Willhod3
  • Male
  • Manchester
  • United Kingdom
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Latest Activity

Willhod3 left a comment for Nacey
"Hi Nacey I cannot comment on the validity or otherwise of biopsies, but from what you describe the symptoms are very similar to my own, and I have Ben diagnosed with FFA. I’m male so regarding FFA I’m a bit of a rarity. I remember the…"
Mar 18, 2020
Willhod3 commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Ladies For more info on TD go to YouTube, literally loads of videos on the subject, much of which is all rather alarming, and not a little depressing. Still knowledge is power and anything that can go some way to relieving this hideous disease…"
Jul 3, 2019
Willhod3 commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Ive been doing a lot of reading regarding the use of titanium dioxide in sunscreens. To my horror I’ve just learned it is used extensively in supplements and I’ve been taking those since I was a very young man. Read what the American…"
Jul 1, 2019
Willhod3 commented on Cheryl, Co-founder's video
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What It's Like Living With No Eyebrows

"Hi Matt Thanks for the video, I have FFA, lost beard, eyebrows and much of my hair, I did try the eyebrow pigmentation, but they didn’t look good, now they’ve faded I may try again, with another practitioner. Also considering a hair…"
Jun 30, 2019

Profile Information

Relationship Status:
Single
About Me:
I was diagnosed with frontal fibrosing scarring alopecia 7 years ago. I’ve lost beard, sideburns, eyebrows and temple hair and my hairline continues to recede. The condition is very rare in men which fills me with very little hope. Presently not in receipt of any treatment just hope the condition burns itself out, though showing no signs of that at present. Now considering having it all shaved off, which I really dread. I might feel better if I knew what caused it, but no one seems to have a clue which doesn’t help at all.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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