures - you´re beautiful!
How are you doing?

Thank you for being friends and for your kind words! My greatest blessing is indeed on the way :)

Hey pretty lady :)

ahh! im so happy you liked it! haha thanks for adding me, LOVE your profile picture. so cute <3

Thank you for the friend request:D How's it going?

Thanks for the add, but to be honest, I'm actually Dr. Manhattan from The Watchmen, but it's all good!

oh wow, your story is really moving. ppl with alopecia should read it and see that a hair loss is the least that can happen. i truly hope youll get better. keep your chin up!

Thanks Julie Ann for adding me as a friend....we all can use all the friends we can get in this lifetime. Any questions, ask away!!! That is why we are on this site, as well. I may not possess the answers, but I surely will try. Things happen to so many people, and there is no answer or medical explanation as to why. I also have OCD...gotta love it, right? And everyone's manifests itself differently, and to try to explain it to someone "normal"...they surely don't "get it".

I also just had an "episode" of just plain blacking out, hit the floor, face first, fractured my cheekbone, and have a hospital bill of $5000 and no reason as to what happened and why. Nice, right? No explanation for a lot of things in this life...but we sure get stuck with the drs. bills. Reading some of what you state, I have heard many people on this site have scalp pain with their hairloss issues. And what did happen to your blog? That is a mystery. I also took many vitamins to try to stop my hairloss...nothing worked for me. But that is not to say it won't work for someone else. SO much is trial and error, spend lots of money, stress, and see what happens.. hope for the best.

thanks for the add :)
and awwe thank you. :) that made my day! it's a wig though, i haven't had actual hair in about two years. and i LOVE your profile picture! is that an owl?

Merry Christmas Julie!!!

I'm glad I could make you laugh!!!

Hugz!

Jeffrey

Julieee! How's it going? I guess I shouldn't have cracked wise about the temps in Wisconsin. Karma came around and delivered some sort of cold front to Houston. It got down to the 30s in this allegedly sub-tropical area. I'm freezing my patooties off! Hope you are doing well and having a great holiday.

Hi Julie! I so hope you're feeling alot better today. Always remember to keep you chin up girlfriend! Life does get better. People are facing all kinds of things these days. You look like you get lots of love and that is the key to being happy. You are a real beauty and never let the lack of hair make you feel any different. I hope that the pain you feel at least eases up if not totally goes away. May all your days be full of sunshine and love!

Julie, so your head skin hurts too? No one can explain this to me, and it doesn't seem to be related to the injections or the cream, although they both exasperate it a lot!!! What's your situation??

Juuulieeee.... I just read your bio, we have SOOOO much in common... really- REALLY let's talk together. Im 34; we're the same age. Anxiety, Panic, struggles with nutrition, scalp pain,alopecia- I dont know the other one you said right now and Im at work and totally sneaking this blog.. HAHA so no time to look it up. Life changing- depressing- yes. Im alone in southern CA, moved here almost 3 years ago and like any urban area, not easy to make friends and certainly no one close enough to share intimate things like my feelings over all of this with... I have a crappy schedule, but Im so hoping that we can hook up and talk. ... :o) Leah England

Hey Julie, I just saw your comment and I wanted to thank you. You're beautiful too! I hope you take your own advice. I'm sorry you had to go through this.. but stay strong <3

Hi Julie,

Thanks or welcoming me. I have been wearing my wig and also a head scarf, at home, when I am not wearing the wig. Amazingly, when I don't have access to my own hair, I don't feel the urge to pull it. I am hoping that, if I avoid having access to my own hair for a long enough period of time, I will rewire my brain and won't be taking my hand to my hair even if I have access to it again.

Hey thanks for the add! :)

Oh my god, Trichodynia that is what was happening to me for 3 years! Its only just stopped, it used to feel really really tight and feel like acid was on me head. My head also felt like it was gonna pop! My doctor told me that It was nothing, so thank you for helping put a name to my hurtie head lol

Tommy

Hi Julie!! Thanks for friend requesting me!! I completely understand the emotional pain you are experiencing! Hair loss is scary and emotionally challenging. Just know you are not alone we are all here to support you! :)

Hey Joolz! - Happy Birthday!!! Just how many times can a person be 21, though???

Hope things are going better for ya.... and it doesn't matter about your hair when you're as fab as you are! Bet you get loads of prezzies.. don't eat all the chocs at one, tho' - pass 'em round here! :) xxx

happy birthday :)

Happy Birthday Julie! I hope you are doing O.K.

hey dude,

God i feel like poo! I hope your doing ok, sorry i have been really poo at getting back to you!

heres my personal email as my web broswer doesnt seem to like alopica world any more! tommytaylor1985@hotmail.com

chat to you soon

tommy

xxx

Hi Julie , Really enjoy your fotos here and also your blog journeys are incredible. I hope things are good and I will catcha on here sometime .

- Robb

Hi Julie, you are so BEAUTIFUL and I hope things are improving for you! I was literally in tears when I read some of your blogs and about me page. It's so unfair for any of us to have to go through this. I've had a rough few years adjusting myself. Sometimes I think that for a little while I actually stopped living my life. With the exception of the scalp itch I think we may have similar experiences. I have tried so many vitamins. I used to carry them in my purse and call it the pharmacy. I literally think I was taking 10 different vitamins a day. I was taking so much Vitamin A that I think it may have unknowingly contributed to more of my hair loss. I went to so many different doctors...family doctor, endocronologist, dermotologist, gynocologist...you name it. I got creams for my head, shots in my head and even spent $2000 for Low Level Laser Therapy. While doing all this more and more and more of my hair fell out. I started wearing extensions, which helped until I lost so much on top it starting looking more like a mullet. I wear wigs now...and my passive aggressive mother in law says that I gave up. Well, I disagree and I feel like I finally started to live my life again. I'm sooooooo tired of trying to fix my hair loss. Maybe it's just the way I am now and the way it's going to be. My mom told me to either accept my hair or accept my wig and start living again. I was spending so much time on my hair I was missing out on time with my son and letting the rest of my mind and body fall apart. I started the new diet which I LOVE. I feel good again. I have found a place that will maintain my wigs and finally found a style that I like. Finding a good wig was another challenge...but, worth the time and effort, I think. If you have any questions about the diet let me know!!! I sincerely hope things get better for you soon! I'm so sorry about the itching :( You are gorgeous and you will get through this too!!!

Hey Julie,

You have been on my mind, thought I would drop by and see how you are doing.

Cheryl

Hey Beautiful! How are you??

Thanks. We all have something in common Julie. That is we care about our emotional and physical well being, even caring about you. I don't even know you. But I went through that. It is hard for you. Please believe positively. It will work out. Merry Christmas. I will talk more with you.