Hi Leslie Ann, wow, I need to get your book!  Thank you for writing to me.  I'm in such a transition now, going from a bonded topper to a wig and I'm trying to take in all the information I can.  I'll attach a photo to my profile in a few days.  That will be with the topper.  Too much money every month to keep that up - $30,000 over the course of 8 years, ugh!  I'm glad I stumbled onto this site.  A wealth of information here.

Hi again, I did manage to find her website by doing an internet search.  I think that there are a lot of nice wigs out there without having to spend a ton of money.  I appreciate this website for the wealth of information and for internet friends like you that offer your knowledge to us newbies.  I am also going to adjust my diet and see if that has any effect on my hair loss.  I was going through a lot of stress for many years with loser-type boyfriends and elder family members that have since passed.  I'm in a new phase of life here and am going to make the most of it! 

Thank you for the Welcome, I am going to look for your book. KB 

Hi -

We are doing well. My daughter is 8 years old and all this just started in October. It has been extremely difficult, especially for me. She is such a tough little girl. She is handling it with grace. She usually wears bandanna but does go out in public with out anything on her head. She is almost completely bald with some long strands still in the back and sides. She is a glitzy glam girl and would wear a tiara or anything sparkly in her hair. Now we cannot even find a bandanna with sparkles. (She won't let me make one either.)

I am glad I came across this site especially since I just joined facebook.  Happy New year to everyone! I will also be looking out for your book. Thanks. It is nice to not be alone.

Thank You for the Welcome. We learned yesterday that my 6yo daughter has AA. I am taking it worse then she is. I cried after I put her to bed. She had no idea she had blad spots until yesterday. I noticed the 1st one about 4 weeks ago and another 1 yesterday when I was doing her hair. Her doctor said we just have to wait and see, if she looses more hair or the patches get bigger to bring her back and she would refer her to a dermatologist. I honestly don't know what to do. I sat her down tonight and talked to her about the bald spots, what its called, she asked what happens if she looses all her hair. I told her that she will still rock her bows.

I am well thank you.  I am headed to Amazon to purchase "If Your Hair Falls Out, Keep Dancing".  Thank you! Thank you!

Hi Leslie Ann!  Thanks for being the first one to welcome me here!  I'm not used to putting myself out there like this (I don't even do Facebook), but something within me felt this site was special. :) I look forward to reading your book!  

hello leslie ann,

how are you and  I am good  and  I have had alopecia areata for over  30 years and  I am all so a  part time advocate on a very vital and necessary senate bill 430 that  I have  been  fighting to get passed and to become a law  for Massachusetts which is to get coverage for wigs for   people that has alopecia areata  and I am sending you my website which is www.heidibrattssenatebill.com

and I  live in  Ipswich mass with my famiy and I  hope you will like my website leslie ann

Heidi bratt

Hi LeslieAnn.   I'm fine today.  I am going to purchase the book "If Your Hair Falls Out, Keep Dancing".    I am a dancer!!!! :)

Hope you have a nice day,

Mary

Hi LeslieAnn,  I just sent a friend request.  Your book looks like something I should read.   I will order your book on amazon.  I lost my hair during chemo for stage 3 breast cancer. Finished chemo 13 months ago, but my hair didn't grow back.  I've been to several doctors and they call it chemo induced alopecia.  A small mount of hair has grown back and a few eyelashes, but not enough to wear mascara, or go out in public without a wig.  I am just beginning to accept that this is most likely permanent.  On the bright side, I love my wig.  I have two, both from natural hair, as I couldn't find a synthetic that looked natural on me.  You look stunning in your wig (Is that a wig?-It looks great and so much like real hair).  Sorry I am so long winded, but so happy to be able to talk to others who share my baldness.  Please let me know if you have any helpful tips.     Wendy 

HI LeslieAnn

     Thank you for welcoming me and my daughter.  We are doing well today but everyday is a struggle to keep Jaeden's spots hidden. We had a rough night Monday as she had overwhelmed herself with thoughts of getting injections.  I told her if she doesn't want to, she doesn't have to.  She had a horrible reaction to the clobetsol and Rogaine treatment that the doctors had recommended.  I've been researching alternative remedies to help with her AA and have found many helpful products but was wondering if you had any recommendations?

