• Female
  • Groningen
  • Netherlands
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Gon's Friends

  • babashanti
  • Niece
  • Heisten
  • strawberry
  • His Majesty
  • Dolly
  • pterese
  • QueenBee42
  • Rach1992
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  • dreamscometrue
  • Erika Vincent

Gon's Discussions

AU and Hyperpigmentation after months of using DCP, does it go away?

Started this discussion. Last reply by Beth Sep 19, 2017. 2 Replies

Hi AU's,I have AU since 2015 and I have done DCP treatments every week (squaric acid) for 5 months.Sadly with minimal effect and the right side of scalp is now darker.I was wondering, are there more…Continue


Question for the AU's who tried DCP: Did it work and with 100% growth?

Started this discussion. Last reply by mattia r Sep 30, 2016. 4 Replies

Dear AU's,I am planning to start DCP in December this year. I was thinking to also order medicine and creams to use if I get nasty side effects like hives and all.I was wondering, the people who had…Continue

For the people with AU/ AT:

Started this discussion. Last reply by Tallgirl Sep 5, 2016. 6 Replies

A few questions to the AT/ AU's: Did you experience regrowth at some point in life? if so: after how many months, years did your hair return? What where the symptoms when it happened (itchy scalp or…Continue

AU: Does your skin become more sensitive or dry when you have AU?

Started this discussion. Last reply by Gon Jul 21, 2016. 20 Replies

I discovered that my skin became more sensitive when I got AU. Also, my skin became more dry and more sensitive for hot showers and sauna and hot weather. I use body oils and I do not want to use…Continue

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Gon's Page

Latest Activity

babashanti left a comment for Gon
"Thanks for the friendship and the information ."
Feb 2
babashanti and Gon are now friends
Feb 2
Gon replied to babashanti's discussion Olumiant and what to ask my doctor?
"Super. I do a trial in Germany and I am from Holland. I email all the questions I have. For me it’s hard because I do not speak German that well either. I use Google translate to mail them. "
Feb 1
Gon replied to babashanti's discussion Olumiant and what to ask my doctor?
"There is a Facebook group called Jak inhibitors fro alopecia. Very rich source to get all the info about the effects of different JAK inhibitors/ the ones who are on trials/ and Alopecians who are on JAKi for a long time. You can find everything you…"
Feb 1

Profile Information

About Me:
In September 2015 I started losing my hair suddenly, and it developed to AU. I never had experienced hairloss before.
The internist and derma did not find a trigger. Still trying to cope and find a way to live with this strange disease..
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (2 comments)

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At 5:50am on February 2, 2023, babashanti said…

Thanks for the friendship and the information .

At 10:04pm on March 19, 2017, dreamscometrue said…

Thank you for your friendship Gon.  I still have AU and no, my hair didnt all come back.  In fact, I wound up developing another auto-immune disorder Rheumatitis/Rheumatoid Arthritis. I think its all connected.  I'm trying the natural route before I do meds.  Right now I just started on Calaguala 500mg 2x per day.  I'l  see how it goes in a few months.  Thanks again for the friendship!



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