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I can't deal with this scalp pain anymore...want to die.
I don't know what to do.. I have been suffering from this severe scalp pain and burning, itching, sensitivity, etc... for almost 7 months and am mentally and physically exhausted. Doctor after doctor and no diagnosis. I am sick of hearing that it is anxiety and worrying about my hair. The pain and hair loss go hand in hand so how can they not find something physically wrong? I am loosing my grip on reality and fear that my doctors are ready to send me to the psychiatric unit for therapy. Could this pain be in my mind and the stress is causing my diffused hair loss? I was completely fine one day and the next in pain. I just can't handle not having a diagnosis. It is wearing me down quickly and I am having a hard time thinking that this pain won't go away. I don't want to live like this anymore! I feel so alone and I want to cry and cry... I just don't want to live with this scalp pain and not be able to touch my head. I can't be with anyone because I won't let anyone touch me because it worsens the pain. What am I supposed to do? I am so sick over this and missing work because of appointments and it's financially draining as well. I don't know how much more I can take...
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Comment by Robbi on August 15, 2010 at 9:37pm
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Just wanted to let you know that I'm still praying for you. For health, healing, & happiness. And the answers you need.
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Comment by Tallgirl on August 15, 2010 at 10:21pm
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If pure aloe from inside aloe cactus leaves can heal burns almost overnight, do you think you could try THAT on a test patch of your scalp?
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Comment by Julie R on August 15, 2010 at 10:25pm
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Please hang in there. I don't have the answers that you're looking for, but my prayers are with you. I wish you didn't have to go through all of this. I hate the world because I have AA, and I don't know why or how or if it will get worse. I hate not knowing. I hope that you do get a diagnosis and something to help you with the pain soon. Try your best to love yourself in any way possible. So many of these things are caused or worsened by stress. It's a vicious cycle. . . stressing. . . having all sorts of symptoms, then stressing out even more. If you're feeling alone, then keep on blogging to vent it all out. You'll realize that you're not completely alone. Take care and stay safe. You can get through this.
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Comment by Dominique Cleopatra on August 15, 2010 at 10:50pm
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I'm praying for you too! If all else fails, maybe, try sipping a glass of nice red wine. It's not a panacea, but--in moderation--it can be Just what the doctor ordered. ;)
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Comment by Julie Koch on August 15, 2010 at 10:56pm
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Thank you ladies for your concern and thoughtful words! I'll hang in there until they find something... Until then, I thank GOD for bringing me to you... Love you all..
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Comment by rj, Co-founder on August 15, 2010 at 11:09pm
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Julie, thanks for assuring us that you're going to "hang in there until they find something." In the meantime, I would encourage you to seek professional assistance with coping with the psychological trauma associated with your physical condition. From what you've written, I gather that your doctors are already contemplating a psychiatric referral. Perhaps it would be in your best interest to take them up on this offer and look to Alopecia World for whatever supplementary or complementary emotional support its members can offer. Of course, this is not medical, expert or professional advice -- just the strong opinion of another member of this beloved community.
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Thank you Rj. I have been seeing a psychiatrist for 18 years for an eating disorder and he is not sure how to go about this new issue. He had never heard of scalp pain before and he doesn't want me to go on any antidepressants because of my sensitivity to medications. I am on Xanax for anxiety and panic attacks but it doesn't help with the pain. I appreciate your care and concern and thank you so much for your advice. I will continue to search for answers and will keep posting so that you know I am OK! God Bless you and Cheryl.
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Comment by Lana on August 16, 2010 at 12:54am
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are you taking steroids?
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No steroids lana.. The hair loss started when these scalp issues began. I literally woke up with the scalp pain and itchiness and the hair loss started shortly after...
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Comment by Lauren on August 17, 2010 at 4:57pm
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hi julie! what is happening to you sounds very similar to what i went through. i went to bed normal and woke up with intense scalp pain and diffuse hair loss. i wont bore you with a long story but i have been dealing with this for 2 years now. i hate to say that the hair loss and pain hasnt gotten much better but my attitude has and it isnt that big of a deal to me anymore. this is coming from someone who was suicidal over this issue for a long time, so there is hope that things will get better. let me know if you want to talk more!
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