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Years ago I was in a changing room at a gym and a woman walked in and thought I was man because I was not wearing a wig to cover my alopecia and had my back to her. When I turned around she could obviously see that I was a woman, but I still felt shame after I saw the look on her face and she apologized for mistaking me for a man.
That was very painful experience for me. I could feel my emotions trying to cover the pain, and my automatic response was self-protection. I thought to myself, "I really should consider wearing more feminine colors, like maybe a pink shirt, and something more fitting." Indeed, the thought lingered in my mind a bit.
But as I continued to think about it, I wondered whether that really would change anything? Would I really be able to deflect all of these situations by continually changing my outward appearance? What happens in the winter, when I have to wear a heavy coat? Do I choose to leave the coat open in sub-zero weather with a tight, low-cut shirt to make sure my cleavage and breasts are apparent? What if I am really not comfortable with pink or tighter clothes? If I forfeited my comfort level, I would be dressing in a way that no longer reflects my personality, but instead dressing so that I can avoid dealing with uncomfortable feelings. Is that what I really call freedom?
I thought about it quite hard and really had to challenge myself to look deeper. Did it make sense for me to keep guessing what situations may come up and spend all my energy trying to figure out how I can avoid the unpredictable? Would I really be able to stop all comments and unpleasant situations by "micro controlling my world?" Am I really living freely?
That day I came to the conclusion that if I really wanted my freedom with alopecia, I was going to have to properly deal with uncomfortable situations and keep questioning my decisions until the final answer becomes because “I” wanted to.
Alopecia should never be a source of shame or embarrassment, but often it is. I believe it starts with us and that we have to mindfully strive for self-acceptance. I also believe that in order to make real changes in our efforts for social acceptance, we have to continue to become a strong visible voice in society, whether we chose to wear wig, a hat or go au naturel.
Because I am tall and had put on a few pounds after age 40, I also wanted to eliminate the chance that my hair loss was not considered feminine. My solution was nice wigs, eyebrow powder and make-up, earrings, non-chunky shoes, and more skirts or feminine blouses while teaching. However, it was weight loss that I ultimately decided was the bigger barrier in both job-hunting and socializing. So, I joined TOPS and have lost 30 pounds since April. Lo and behold, I have had better job interviews and flirts aimed my way. True, I have not gone bare-headed for any of the above, but work skills, smarts, artistic talent and friendship are not determined by hair...so what should I care about strangers who do not take the time to look into my eyes and face or listen to my voice and heart before judging?
By the way...I NEVER wear pink or pastels. They are just NOT ME. Blues, black, purple, mulberry, brown...yes. Scarves and bolero or draping sweaters...yes. Fake fur Russian-type black hat and coat with black fake-fur collar for holidays, nice gloves...yes. Knee-high sweater-type boots with fashionable buttons...yes. There are ways to keep warm besides dad's parka! I have even attached pins to hats that message, "Yo! Female here!"
I think the self-acceptance thing gets going once your self-image (or, how you think you look, in your head) matches the real you... that is, if you still think of yourself as the long-haired blonde, it's going to be a shock whenever you look in a mirror. I went through all that (er, well, not the long-haired blonde bit!) and it's a subconscious thing as much as anything - it definitely took some time before I naturally thought of myself as "the completely bald guy".
When you start to make those decisions on how you want the world to see you... wig, scarf, nothing, whatever... it's a lot easier if you're not battling yourself. It's a very personal journey, and it's always hard because we can't control how others will react. But when we're alright in ourselves, we're in a much stronger position from which to face the world.
Norm, I think you are right. I no longer think of myself as the person I was before I lost my hair. Nor do I compare myself or believe that I was "better" when. Thanks for that reminder, I can see a few other area in my life that I need to stop seeing the long-haired blond ;)
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