Hej - thanks for asking - I still try to keep the faith that my 3. child is not loosing all hair..... - how are you?

Hello, Cheryl, I would like to comment, offer new information regarding hair loss and advertise on this site.  However, I want to make sure that I am following all the rules.  I have hair thinning and is now working on my own hair, I own a treatment center that offer results that work and I have offer information and technology that women should know more about.  How do I go about making these women aware of information.  Would you please contact me hairoots@gmail.com thanks

Pray all is well!

Hiya Cheryl - yeah, you're right, it HAS been a while. Funnily enough, I was thinking of rectifying that very thing only the other day, so you might want to reinstate the censorship filters on the site in advance ;)

Anyway, how's you? Hope you and RJ aren't down to your last few million yet....say Hello to him for me, and as "they" say - watch this space. Or one pretty close by, anyway! :)

THANK YOU CHERYL!  I joined because I have a younger brother who has alopecia and I wanted to get more information for him and be able to find people maybe even kids who are affected also....

Thank you!

Hello Cheryl!  Thanks for the warm welcome.  I'm learning a lot from this site, and looking forward getting to know everyone.  

Hi Cheryl,  Thank you for welcoming to your site.  It's lovely to be able to share information and ask for advice from other members, it's nice to feel I am not alone but I also wish there was no-one out there like me diagnosed with FFA because they might have then found a cure!!!! I am unsure what to expect from this diagnosis but with the help from my children when they are back from university I will be able to find my way around your site, add information about myself, on the right page, add photos and then begin to share my information with yourself and others. Have a good day and thank you for taking time to welcome me.

Hi Cheryl, its me again Suzanne I tried to book my first dermatologist appointment today, the first date I could get was 21st July 2014 is this too far away, or would you suggest I try and get a private appointment, I am not sure what to do!!!!

Thank you for the warm welcome!

Hello thank you for you warm welcome.im happy to bee here and share my problem .

Thanks for your welcome and for letting me start my day with a photo of a beautiful bald woman with a radiant smile. I'm just a sorry case shoveling cereal into my mouth as I sit at the computer and running out of time to get dressed, get my two year old dressed, and get the other two off to school. And somewhere in there I have to pull a wig over my bald head so I can volunteer in the kindergarten without attracting attention (although I am increasingly feeling bald feels right, and even suggested my son could bring me in for sharing to tell the kids about alopecia). And, hey, the two year old dressed herself!

Thank you.

Thank you Cheryl!  Happy to have found this group.

Thank you Cheryl for this site, I am newly diagnosed with AA, this month in April 2014.  I cannot say how overwhelming, helpless, hopeless, it was to find out there is no cure for this, just steroids in one form or another, with all the side effects.  So reading these comments, ideas,things others have tried,helping with the beginning confusion, its been a godsend.  Thank you for this site!!!

Thanks Cheryl, I'll check out those tips :)

Thank you for your welcome, Cheryl! I appreciate it. I am happy to find a site where I can interact with people who know what it is like to be bald, and all of the emotions that can go along with it. My goal is to throw away my wig and hats and just be free to be me. I want it so badly, but I'm just not there yet. I have so much respect for those who accept themselves fully and are confident in themselves despite their lack of hair. I hope to join in on some conversations more as I understand how the site works. THanks!

She has not.  However she will be home from college for a visit in about 10 days and plan on sharing the site with her then. 

Hi Cheryl. Thanks for the welcome. Only had a chance to have a quick look at the website so far but I can see that it looks a great support network. Good to know that you are not on your own, and that others are going through the same experinces. For a while I felt as though I had given up given in to this awful condition, but after reading other peoples comments, it has given me new determination to try to do all I can to stop my condition progressing.

Thank you for your welcome Cheryl.

Thank you, sweetie!

Thank you!

Thank you for the add, I am doing great!!!!

Hello Cheryl! Hope all is well with you.

XO. -Essence

Hi Cheryl.

Stopping in to say hello!

Wishing you and RJ a happy holiday season!

Jeff

Hi Cheryl,

Thank you; how kind!  I just read your profile and your positive attitude gave me pause.  Thank you for starting this wonderful group; it is inspiring and empowering.

Christine

Hi Cheryl,  

I think you are an amazing woman, I am so glad to be part of this community!  Hugs

Peace Queen!  Thanks for creating such an amazing place.  You are truly appreciated.

 Peace & Blessings.

Doing better day by day. This website has helped tremendously by being able to stay informed and finding out you are not alone.

Thank you so much for starting it.

I love this community so much! :) 

thank you. i appreciate that!

Thank you Cheryl,

I would like to let the members know of something I have found useful in only the last several months. I have alopecia ophiasis (and have had occasionally nails come off) and was told from the beginning that it was unlikely to show improvement. For some 8 or so years, I went to various dermatologists in NYC hospitals. I had monthly steriod injections. Also for a short time, squaric acid to use at home. Finally after having been with one dematologist (having injections) she suggested Rogaine 5% and Fluocinonide 0.05%. I don't know whether to be pleased or angry that this was not mentioned years ago. Why? I have some hair regrowth in places that were completely bare. Also around the hairline I see some regrowth (mixture of dark and white, neither of which I am, but never mind). I can use the stronger Rogaine having had a hysterectomy some years ago. Being very fair I was not a candidate for laser treatment. Who knows if I had been given this much earlier whether the hair loss would have been far less. She has moved away so I cannot ask her but wanted to give this information to others in case it may be helpful to them. I use one in the morning and the other at night. It does make the hair look a bit dull - but that is a minimal problem. It is also cheaper than  monthly injections. It would be wonderful if this could help others.

Paula

Thanks, Cheryl, for uploading the animation, 'It's only Hair.'  It is great to see what an active and supportive website you have developed.

Best wishes, Emma

I've been seeing a a dermatologist who is a specialist on alopecia at University of Colorado Health. He has had me on Methotrexate for 2.5 years and I have 75% of my  scalp hair, eyebrows and eyelashes back. This drug has made a huge difference for me. Though there are side affects, I have felt that they are worth the risk.