tandelor
  • Male
  • Saint Petersburg, FL
  • United States
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Latest Activity

dreamscometrue replied to tandelor's discussion Too Old :-) in the group Oluminant Aloepecia Community Watch – The Good, The Bad and The Ugly!
"I've had this happen to me as well many times.  I've had AA to AU over 40+ years, and even before then, I could never get into a study.  Now, I know its too late as I've been told over 20 years AU to just forget looking for…"
Mar 5, 2023
Hawaiiangal replied to tandelor's discussion Too Old :-) in the group Oluminant Aloepecia Community Watch – The Good, The Bad and The Ugly!
"I did not have insurance that would cover but applied through manufacturer and qualified for the $25 month. I also have same condition for over w0 years, but am showing some promising signs."
Feb 27, 2023
JeffreySF liked tandelor's discussion Too Old :-)
Dec 27, 2022
Rie liked tandelor's discussion Too Old :-)
Dec 27, 2022
tandelor added a discussion to the group Oluminant Aloepecia Community Watch – The Good, The Bad and The Ugly!
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Too Old :-)

OK, I'll start since I'm probably someone with Alopecia for the longest time (over 50 years:-) I tried to get in the trials early on but the screen said I was too old and had alopecia universals for too many years. I figured when they marketed it I would not be in the target group. It had been working for a few in our support group with no problems but they were very recent alopecians. Then when Olunimant finally became available I asked my primary and she said that she felt for me the risks of…See More
Dec 27, 2022

Profile Information

Relationship Status:
Single
About Me:
45 years universals, active in NAAF local
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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