Thanks Leslie. My ego will get shot down a bit. Here I am at 62 with natural red coloring and a reputation for long hair. That picture is about 3 years ago.

I've been able to hide the hair loss quite well up until the last month. I sometimes show people the rising hairline against my neck and ears and they gasp.

I watched your video and read about your book on Amazon - very, very encouraged by your journey.

Gene and I are actually moving to Portland in March! Perhaps we will get a chance to meet then?

Thanks so much for the info! I think I will buy your book and try to keep learning. I think I still have a little more time to research before I need to make a decision. Thanks again!!!

Very well thank you LeslieAnn - I am so touched by your warm welcome.

It means so much, x

You are utterly breathtaking in your photographs - your inner beauty and confidence simply shines. I hope to be able to regain my own - you are simply an exquisite inspiration to remind me of what is possible.

Thank you - yours very sincerely, Ms Phoenix Blake

May I ask you a question, please?

Have you ever experienced regrowth?

I am starting to see some eye lash growth and  have some non colored hairs in areas of my body.I am wondering if it is common with Universalis. 

That's great to hear LeslieAnn! It's great you are positive and moving on with life. It helps to have a good support system and focusing on other areas of your life.

Continue to take care and I wish you light and peace.

- Shelliann

Hi.  Your pics are amazing...you are truly inspiring.  I will buy the book online.  BTW..how do I know who the spammers are???  Anyhow- look forward to reading your book. 

Thanks!  : )

Thank you for make me feel welcome 

everything is going well with me

i have found new energy for taking my life a step further and next month i will open my own shop 

how are you?

Thanks for the warm welcome! Tell me more about your book! 

Hi, All great thanks. Have been living with AA since I was 16, for the last 10 years universalis (with hair growth in between). I am fairly comfortable with it all. I have decided to start paying a bit more attention to the alopecia and stumbled across this site. I am interested  in diet and natural therapies others have tried. Your book looks interesting.

Hello Leslie Ann! Thanks for the warm welcome. I am definitely buying your book and give it to my best friend who has alopecia.

Hi Leslie - thank you for the welcome. I don't yet have a diagnosis. I have been living with postherpetic neuralgia, after having shingles 14 years ago. I just noticed bald spots on my head and going to see a doctor. I just want to be informed. Looks like some wonderful people visit the site and share their experiences. Bless you.

Hi Leslie.. I just read your welcome message.. How r u? I'm good, but have been better.. I'm not active.. only visit the site when I feel depressed.. realizing I'm not the only one makes me feel better.. I read the reviews for your book.. would like to buy one too.. thanks for the warmth and support :)

Thank you for welcoming me..I am at present very low in spirits since my hair fell out and now most of my eyelashes, brows, lashes etc too. I feel very alone with this and am struggling to come to terms with it all.

i will surely read your book..!

Hi Leslie Ann, 

Thank you for your welcome, I am fine, and you ?

I will look up your book as soon as I can.

Have a good night

Ida

Hi LeslieAnn

So nice to be welcomed by you.  I'm doing okay thanks.  At the moment I'm feeling pretty philosophical about my recent diagnosis of FFA.  My youngest daughter (now 11 years old) was born with a rare and severe form of mole type birthmarking which in her case included a giant birthmark which covered about half  her face.  She's had a lot of plastic surgery and consequently I've done a lot of thinking over the years about our fixation with appearance.  I don't want to lose more hair (have been without eyebrows for probably 6-7 years now, which was okay thanks to tattoos, but the scalp feels somehow different ....especially as I camouflaged my eyebrow situation with a fringe, which is getting slower thinner).  But my daughter has been through much worse than hair loss and she has her whole life stretched ahead of her with all its joys and pains lying in wait, and that keeps my situation in perspective.  She's bold and sassy and a great role model for me!

