I'm an artist and author living in Portland, Oregon. I've had aa for about 45 years. My award-winning book, "If Your Hair Falls Out, Keep Dancing!" is still available at a number of online sources including Amazon and Barnes and Noble. Written a few years ago, it's not completely up to date on medical findings, but these are readily available on this site.
Here are a couple of reviews: This "how-to" book provides a much needed text on dealing with emotional and cosmetic aspects of hair loss, whether from alopecia areata or chemotherapy. It details where to find and how to use products for compensating with this loss. It is written in the same bold and bright style that characterizes LeslieAnn's illustrations." -Janet Roberts, M.D., Portland Oregon
"This book is helpful, hopeful, funny and fabulous. It's full of practical advice about wigs, intimate encounters, the inappropriate questions from strangers, and other issues you face when every day is a bad hair day. Women with alopecia, LeslieAnn Butler is your new best friend " -Margie Boul , Columnist, The Oregonian ..
"An essential read, whether you've lost hair, or care about someone who has. Leave it to Leslie Ann to bring humor and glamour to a difficult topic. She is a living testament that the lack of flowing locks is no reason not to live your most glamorous and joyful life. Be inspired and uplifted by this remarkable woman's personal journey." -Nita Lina Howard, Author of A Woman's Journey is Her Legacy
I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.
I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you're not alone."
Hi Leslie, thank you for the welcome!!!! I'm ok, trying to wrap my head around everything! I'm gonna order your book in a few! I just realized, I don't have a lot on my profile, newbie I guess, hope to remedy that soon. How are you?
Hi Leslie, I just found out I have lichen planopilaris and still in the grieving stage. I am still trying to reconcile with menopausal changes, glasses, body changes and now this.
Hi Leslie Ann! I wanted to let you know I tried the temp brow tattoos. I like them. I think I got the wrong style for me so I'm going to get some that aren't so big. I hope you have a wonderful Easter!
i am ok thank you. just very disturbed over my recent dx . thinking of purchasing a top hair piece that will cost about $650. are you aware of any reputable places on line that sells hair pieces {human hair} on line cheaper
Hi LeslieAnn. I'm doing a little better today thank you for asking. I have seen your book but have not yet read it. I will definitely have to purchase. Thank you for reaching out.
I'm actually Lesley Ann too....its a small world....I read your profile and I've sent for your book. I run my own pet care business too, so have quite a few 'honoury dogs' that I care for on a daily basis. Your little guys sound lovely...
Portland........I was there about 10yrs ago, just a flying visit with friends from Seattle, we came through on our roadtrip down to Oregon & Napa Valley........the book is on its way. It will be good to read.....feeling pretty down about it all at the moment. Don't think I can go bald but plan to look gorgeous in a wig!
Hi! Thank you for welcoming me! I am great today since it finally stopped raining here :) oh I am so interested in reading your book! How are you today?
Hi I am not good. I hate people to stare at me as if I am an alien. I am very depressed and there is nothing to look forward in life now. Too listless to do anything. How to face everyone everyday? My friends are getting lesser and no one is there to support me and talk to me except my daughter. Everyone shun away from me. I am so lonely and sad. What should I do in order to move on??
Hey Leslie :)! today i'm doing well thanks for asking. I have had alopecia since i was only 6 months old and this is the first time i am getting in touch with people who have the same condition as me. Your book really sounds interesting! thanks for welcoming me :)
Hi! I am doing pretty good however ChristiYahna is still having a bit of a hard time. I found her in front of the mirror the other day trying desperately to cover her bald spots with the hair she still has. She just kept saying "Stupid hair, stupid spots" it breaks my heart and I'm not really sure at this point how to help her. Any suggestions? I've tried finding her a local support group here in the DFW Texas area but so far haven't been successful..
Hi Leslie! Im good today, Thank you! Ive had aa for 31 years now. I know all the downs with depression, etc.. having to deal with this since the birth of my only child. I was 21 when I was the chosen one in my family to get AA. It has been an emotional rollercoaster to say the least! I have been through years and years of steriod injections and all types of creams... I finally gave up and am now a wig wearer. I really dont look at it anymore as a WIG... it is my beauty accessory! It never does get easier to deal with this autoimmune disease, but life is just too short to let HAIR dictate your happiness. I look forward to reading everyones views about alopecia..
