I love your website and I have added your book to my want list. I have to read your book. I have a love for butterflies due to it beauty and have one tattooed on my back. I love how you stated on your website that butterflies represent transformation and how you related it to how a person changes one self. It was a beautiful & truthful statement.
By the way you are a very beautiful person & have such a beautiful family! :-) I have put your name down in my book of people who are an inspiration to me.
Oh gosh, I know what you mean!! If I ever get a full head of hair back, I don't know what I'll do! It'll add so much more time in the morning to get ready! I'd rather through my little "hat" on and go!
My Alopecia was discovered only 8 months ago but it has probably been falling out for a year without me noticing it. I have managed to conceal it in my thick hair and I'm holding off the inevitable shave as long as possible. My hair seems to fall out after my morning shower. Maybe I should stop showering?? I'm not sure if it falls out from my 'spots' or if its from other parts of my scalp.??
Do you know....? Does Alopecia Areata become Alopecia Totalis or Universalis? Is it a progression from one form of Alopecia to another or are these categories of hair loss?
Thanks
gonz
Julia..Wow!!! What a kewl video...Inspiration?? That video was excellent..If you get any more charm,this site is going to explode!!!..I didnt know 1 in 10 women will suffer at one point in there life..Wow!! You are surely amazing..
..Keep the faith..Give the love..Share the happiness..Bob : )
hey julia! i looked on that site to see if they would run the story about the book, but i didn't see any links about it? i am talking about the one where you gave 4 names. Well, someone contacted me and i answered her questions, but then i couldn't find anything about it on mansfieldnewjournal.com. also, i got your message about the story on velocity weekly link.....that is awesome! i love the work you do! did i tell you i ran the half marathon here in houston bald and there is a local magazine here that they have in grocery stores and they wrote a story about why i ran (to raise awareness about alopecia areata). i felt so good knowing that i could inspire and raise awareness....it was awesome!
Julia,
Thanks for the link. Your pictures are adorable and you seem to have such an attractive appearance in all your photos. Do you have any special beauty tips that you can pass along, I dont know how to word this without being offensive to anyone because that is definetly not my intention but I feel this is a website that we can connect and be open but your appearance does not look as to one that has alopecia it just looks like a sharp lady that decided to shave her head, your eyebrows and eyelashes appear to pop and do not fade out like most individuals. Do you have any tips?
Hey Julia,
I received my book today! Very good read...and the layout turnout great! Thanks for bring me into this project and I hope to see many more from you! The YouTube presentation is a winner also, I love it! I hope to see you at the NAAF conference this year I will be making the trip to Houston, I will be sure to bring the book for autographs!!!
~Yvonne
Hi Julia
I would like to hear more about what youare doing. I really enjoyed the video. I can't wait to read your book. By the way your beauty inspires me.
i am doing a lot better but am just contemplating about if i should have quit therapy as i couldnt afford it and have no job/insurance... and i decided for myself that enough was enough yet i guess i still worry about it but after a year, what can they say, what more can u talk about you know?.. there comes a point where you have to just realize maybe its not as bad as you think and the world wont come to an end.. and you have to deal... i am better, although i still have my anxious moments and disappointing things that have happened to me thru this....
Hey Julia never got back to you to say thanks for putting Kiah in the book. Between that and her article with Charlie she really feels like a celebrity now! Everyone I have shown the book to loves it and it was a good experience to sit down and write about our lives. Are you going to the conference this year? Also, you had mentioned emailing some of the pictures that you took in Louisville and Im sure that got lost in the shuffle but if you could still email them we would love to see them!
Thanks again, hope to see in Houston and the girls say hi!
I am better frankly and giving up therapy has not harmed me as i thought it would. guess i was thinking it would be harder to make it but i have done ok. Frankly we all know what therapists will say and what they will tell us, guess I was tired of spending my money I dont have as I lost my job too and was laid off. She keeps telling me I wasnt ready to give it up yet I have to do what I WANT TO DO Sometimes even tho she means well I feel she is just looking for her salary... And I've had enough after a year u would think that should be enough. I am feeling it doesnt look as bad as it did, dont know if its improved, if its just i'm mentally better, or if it never was that bad.. who knows i just know i'm dealing better.. and trying to hang on. I'm concentrating on trying to lose weight and eat right and trying to transfer the "hair" energy into the "weight" energy so I can concentrate on things that are good for me. Thanks for always helping me.. and I hope to stay in touch.
Hi!!!
