Alo-mom
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  • Palm Desert, CA
  • United States
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Alo-mom's Discussions

Eli Lilly's approved drug for Alopecia Olumiant

Started this discussion. Last reply by Valerie Larsen Jun 16. 3 Replies

Today I received a email from the National Alopecia Areata Foundation. This above drug has received FDA approval for Alopecia Areata. I know that not all people will be interested in this medication,…Continue

Wig Repair

Started Sep 16, 2020 0 Replies

So I am getting the feeling that wig shops are closing down and most will go to e commerce. For many years we have had our daughters wigs repaired at a wig salon. I am just wondering how many human…Continue

Eyebrows

Started this discussion. Last reply by leah May 31, 2020. 3 Replies

So I think I have found a great item and I would like to share with the group. The brand is called my brows.It is a stencil that I am trying out for the group. I have placed it on the back of my…Continue

Reliable Wig Repair

Started this discussion. Last reply by Bon Jul 17, 2020. 3 Replies

Good morning to you all. I need feedback on how people struggle to get their wigs repaired. For a long time I have believed that we are faced without many sources to make this happen. To me being…Continue

Tags: repairs, wig, hair, Human

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Latest Activity

Alo-mom replied to Glenda's discussion Wig
"Can you give me a better idea of what "not expensive" is? I would be glad to make some suggestions."
Oct 13
Nana and Alo-mom are now friends
Jul 21
Valerie Larsen replied to Alo-mom's discussion Eli Lilly's approved drug for Alopecia Olumiant
"They keep touting the fact that this drug could help regrow hair for people suffering from Alopecia Areata but so far I've heard nothing about Alopecia temporal or alopecia universalis.  Does the drug work for us as well?"
Jun 16
Fuzzless replied to Alo-mom's discussion Eli Lilly's approved drug for Alopecia Olumiant
Jun 15
sadele replied to Alo-mom's discussion Eli Lilly's approved drug for Alopecia Olumiant
"I saw this today as well... this is very good news and gives more hope then we have ever had for a treatment."
Jun 14
Alo-mom posted a discussion

Eli Lilly's approved drug for Alopecia Olumiant

Today I received a email from the National Alopecia Areata Foundation. This above drug has received FDA approval for Alopecia Areata. I know that not all people will be interested in this medication, but I thought I would share this information. If you type in the internet Olumiant for Alopecia Areata information will come up on the…See More
Jun 13
Alo-mom replied to ltrimnal's discussion C U R E
"YEAAAAAA"
Jun 13
Alo-mom replied to Sinarco's discussion Baricitinib Recommended for Approval of Severe Alopecia Areata in Europe
"I received an email today from the National Alopecia Areata foundation put out a notice  that the FDA approved Olumiant for Alopecia Areata. Hopefully insurance companies will now pay for it for the individual with AA."
Jun 13
Alo-mom replied to Mol G's discussion New diagnosis AA for 6 year old girl
"Alopecia is a wait and see kind of situation. To answer your questions there is no predictability .It can be patchy and then fill in or it can continue to shed. I knew it was going to all fall out when I saw hair on the rest of my daughters body…"
May 16
Alo-mom replied to nohairontop's discussion Education
"I could not agree with you more. He would have been see as a shining star rather than a man who is unable to articulate his feelings using, words rather than his hands. The entire Alopecia community and its plight would have been brought to light.…"
Apr 28
Alo-mom replied to Robdob's discussion Human hair wigs
"First you need a prescription from your Dermo. for a Cranial Prosthetic with the correct medical code for Alopecia Universalis. Then you need to craft a letter for your doctor to sign indicating the emotional distress you have and how it relates to…"
Jan 28
Alo-mom replied to sci fi babe's discussion Dupxient Miracle Drug!
"Thank you for sharing. Our dermatologist brought this up at a recent visit. Please keep us posted as you continue on this medication.Best of luck."
Jan 25
Alo-mom replied to Jennifer's discussion options for shaved head
"Just a thought, as a mom I think you should follow with what your daughter requests. I know how it is to watch  a daughter lose their hair slowly, it is gut wrenching. If you live in a cold climate you might want to remind her she will be very…"
Jan 25
Alo-mom replied to cd_385's discussion Xeljanx 11mgXR
"Hello and yes even with Xeljanz hair can come and go. It can really work for a while and then it can fall out with little notice. The person I know that was taking it was up to 15 mg per day without any bad reactions, but the hair was not coming…"
Jan 25
Alo-mom replied to Robdob's discussion Human hair wigs
"Good afternoon. I sent you a friend request. I have some ideas on how you can work with insurance companies to cover cranial prosthetics. I look forward to helping you work with insurance companies, "
Jan 25
Alo-mom replied to lovingmom's discussion 10 year old with AA
"There are a number of things that can trigger alopecia. There also may be a genetic link to other auto immune diseases in your family. Alopecia is a wait and see condition. It can stop and start at anytime. It might be a good idea to contact the…"
Jan 25