Hi Lesley thank you so much for your hello x Really not coping well at the mo as my has hair has just fallen out in the last 6/8 wks just hate looking at myself in the mirror. Ive been put on steroids to try and surpress the immune system so it maybe them making me feel so awful. There is not much support in the UK for Alopecia so at the moment feel very alone. I will look to buy your book today and keep reading all the comments put onto this site. Thank you x
Thank you for welcoming me. I purchased your book and am awaiting its arrival. I notice my hair coming out in massive clumps in the shower and while brushing it. I had my boyfriend giving me a rough percentage of hair vs. not hair on my scalp. According to him, its 70% hair to 30% not hair. In this state of frustration, I am tempted to shave my head and revert to my headwrap ways. I am also currently using a professional shampoo/conditioner line named 'Bosely Pro' that claims to stimulate hair growth. I have yet to see a major change, but know that alopecia always ebbs and flows in terms of loss and regrowth. We shall wait and see what is in store!
Yes Leslie, I will certainly tell you how I like your book. I am a middle school teacher and am looking forward to the chance to finally sit down with a book to read at my leisure again. Thank you again for the support.
Nice to meet another Oregonian. I am new to all of this, and feel numb, or overwhelmed. I don't know what to do.
I was diagnosed with Alopecia Areata this month. With my birthday tomorrow, and the future unknown; I hurt, but I am not going to be a victim of this disease.
Your book sounds inspiring. I think I'll buy a copy for my birthday.~Take care
Thank you for asking. Was feeling a little down today but thanking God for life. Nice profile. I will be buying your book. We'll keep in touch. God bless.
We are doing well. My son is progressing, he recently commented that "there are things worse than alopecia." He shaved his head a few days ago. That was a hurdle, but a necessary one.
I read your background page and will check out your book. Thank you for welcoming me.
Hi Leslie! Thanks so much for checking in. Doing ok. Also so happy to find this website. Have been dealing with diffuse hair loss (scalp, brows, lashes, nasal) for 10 months so far and it's nice to connect with others and see that I'm not alone. Would love to check out your book. Working on acceptance of this and hopefully your book can help me with that.
Hello, again! I was just looking at your Bio, and you are beautiful! Your book has shipped, so I should be reading it very soon. Can you tell me the brand and "name" of the wig you are wearing in your Bio? ~ Beth
Hi! Thanks :) I am doing pretty well. I am learning a lot more about being confident and am definitely feeling encouraged by reading posts and people's profiles on here. I'm glad I found you and will look into your book for more of your story.
Hello. Thank you! I'm very glad I found this sire. Wish I knew it existed years ago. I'm about to start wearing a topper. Should have it in the next couple of weeks. I'm a little nervous about it but also excited as I think it will make me feel more comfortable going out. How has your experience with wearing wigs been? You looks so beautiful in your pictures.
Thanks for your response to my comment this morning. I feel very strongly indeed that the best support for a woman going through the frequently nightmarish situation that is FFA is from others who have experienced it.
My background is in children's services and I have used coaching techniques and so on. Would happily get involved in some sort of support service - even if it is only online.
Thanks for reaching out! I feel like I have everything under control except the damned eyelashes! Do you have any recommendations? I've had eyebrows and eyeliner tattood on, but I'd sure love to have lashes. False eyelash strips are so messy and such a pain in the morning!
Other than that, I've accepted my AU pretty well. It does have its advantages :)
Hi LeslieAnn, thanks for asking how I'm doing! My response may sound weird, but I am trying to breathe deep and embrace everything in my life right now. Losing my hair is a constant I would rather not have in my life, but I am thankful it's my hair and not something more serious. I imagine I will be picking out a wig within the year. Your book looks interesting. Thanks again for asking how I'm doing. I hope you are doing well! Sarah
Hello, Thank you for asking, I am do great,I am really having a hard time, with my bald spots,I have been on a hair journey for 5 months,I have 3 bald spots.All I have is fuzz.very little,I have tried about everything
In March my hair start shedding in spots, so the hair,that had about 4 in length. I had to cut,it off,now i have about 2 inches all over my head,I am so sad about my hair,in the pass,I have been wearing weaves, perms color,I have been clean of all of this for 3 years now.I am African American, 63 years old.Is there any hope for me.Thank you Darlene Groves
Hello, Leslie! Thank you for your message. I read your profile. You have had AU a long time! I am 2 years completely haur free. Some days are good and some are really bad. Ehat has helped you cope with it all?
Hello,I went to a dermatologist a month ago,she told me to that it was traction alopecia,Lately the top of Mt head,has been itchy and really sore,I wear wigs but they really itch,
Thank you for your comment, I really appreciate it. I only developed AU 2 years ago having lost all my hair in a short space of time (10 days). I haven't had any treatment as yet but am starting cyclosporine tomorrow! :) xx
Thank you so much for responding to my post. I have not been on AlopeciaWorld for a couple years now. I am just "coming out" and sharing my alopecia with the world after 50some years of being bald! Sheesh! What took me so long? =)
I am truly inspired by knowing you have written a book for those like us! I saw another woman on here who has written a children's book. I am putting up a blog website very soon called creatingmyhappy.com. It should be up and running within a week or so. I plan to stay more closely connected with alopecia world in the future.
