It has been a really long time since I was last on this site but I am in need of some suggestions, ideas or input please...

I have a new baby (girl) and I am wondering how others with children have chosen to tell their kids about their alopecia? I know that I have time (though it goes fast) before she will be able to ask questions, but I am still uncertain about how I'll respond.

I have never hidden my alopecia from my baby, nor have I hidden my wigs. However, when she's old…

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I am back in NY for the summer to complete my masters degree and be done with school officially. Just like last summer I have been wearing a scarf around my head and have not been wearing my wig as it's too much bother and gets too warm. I have now, just this week, had two different people come up to me and ask me if I am "receiving treatment".



I think this is so horribly and unbelievably rude. 1) no i do not have cancer 2) when and where did people learn that this was socially… Continue

Sorry it's taken me so long, but I finally put up a new (updated) picture of my new wig. Here it is!

I'm getting married soon (Sept) and this is just after my makeup trial. Hope you like it. I know that I love it. It's so thick and lucious in comparison to my old wig and I love the rich dark color too.
Hope everyone is doing well.
amanda~

So it's been awhile since I was last online here and awhile since I last posted anything in my blog.I wanted to talk about my very new wig...I just picked it up 2 days ago. Backtracking a bit here, over the summer I was in NY and got myself a full lace wig and had nothing but problems with it. I learned that I am allergic to the adhesive. I also learned that since it was "off the shelf" instead of custom made it didn't really fit as well as it should/could have.



After much… Continue

To continue on my storyline about my search/experience for a new wig. Last time I wrote about how I had learned that I am allergic to the adhesives used in my (thought to be) perfect new lace front wig. Then I wrote about how I had learned that I am hooped and instead of sharing my alopecia with the world of people I work with, I opted for some bright red extensions. I did this to divert attention from the fact that one day I had longer brown hair and then the next I came back with my old hair… Continue

First and foremost thank you to everyone who read and commented on my horrible horrible wig experience the other day. I am both pleased and proud to say that



1) with the help of a truly wonderful friend and some great sales people in other stores I was able to figure out how to "fix" my lace wig and remove almost all of the darn glue & tape that was stuck on it. I also have found a wig place in town that I think might be able to help me with different adhesive options or some… Continue

So last month while I was in NY I decided to purchase a "lace wig" according to the website, this wig is different from a lace front wig although don't ask me how because I really don't know. Anyways, when they attached it (approximately 10 days ago) they told me that they were using the "sensitive skin" glue & tape and that with this combination the wig can stay on my head for up to 5 weeks. Of course I realize there are no guarentees in life, but I have quite a story for… Continue

I have had aleopecia universalis since I was 15 yrs old. I remember the day my hair truly fell out. It's been 15 yrs and it sometimes still feels like just yesterday. I cannot belive that it took me so long to find this website and others living with, dealing with and surviving life with aleopecia. I guess it's possible I just wasn't ready to.



I have been wearing wigs since I was 15. I started out with the experience of going into a store where an older woman basically sat me in… Continue