Alopecia World
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Oluminant Aloepecia Community Watch – The Good, The Bad and The Ugly!
Information
We have been hearing A LOT about the new FDA Approved Lilly and Incyte's OLUMIANT® (baricitinib) drug.
We would like to start a discussion here on Alopecia World with people who have tried it, are trying it, or considering trying it. This is a place you can discuss both success as well as side-effects and objections to trying the drug. Hoping this form will help people with alopecia make more informed decisions.
A place that hopefully we can get real users’ comments and reactions. Maybe uncover some things that your doctor never told you about the drug, good or bad. Upload your photos, videos, anything you think the community should know about Oluminant.
Or perhaps you just want to keep your eye on Oluminant, let this be the place.
JOIN THE GROUP TODAY TO KEEP UP ON THE DISCUSSION
According to Lilly, ” Eli Lilly and Company (NYSE: LLY) and Incyte (NASDAQ:INCY) announced
that the U.S. Food and Drug Administration (FDA) has approved OLUMIANT® (baricitinib), a once-daily pill, as a first-in-disease systemic treatment for adults with severe alopecia areata (AA), available as 4-mg, 2-mg and 1-mg tablets.1 The recommended dose is OLUMIANT 2-mg/day, with an increase to 4-mg/day if treatment response is inadequate. For patients with nearly complete or complete scalp hair loss, with or without substantial eyelash or eyebrow hair loss, consider treating with 4-mg/day. Once an adequate response is achieved on 4-mg/day, the dosage is to be decreased to 2-mg/day.1 OLUMIANT is not recommended for use in combination with other JAK inhibitors, biologic immunomodulators, cyclosporine or other potent immunosuppressants.”
Members: 62
Latest Activity: Jan 2
Discussion Forum
Too Old :-)
Started by tandelor. Last reply by dreamscometrue Mar 5, 2023. 2 Replies 2 Likes
OK, I'll start since I'm probably someone with Alopecia for the longest time (over 50 years:-) I tried to get in the trials early on but the screen said I was too old and had alopecia universals for…Continue
Comment Wall
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Comment by Cheryl, Co-founder on January 2, 2024 at 7:34pm
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October 2023, Dr. Brett King & NAAF gave a treatment update that you may want to watch.
With a second FDA-approved treatment announced in 2023, there is new information to share on treatments for alopecia areata, how they work, and what we’ve learned about the disease from clinical trials. Join Dr. Brett King
https://alopeciaworld.com/video/alopecia-areata-treatment-update-an...
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Comment by Marella313 on September 22, 2023 at 1:59am
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I started on this medication 11/2022, and it has been going well. I have a full head of hair now, eyebrows and eyelashes. My dermatologist dropped me from 4mg to 2mg 3months ago and I have (2) 1 cm patches of hair loss. She recommended steroid shots for the small patches and that was a little painful. I'm hoping just to get back on the 4mg to hopefully avoid this in the future. This drug has been a lifesaver for me. Overall, I'm extremely impressed with it.
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Has anyone with Kaiser-Permanente been able to receive treatment for AA with Olumiant? I was told since it's not in their drug formulary, it won't be covered by my Kaiser insurance.
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Comment by Margaret Brennan on September 5, 2023 at 3:35pm
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by the way, Cheryl, what is the difference between visual mode and HTML?
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just a comment for those of you with insurance problems. I took my appeals all the way to the external appeals.. I knew I would get approved once it went to an outside dermatologist who would like what I had to say. don't give me. they have only approved me to the end of the year but I will continue to fight them. otherwise will have my doctor apply to Lilly for me.
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I have had it for 78 years so figure I will try it. if it doesn't work so what but at least I will have tried.
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Comment by Apple on July 30, 2023 at 7:17pm
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You are never too old I’m 53 years old with Alopecia starting when I was 29.
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I took it for three months poor results, asked to go back on xeljanz. So sad what’s covered doesn’t work… not for me anyway.
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I took it for three months poor results, asked to go back on xeljanz. So sad what’s covered doesn’t work… not for me anyway.
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Comment by Erika on April 7, 2023 at 4:40pm
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Update for me - I have been taking Olumiant (4 mg) with my insurance finally accepting and the copay assistance program covering the rest so I only paid $5 per month. I have not gotten to the point where I have seen much results but ultimately have decided to go off the medication. I didn't think I would have any trouble taking the medication but realizing how sick I have been this winter (again - who knows if it's the olumiant or life), but regardless, knowing I can never get off of this medication if I want to have hair growth seems like an impossible way to live the second half of my life. I am guessing that many things will come up in my life health wise in the next few decades and being on a drug that suppresses my immune system doesn't feel like a good solution for me. Along with that decision I have had 2 friends recently fall very ill - both healthy, middle aged very active people. We live in the mountains of Colorado and love to hike, bike, cross country ski etc. Seeing the strong women in my life having to be bed ridden with chronic illnesses has helped me to see the importance of health. It is irreplaceable! I would give almost anything to have a full head of hair back. But ultimately I have come to the conclusion that my health is not one of the things on the list I am willing to give up. Would I have to or not? There is no way for me to know so for now, I am choosing to go off the medication.
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