Sweetee104
Thank you for reaching out. I am doing well. I need to check out your book.
Mar 24, 2015
SuzyQ
Mar 24, 2015
Terri
Hi Leslie, I just found out I have lichen planopilaris and still in the grieving stage. I am still trying to reconcile with menopausal changes, glasses, body changes and now this.
It looks as if I need to find your book.
Mar 24, 2015
Barbara
Apr 4, 2015
barbara corsi
i am ok thank you. just very disturbed over my recent dx . thinking of purchasing a top hair piece that will cost about $650. are you aware of any reputable places on line that sells hair pieces {human hair} on line cheaper
? thanks for any info you can provide
Apr 20, 2015
Cissie55
Apr 20, 2015
Cissie55
Apr 20, 2015
Liisa
Hi LeslieAnn. I'm doing a little better today thank you for asking. I have seen your book but have not yet read it. I will definitely have to purchase. Thank you for reaching out.
Apr 20, 2015
Kataryna2015
Hi! I'm fine today! Thanks for asking=) I was reading your profile, so I think I will read your book soon=)
Apr 21, 2015
Dreamer7369
I'm actually Lesley Ann too....its a small world....I read your profile and I've sent for your book. I run my own pet care business too, so have quite a few 'honoury dogs' that I care for on a daily basis. Your little guys sound lovely...
Apr 21, 2015
Dreamer7369
Portland........I was there about 10yrs ago, just a flying visit with friends from Seattle, we came through on our roadtrip down to Oregon & Napa Valley........the book is on its way. It will be good to read.....feeling pretty down about it all at the moment. Don't think I can go bald but plan to look gorgeous in a wig!
Apr 21, 2015
jbell1818
Apr 22, 2015
Heidi
I ordered your book from Amazon as soon as I saw your post on here.
It really helped. I have read several sections many times. The artwork
Is amazing too. Thank you for helping so many with your words and expressive art!
Apr 26, 2015
Gingerella
Hi Leslie, thank you for welcoming me. I read your profile and I am going to check out your book! You all seem very friendly :)
Apr 28, 2015
BenCO
May 14, 2015
Micki
May 14, 2015
Dor
May 15, 2015
Jckah
May 15, 2015
Mel
May 15, 2015
InterAsh
May 19, 2015
Yanika
Hey Leslie :)! today i'm doing well thanks for asking. I have had alopecia since i was only 6 months old and this is the first time i am getting in touch with people who have the same condition as me. Your book really sounds interesting! thanks for welcoming me :)
May 20, 2015
ChristiYahna'sMama
Hi! I am doing pretty good however ChristiYahna is still having a bit of a hard time. I found her in front of the mirror the other day trying desperately to cover her bald spots with the hair she still has. She just kept saying "Stupid hair, stupid spots" it breaks my heart and I'm not really sure at this point how to help her. Any suggestions? I've tried finding her a local support group here in the DFW Texas area but so far haven't been successful..
May 20, 2015
Lynn
Hi Leslie! Im good today, Thank you! Ive had aa for 31 years now. I know all the downs with depression, etc.. having to deal with this since the birth of my only child. I was 21 when I was the chosen one in my family to get AA. It has been an emotional rollercoaster to say the least! I have been through years and years of steriod injections and all types of creams... I finally gave up and am now a wig wearer. I really dont look at it anymore as a WIG... it is my beauty accessory! It never does get easier to deal with this autoimmune disease, but life is just too short to let HAIR dictate your happiness. I look forward to reading everyones views about alopecia..
May 20, 2015
Debs
Hi Lesley thank you so much for your hello x Really not coping well at the mo as my has hair has just fallen out in the last 6/8 wks just hate looking at myself in the mirror. Ive been put on steroids to try and surpress the immune system so it maybe them making me feel so awful. There is not much support in the UK for Alopecia so at the moment feel very alone. I will look to buy your book today and keep reading all the comments put onto this site. Thank you x
May 21, 2015
katelenp
Hi Leslie,
Thank you for welcoming me. I purchased your book and am awaiting its arrival. I notice my hair coming out in massive clumps in the shower and while brushing it. I had my boyfriend giving me a rough percentage of hair vs. not hair on my scalp. According to him, its 70% hair to 30% not hair. In this state of frustration, I am tempted to shave my head and revert to my headwrap ways. I am also currently using a professional shampoo/conditioner line named 'Bosely Pro' that claims to stimulate hair growth. I have yet to see a major change, but know that alopecia always ebbs and flows in terms of loss and regrowth. We shall wait and see what is in store!
