Rachel has been very secretive about her condition. She has not wanted anyone to know that she has alopecia other than her family, and she has never wanted to talk about it. She has been very happy with her wig that is attached with medical grade adhesive. I think it has allowed her to just forget that she is bald and allowed her to feel like everyone else.

Then, she started losing her brows and lashes. The kids at school started asking questions which she fielded without telling anyone about her condition. I tried to encourage her to talk about her condition with others, but she just wasn't ready.

Two weeks ago, a few kids started a rumor at school that Rachel had cancer. This led to several of them trying to pull off her wig as she walked through the halls. Fortuneately, the adhesive held firm despite her hair being given some very firm tugs. Rachel was in tears, of course, and I was furious. My first thoughts were to show up with police and have the little culprits arrested for assault. My husband talked me out of that course of action.

I found this site and started reading about similiar situations happening to other members here. I read many blogs and discussions about how healing it was to share with others about alopecia. I read many of these discussions to Rachel. She decided that now was the time for her to come out of the closet and trust her friends with her secret.

We went to school the following day and met with her principal and one of her favorite teachers. We all decided the best course of action was to have Rachel speak in front of her class about alopecia. The kids responded wonderfully. They had lots of questions which Rachel answered and some of them shared that people in their family had alopecia also. Rachel said that lunch that day was a little hard, because the kids who started the rumors and had pulled her hair were angry that they had got in trouble. These kids, unfortuneately, were not a part of the class that Rachel spoke in front of.

Now, Rachel wishes she would have talked about it sooner. She has been accepted by the kids, just as if she didn't have alopecia. In fact, she says she would have liked to have talked to the whole school about it. She might still do this if it works in with an assembly the school has.

As her mom, it has given me alot of peace. I was so worried about her mental well-being. I didn't think it was good for her to keep it inside and never talk about it. The way the kids and teachers have responded to her has restored my faith and trust that the majority of people are good, caring, and accepting of people living with differences.

Views: 1

Comment by Life on March 8, 2009 at 11:22pm
I'm glad to hear you were able to find a resolution for your daughter. She is a very brave girl and although it was not easy for her to get up in front of her classmates, it was important that she did it. Rachel will no longer have to worry about what they think or what they might be saying behind her back. Sometimes even though it is hard, we never know how people will react unless we give them a chance. Rachel's bravery will result in her having a more positive experience at school and a better self image.
Comment by Margie on March 9, 2009 at 3:07am
YEAH!!!!!!!!!!!!!!!!!!!!!!!!! I'm so happy for your daughter and yourself. My son developed aa last summer and at the beginning of the school year he had lost almost all of his hair. We had the district nurse speak to the whole school and it was the most wonderful thing we could have ever done. When kids get the facts and don't have the opportunity to make stuff up themselves they can find the empathy and really relate to what others are going through. After that one kid started to tease Casey but a group of the kids heard and stood up for him. He now realized what fantastic friends he has. He still wears a hat to school but knows he really doesn't need to. Empowering these kids is the very best we can do for them. Congrats on the great outcome!
Comment by Mary on March 9, 2009 at 4:48pm
Wonderful!!! And, a lesson for all of us.

Have you seen the video "Anna's Alopecia" on YouTube? It may also be on Alopecia World, I'm not sure. It's a young girl speaking, bald, in front of her school assembly about her alopecia. Your daughter might like to see it.
Comment by SportyAusGirl on March 12, 2009 at 7:34am
What an amazing display of courage your daughter has shown. Thanks for sharing that story, it was very uplifting. Secrecy sucks and only would make this condition worse, i believe. Well done to her for talking out about it, i hope she feels like a weight has been lifted from her. I know i certainly did.

life's good :)

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