I was really interested to see you've published about alopecia.  I'll look out for your book.  I'm also an author (around my day to day employ with the Australian Government).  I had my first novel published last year (and hair loss was a quietly present leitmotif throughout the book).  My website is www.felicityvolk.com if you're in a mood to surf sometime.  The book is hard to get outside Australia/New Zealand as my publisher only bought the ANZ rights to the manuscript.  But I've seen it listed as an ebook on Amazon.

It was great to see your photos on your wall - you look a little like Sandra Bullock in Blind Side to me :-).  That's a compliment by the way - you're gorgeous!  I'm a brunette (while I've still got hair) but looking at your pix tempts me in the direction of going blonde at some point if I end up heading into the world of wigs.

Warmest wishes from the antipodes and thanks again for your welcome message!

Felicity

Hello LeslieAnn, thank you for the welcome!

Daphne and I are doing wonderful today. She's been up and dancing in her dress up clothes since 8:00am, a very happy girl today. I'm excited to see that you're somewhat close to me. I've been trying to find support groups or meet ups but it sounds like there's only one in Seattle but I can't find if it's still going on or not. Any suggestions?

Keep in touch! :)

-Amanda

Hi LeslieAnn,

Thanks so much for the welcome.  I appreciate your asking.  Today is good.  Some days not so good.  Got to keep trying.  Based on all the comments below, I think I will take a look at your book.  Thanks again.

Joan

Hi Leslie Ann:

Thanks so much for the welcome.  I can't wait to get and read your book!!

Thank you!!! :)

Hi Leslie Ann,

Thank you for the welcome :) I'm doing well today, I'm happy to have found this forum to ask questions and get support (I'm newly diagnosed). Looking forward to checking out your book!

Sarah

Hi Leslie Ann, Thanks for the welcome ! Im doing well, I'm excited to read your book ! Btw i LOVE your hair pieces what type of hair do you usually get?

Thank you for the welcome, Leslie Ann.  I look forward to hearing from others how they have dealt with HL.  My hair loss is hereditary, and has been progressing now for over 50 years!! Hard to believe, but it has literally changed my life over the years, and though minor in the "Big" picture, has been devastating in so many ways.

Your hair is gorgeous, by the way.  :-)

Hi LeslieAnn, very many thanks for the welcome.  I am really looking forward to making contact with others with FFA and Lichen Planopilaris and Alopecia generally.  I was diagnosed 4 years ago and now the hair loss generally and receding hairline is hard to disguise.  I have made a preliminary foray into the world of wigs and find them far too uncomfortable.  I live in the UK but am travelling to Chicago in April to attend the Cicatricial Alopecia Research conference and wonder if anyone else is likely to be attending?  Your book sounds very interesting and I will check it out on Amazon.

Thanks again for the welcome, anything that lessens the isolation of this condition is wonderful.

Margaret

Hello Leslie Ann and thanks for welcoming me.  After a bad experience on the Main Room Chat last night I thought I had made a mistake joining this page.  However your warm welcome has changed my mind.

- Kathleen

Leslie it has got worse since yesterday now I am being called baldy, chrome dome by him he has become very abusive but im trapped as I have stated in my previous blog because awaiting 2 surgeries and high health ins premiums. He has me over a barrel. Then tells me he has never heard of any woman losing their hair, How ignorant! Yet he refuses to read up on this and to go to the doc with me. He is awful and also a coward. I just pray that God gives me the strength I need to get though all this and leave and never look back.

fantastic!! :) olivers well too thanks for asking, n 4 yes defo a brilliant age, turned from baby to real little boy with soooo much character, very funny times at the mo!! do u hav kids, nieces/nephews? so u have a book out!?! well done!! what an achievement!!