May 21, 2015
katelenp
Yes Leslie, I will certainly tell you how I like your book. I am a middle school teacher and am looking forward to the chance to finally sit down with a book to read at my leisure again. Thank you again for the support.
May 22, 2015
Kitra
Hi Leslie,
Nice to meet another Oregonian. I am new to all of this, and feel numb, or overwhelmed. I don't know what to do.
I was diagnosed with Alopecia Areata this month. With my birthday tomorrow, and the future unknown; I hurt, but I am not going to be a victim of this disease.
Your book sounds inspiring. I think I'll buy a copy for my birthday.~Take care
May 29, 2015
Precious 66
Good morning,
Thank you for asking. Was feeling a little down today but thanking God for life. Nice profile. I will be buying your book. We'll keep in touch. God bless.
Jun 7, 2015
mscosu
I read your background page and will check out your book. Thank you for welcoming me.
Jun 24, 2015
Jlhollow
Jun 27, 2015
Jlhollow
Jun 27, 2015
Barbara B
I found your book!! Can't wait to order it!
Barb
Jun 29, 2015
Still Me
Good Morning, Leslie-
I bought your book last night, not realizing you were the author! Looking forward to reading your story.
: )
Beth
Dec 14, 2015
magdaj.
just learned about your book. I'm off to get it...
Dec 14, 2015
Still Me
Hello, again! I was just looking at your Bio, and you are beautiful! Your book has shipped, so I should be reading it very soon. Can you tell me the brand and "name" of the wig you are wearing in your Bio? ~ Beth
Dec 15, 2015
pterese
Dec 20, 2015
amykate
Hi! Thanks :) I am doing pretty well. I am learning a lot more about being confident and am definitely feeling encouraged by reading posts and people's profiles on here. I'm glad I found you and will look into your book for more of your story.
Jan 22, 2016
Kat127
Mar 26, 2016
DeniseC
Hi Leslie Ann
Thanks for your response to my comment this morning. I feel very strongly indeed that the best support for a woman going through the frequently nightmarish situation that is FFA is from others who have experienced it.
My background is in children's services and I have used coaching techniques and so on. Would happily get involved in some sort of support service - even if it is only online.
Best wishes
Denise
Mar 31, 2016
nanboman
Hi Leslie Ann,
Thanks for reaching out! I feel like I have everything under control except the damned eyelashes! Do you have any recommendations? I've had eyebrows and eyeliner tattood on, but I'd sure love to have lashes. False eyelash strips are so messy and such a pain in the morning!
Other than that, I've accepted my AU pretty well. It does have its advantages :)
Nancy
May 24, 2016
Sarah
May 24, 2016
stardoll63
In March my hair start shedding in spots, so the hair,that had about 4 in length. I had to cut,it off,now i have about 2 inches all over my head,I am so sad about my hair,in the pass,I have been wearing weaves, perms color,I have been clean of all of this for 3 years now.I am African American, 63 years old.Is there any hope for me.Thank you Darlene Groves
May 24, 2016
Shasta
May 24, 2016
stardoll63
May 24, 2016
Shanna McCormick
Hello love!
Thank you for your comment, I really appreciate it. I only developed AU 2 years ago having lost all my hair in a short space of time (10 days). I haven't had any treatment as yet but am starting cyclosporine tomorrow! :) xx
May 25, 2016
luv
thanks for your msg. should find your book it might help me gain more confidence :)
May 25, 2016
Midnite
Hi, I'm feeling kinda low on the self-esteem chart.
Jan 26, 2017
JellyBeanToes
I joined here years ago & now I'm back
hence the late reply (over 5 years late lol)
I'm currently having a hard time shopping for a wig
Just hope I find one that looks a beautiful on me as yours does on you :)
Jun 27, 2017
Lisa
Hey LeslieAnn,
Thank you so much for responding to my post. I have not been on AlopeciaWorld for a couple years now. I am just "coming out" and sharing my alopecia with the world after 50some years of being bald! Sheesh! What took me so long? =)
I am truly inspired by knowing you have written a book for those like us! I saw another woman on here who has written a children's book. I am putting up a blog website very soon called creatingmyhappy.com. It should be up and running within a week or so. I plan to stay more closely connected with alopecia world in the future.
Peace and Light to you, Lisa :)
Dec 26, 2017
Gretchen
Thank you Leslie! You’re beautiful too!
May 22, 2018