I know it's been a while. playing catch up.
I wont ask how you or the little ones have been cause I know you've been beautiful the entire time!
Jazz got injections in her scalp about two months ago and is to go back on Monday to get the more. Havent seen improvement plus she really cried the last time so I'm not sure if she will get them again.
As usual, keep up in your prayers. I think of you often.
When's the last time you spoke with Gayla?
How is the book? Did you finish?
Chat soon.
Julia, we like the idea of meeting up in Ohio. What city do you have in mind. I don't think we're going to make it to this year's NAAF conference, but we'll see. Are you going?
Thank you so much Julia for your lovely message! I must get into this Twitter malarcky!! Gail (Porter) and I were doing it from hers the other night (over a glass or two of vino!) and we had so many lovely messages back!! Once I get myself onto Twitter I will follow you!! Take care and always beautiful! Mxx
Julia, Columbus is about four hours from us. But I thought I'd let you know that Cheryl and I will be spending more time in Cincinnati since one of my sisters and her family are moving there this month. Hopefully, we all can hook-up there. :-)
Hi Julia, I too applauded the Today Show, I emailed them letting them know that I was one of those 4 million, I had the rarest form universalis. I requested they do continue this segment there was so much more to touch on. While alopecia is not life threatening it is life altering, it also can be life threatening for some 25 % of our sisters & brothers who are so depressed they think of suicide. I also noted about medical procedures we go thorough & the battles undertaken with insurance companies & medicare to cover medical procedures as well as wigs. That wigs or hair systems are expensive & not everyone can afford. I hope they continue. I loved your words of wisdom, for it is up to us as we accept & embrace our baldness to venture out & help one another.
You have a beautiful family. You are quite an inspiration. Take Care.
Pam
Hey I don't know if this is you or not but i think i talked to you at the National Alopecia Areata Foundation Conference in Houston, TX. Anyways I was wondering if you could help me out and tell me what i need to know to start a support group in kansas. Thanks
Hey, Julia. Thanks for the congratulations. I never thought that I would be so overwhelmed by emotions at the birth of my first grandchild. ;-) See ya in Indy, for sure!
Hi Julia, how are you? Here in NYC we've been having such changeable weather it gets sickening, ha ha. One day 45 and the other day 65. I've had alopecia for over 30 yrs. and just 4 months ago decided to go to a support group. After that I continued to go but I started my own. It's a motvational get-together I call it where alopecians of any age, culture whatever come together. I do a 30 min. motivational/inspirational talk on coping and living with alopecia and then the attendees can feel free to ask questions/give answers or just give an kind of input they want and then it's social mingling time. People exchange phone numbers, e mail addresses, wig store locations, whatever they need to feel comfortable and there is refreshments and snacks. It's not quite like a support grp, but not as big as a major event. It's really rewarding, but a lot of work getting and finding people to get together.
I just visited your website for the first time - WAY TO GO! Are you planning on attending NAAF next year? Please join the International Alopecia Day Group (was National Bald Out) - next year's event is August 6. Mary
I found your book today at Border's! I'll be diving into it tomorrow. I can't say that I've ever seen a book on the shelf specifically about Alopecia. How cool!
Hi Julia: I found it at the Borders in the Galleria. On their locator it'll probably say Westheimer Blvd. There were 3 copies there. I may go back and snag the other 2 to send to family.
Hello Julia! I don't know if you remember me, but i went to one of your alopecia sessions in louisville, at some library… i kind of forget the name:(( I just recently joined alopeciaworld! How have you been?
Sarah Posante
Please join the International Alopecia Day Group, if you'd like. I see you belonged to the Group under its former name, National Bald Out. I'd LOVE to have Kentucky represented with a photo - August 6, 2011. It can be a gathering, or one or two people. Check out my video slide show from last year's events.
Nicole
I love your website and I have added your book to my want list. I have to read your book. I have a love for butterflies due to it beauty and have one tattooed on my back. I love how you stated on your website that butterflies represent transformation and how you related it to how a person changes one self. It was a beautiful & truthful statement.
Jan 8, 2009
Nicole
Jan 8, 2009
Rachel H.
Jan 9, 2009
Catharina
to read it.Lovely with the Butterfly. Love Catharina from a cold Sweden!
Jan 10, 2009
Roger
Thank you for ordering Metamorphosis "Inspirational Stories of Women Living with Alopecia"
Please visit www.bbibby.org for updates and upcoming events.
