Maybe it's just me, but as of late, there is a lot of negativity amongst board members. A lot of it seems geared towards treatments/ and or lack there of. The longer I am on the board, I can pretty much tell who is going to respond to what, and in what type of manner. For example there's a few members, who whenever a new treatment someone has tried comes out, are quick to ask a million questions about the treatment, and then chop them down and refute their reasoning for starting the treatment.… Continue

I consider myself a spiritual person, and often find myself in prayer for my daughter's Alopecia. But I often wonder, am I praying for the right thing? What are others praying for? How should I pray? Please check out/join my new group, "The Prayer Group" if you are an Alopecian in need of or wanting to pray.

First let me state that I am grateful for this site, as I feel it is informative and provides a welcoming forum for those of us in this "world of Alopecia"



Though, I can't help but to feel a bit of sadness when I get the email notice that another parent has joined Parents of Children with Alopecia, or non-Alopecians in Alopecia world, or Carolina Alopecians, etc. etc.

I say this because I have been where they are and know some of the emotions that they are feeling. Feelings of… Continue

Is it me or is there an increasing nonchalance of dermatologists and doctors when it comes to Alopecia. I have taken my daughter to nearly a dozen dermatologists and doctors across the state of North Carolina. I have yet to meet a dermatologist/doctor who seems to be genuinely interested in her condition. They diagnose her, give her a prescription for clobetasol or protopic, and then say come back in 3 months. 3 months!!!! I pray she still has hair in 3 months! One even had the nerve to ask me… Continue

Hello Alopecia World! I'm a new member and I posted this question in the children with alopecia forum section earlier. This is my first post and my first blog, just hoping to hear some response:



Hi,

I'm a new member here and desperately need to hear a "happy ending" story. I am the mother of a 4 year old who was recently diagnosed with alopecia areata. It seems as though I spend every waking moment, fighting back tears, looking for an answer for her, trying to find a cure,… Continue