Profile Information

Relationship Status:
Married
About Me:
When my 22 year old daughter developed AU I really struggled to find her the best hair pieces possible. I found that salons for the type of wigs she wanted were in the thousands of dollars. I decided to do my research for over a year for human hair factories in China. I decided to go to China and found the best factory and met with the owner. My goal is to bring this knowledge to those who want to wear a wig. My passion is to help others to live a full and confident life. I would be glad to help anyone find the best human hair wig for medical hair loss at a price point that hopefully can work. These are all custom made and all hand tied units. Thank you for taking the time to read about my journey. All my best Lisa
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (7 comments)

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At 6:47am on February 22, 2020, Bon said…

Alo-mom, please excuse computer changes your alias to ALL-MOM but not until I post. :(. 

At 6:44am on February 22, 2020, Bon said…

Hi again, I AGREE not enought hair dressers know how to customize faux hair! Luckily Collier Design in Seattle does just that and does it well.  I am learning how to use the soft velcro wig band (?) to keep my wigs in place.  So!  I have Jon Renau wigs and Renee of Pairs. My favorite one is the best Renau that has silicon in a U shape from hairline almost to crown and open wefting throughout the rest of it. It is airy and light.  Looks VERY natural though my hair is silver...no one has guessed it is faux. ALL 8 of my other wigs are uncomfortable purchased at various wig salons sold by owners who know little if anything about styling. I have gone on YouTube to learn how to customize. Again I worked in a wig salon for about two years 100 years ago (just kidding!) but I can't remember what we did other than have fun! (:  Collier Design in Seattle does a fantastic job. I have another appointment on March 5th to have my biohair cut and/or buzz cut. I did it on the left side below temporal area to side burns to see what it looks like..hmmm.....may try a shorter version of my now unwearable hair instead....only issue I have is I am SICK of finding long strands everywhere..but I digress. All-mom, besides the monofilament, open wefted synthetic wigs.....WHAT ELSE SHOULD I BE LOOKING FOR?  I will purchase another synthetic similar to my most comfortable one described above. However, I want them to retrofit it with more silicon around hairline if possible. Also, WHAT IS THE BEST WIG GRIP BAND to buy. I have a nice one, thin/soft that I bought from Collier but unless I wear it at hairline in front (scarring area with no hair at temples) and just above my ears which makes my ear stick out a touch it slips up and into the wig.  PLEASE ADVISE? Thank you again for being there with you wisdom and expertise! If I weren't 71 I'd go back into business simply customizing wigs!  Be well, Bon

At 9:44am on February 20, 2020, Bon said…

Good Morning All-mom thank goodness, so appreciate you friending me!  Any advise you have re: faux hair is appreciated and head wraps, etc. I still have hair but profuse loss scarring around hair line.  Have rare form; Lichen Planoparlisis (thank you very much!)  (:  So I am a retired hairdresser with a cabinet full of high end wigs of various colors and styles always have loved them; problem is that my scalp is so tender that even chemo caps irritate especially when I dance and perspire a bit!  I went to Collier Design they specialize in hair replacement (non invasive) pieces and alternatives.  They are looking into retrofitting my current wigs with silicon around hair line.  My biopsy derm doc prescribed a topical cortisone liquid which I use but told her since I am super healthy in every other way, I'd choose to lose hair rather than take what she suggested. I immediately went to my nautropath who suggested LDN and LDA.  Very interesting research.....I have been on LDN for about 2 1/2 weeks am starting LDA on Monday. I also got my hair cut.  It was beautiful thick natural curly lovely silver color now broken minaturized barely any depth to color, well you know the story. So!  Am moving into acceptance through prayer, meditation, not hiding it and sharing it with friends. I divorced after 36 years in 2014, Luckily I meant a wonderful man in 2015 prior to the beginning of hair loss and he loves me no matter what.  I think it's very important that we don't suffer in silence!  I am not my hair though it is mine and I am not my emotions though they are mine.  Right?  Be well and thank you AGAIN for responding. 

At 3:43pm on August 10, 2017, Karla said…
Hi can you please recommend me a few contacts / websites in china
I'm desperate to find a blonde wig
Thanks
At 10:57am on March 7, 2017, asp2014 said…

Hey, Thanks for your reply. Currently I'm not living in the states but will very soon. I'm also a citizen in case that has anything to do with receiving help from Xelsource. My concern when I apply for the hardship program is getting stuck in the bureaucratic muck. Since a handful of folks have already been in the trenches I was hoping I could get the ins and outs to have a seamless and hassle-free experience. It's great to hear that the folks over at Xelsource are nice and helpful.  

At 3:27pm on June 4, 2016, Lexi said…

Hi....when you buy from China, do they also have online website to order from? 

At 10:06pm on March 27, 2016, LeslieAnn Butler said…

Hello and welcome!

How are you and your daughter today?

 
 
 

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