JMC
My book is on its way =)
Take care, Roger.
Jan 16, 2009
Bob Hershberger
Jan 16, 2009
Gonzalo Portas
Do you know....? Does Alopecia Areata become Alopecia Totalis or Universalis? Is it a progression from one form of Alopecia to another or are these categories of hair loss?
Thanks
gonz
Jan 17, 2009
Bob Hershberger
..Keep the faith..Give the love..Share the happiness..Bob : )
Jan 19, 2009
jennifer
Jan 28, 2009
Prayer
Thanks for the link. Your pictures are adorable and you seem to have such an attractive appearance in all your photos. Do you have any special beauty tips that you can pass along, I dont know how to word this without being offensive to anyone because that is definetly not my intention but I feel this is a website that we can connect and be open but your appearance does not look as to one that has alopecia it just looks like a sharp lady that decided to shave her head, your eyebrows and eyelashes appear to pop and do not fade out like most individuals. Do you have any tips?
Feb 4, 2009
Yvonne~Yhoney
I received my book today! Very good read...and the layout turnout great! Thanks for bring me into this project and I hope to see many more from you! The YouTube presentation is a winner also, I love it! I hope to see you at the NAAF conference this year I will be making the trip to Houston, I will be sure to bring the book for autographs!!!
~Yvonne
Feb 7, 2009
traci
Feb 9, 2009
Roger
I got your book today =) I will get back after ive finished it.
Roger.
Feb 19, 2009
Roger
Great book! People in the swedish foundation are very intrested in it =)
Roger.
Feb 20, 2009
Felicia Graham
I would like to hear more about what youare doing. I really enjoyed the video. I can't wait to read your book. By the way your beauty inspires me.
Mar 2, 2009
Anastasya
Your video is great!
You have inspired me! Thank you!
With great pleasure to read your book, but I do not know English)))
Mar 14, 2009
Gena King
Mar 17, 2009
shuaa
Mar 20, 2009
Cheryl, Co-founder
Mar 30, 2009
KD
Apr 2, 2009
julie
Apr 9, 2009
3mee
Apr 10, 2009
Josh and Kiah
Thanks again, hope to see in Houston and the girls say hi!
Apr 14, 2009
julie
Apr 15, 2009
Tray (Jazz's Mom)
I know it's been a while. playing catch up.
I wont ask how you or the little ones have been cause I know you've been beautiful the entire time!
Jazz got injections in her scalp about two months ago and is to go back on Monday to get the more. Havent seen improvement plus she really cried the last time so I'm not sure if she will get them again.
As usual, keep up in your prayers. I think of you often.
When's the last time you spoke with Gayla?
How is the book? Did you finish?
Chat soon.
Jun 12, 2009
rj, Co-founder
Jun 15, 2009
Michelle Chapman
Jun 18, 2009
rj, Co-founder
Jun 24, 2009
Tray (Jazz's Mom)
Jul 8, 2009
Ashley Nicole
p.s your gorgeous!
Jul 27, 2009
Pamela Rosse
You have a beautiful family. You are quite an inspiration. Take Care.
Pam
Jul 28, 2009
Tana
Aug 11, 2009
Tracy and Amanda
How are you?
Tracy
Sep 4, 2009
Pat
Sep 6, 2009
Brittany
Dec 18, 2009
Samantha V.P.
Feb 2, 2010
rj, Co-founder
Apr 28, 2010
Gale Moorman
Apr 28, 2010
kastababy
May 9, 2010
Heather L
Thanks for the friend request! Your pictures are amazing! you are beautiful!!
Enjoy the rest of your weekend!
Heather
Jun 26, 2010
Mary
Sep 19, 2010
Angie P
Oct 24, 2010
Angie P
Oct 25, 2010
SutraHuh
Sarah Posante
Nov 9, 2010
Mary
Please join the International Alopecia Day Group, if you'd like. I see you belonged to the Group under its former name, National Bald Out. I'd LOVE to have Kentucky represented with a photo - August 6, 2011. It can be a gathering, or one or two people. Check out my video slide show from last year's events.
All the best,
Mary
Jan 15, 2011
Retha
Jun 2, 2011
Deeann
Jun 29, 2011
Deeann
Aug 21, 2011
Monica LUPUS MATTERS Ellis
Good Morning Julia,how have u been? Have an AWESOME DAY!!!!
Oct 1, 2012
Julia
Happy Wednesday Alopecia World!
Apr 2, 2014