Jackie's Blog (6)

Tomorrow?

Every now and again, I'll feel like purging. I find some curious soul and satisfy their curiosity by divulging my deepest alopecia secret. Been completely bald for 3 quarters of my life. Lost all my hair smack dead at the start of puberty, in that same rude and dusruptive way that alopecia tends to do. They stare into my eyes in awe waiting for my tear glands to fill up - but I'll never give them the satisfaction. Next they may say something completely thoughtless and unfeeling like "you're… Continue

Added by Jackie on October 8, 2013 at 10:03pm — 2 Comments

Alopecia trivia

Society has an interesting way of trivializing alopecia; passing it off as simply cosmetic.

So then I suppose that those of us who dare to feel saddened by this uncontrollable condition which leaves us looking almost supernatural and unspeakably unhealthy should also feel guilty for having such petty, vein, and juvenile emotions....damn. that's a lot.

Added by Jackie on November 10, 2011 at 10:00am — 5 Comments

Random ridiculous thought

'Seems it might be easier to tell the world that I've lost my hair battling cancer than it is to say that I have some immune disorder that attacks hair follicles deeming me bald indefinitely. #justsayin'

Added by Jackie on November 9, 2011 at 2:00pm — 8 Comments

Some sorta/kinda acceptance

So I have finally accepted (after 25 years) that I am a slave to my wig. I started sleeping in my wig two months ago. I take it off only to wash it and to scrub my scalp once a week. Actually ....now that I'm not running for my wig whenever the door rings, or hiding beneath windows in fear that the neighbors will see how horrific I really am, life has gotten better. Believe it or not, my husband Of 8 years even responds to me better. Go figure.

Added by Jackie on November 9, 2011 at 10:30am — 4 Comments

What embarrasses me most...

What embarrasses me most is not that I am as bald as an eagle, but the way that I've handled it over the years.



I mean...it is JUST hair...whenever I fail to make a big deal of it, the rest of the world follows suit.



I met a girl once who is stark bald, and never - ever wears a wig. She is probably the most beautiful and fashionable girl I've ever known, and her make-up is always picture perfect. When someone asks her why she doesn't have any hair she just smiles and… Continue

Added by Jackie on May 24, 2009 at 3:30pm — 8 Comments

...The girlfriend thing...

The last time I had a really close BFF was back when I was twelve years old (just before AU took over my life). I miss having a good friend so much.



The problem is this:



I have issues...issues that people don't understand. Issues that I can't just "Get over". Some days are fine...but other days - especially a BWD (bad wig day) -- oh God!! Those days I could just build a cave under my blanket and hibernate for the whole season.



The phone rings, and instead of… Continue

Added by Jackie on May 18, 2009 at 11:07pm — 6 Comments

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