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My three spots!
Hi All, I just updated my photos and have shown my three spots now...They seem like they are coalacing into one big spot, how horrible is that?!!..It is so very depressing to look in the mirror anymore to try and fix my hair..I am tired of looking at myself with a scarf on..I feel ugly..I am not use to myself like this..I decided to stop using the olux foam and just let it take its course..The olux foam seems to make my head irritated and red..It seems as though when i put the foam on it stops the itching and redness, but the second it wears off my head is overly red, irritated, and profusely itchy..Now it looks as though my head is just red on the perimeter of the patches near my healthy hair..It also looks as though there are like little red bumps or cuts, not sure if that is from itching or a side effect of the Olux, but this is completely draining as I watch my hair get thinner and thinner...I know you have all been in my shoes, and I cant begin to say how sorry I am..I just want to say that I am completely unable to accept what is happening to me and praying that there will be an answer..Hope you all are doing well..
One Question- Not sure if this is how the olux is suppose to respond, but it seems like for me that I put it on in the morning, than I put it on at night, but in between that time my head is ridiculously itchy and hair seems to fall out alot more than if I hadn't used it at all..It seems that if I dont put it on at the same time everyday that my head gets overly irritated until I put it on, but if I dont my hair falls out more than when I wasnt using it..Can anyone relate to that? I know it is confusing, but not sure if I should continue or stop the treatment...Thank you
One Question- Not sure if this is how the olux is suppose to respond, but it seems like for me that I put it on in the morning, than I put it on at night, but in between that time my head is ridiculously itchy and hair seems to fall out alot more than if I hadn't used it at all..It seems that if I dont put it on at the same time everyday that my head gets overly irritated until I put it on, but if I dont my hair falls out more than when I wasnt using it..Can anyone relate to that? I know it is confusing, but not sure if I should continue or stop the treatment...Thank you
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Comment by Kimberly Duncan on October 10, 2010 at 1:20pm
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Not sure if olux is causing your head to itch but I do not use anything I gave up, but my head itches and is red in areas. Usually when it starts to itch it is a new spot coming in. There are times i just brush my hair (even though tons of hairs fall out) and it stops the itching for awhile.
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Comment by Rachel Rei on October 10, 2010 at 2:41pm
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I had the same problem. Thats the risk of trying that ointment. After I used it for a while I actually read the side affects which included, go figure, "hair loss." What is does is supposed to irritate the scalp so your auto-immune system stops attacking your hair follicles. I stopped using it, too much to deal with on top having to shave my head. Good luck to you.
-Rachel
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Comment by Trish on October 10, 2010 at 3:03pm
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Hi Kim, I know I feel like I am about to give up myself..My head is only itchy in the area of where my spots are, but no new areas..It also seems that my hair gets greasy very quickly now as well..Very weird
Hi Rachel, Maybe I should not have used it to begin with because my hair was fine till i started using it..It seems like when I did use it my hair was falling out more..Hope your doing well
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Comment by Julie Koch on October 11, 2010 at 4:52pm
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I haven't used that but I have learned that sometimes the side effects of medications are worse than the actual problem. I try to take as little medications (orally or topical) whenever possible. I hope you are hanging in there and feeling better.
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Hi Julie, I hope your doing well..I see your in a lot of pain, I am so sorry that you are in pain and suffering with this as I am myself...This is a horrible disease and wish I had a magic wand to take it all away..I hope for the best for you, myself, and everyone else with this disease...Take care :)
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Comment by letcia Parga on October 12, 2010 at 4:59am
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I feel Like I too can not accept alopecia , I don't know if I ever can . Even if all my hair is to fall out . It sucks because people who don't have it don't understand how it can make you severley depressed and stressed . I really hate the feeling of not knowing what is going to happen to my hair is it gonna fall out or not . I totally avoid at looking at my spot cause It makes me so sad to look at my self . What happened to my thick full head of hair ? I'm just hoping this goes a way soon and I never have to see abald spot on my head . How did you notice your first spot ? did it fall out overtime ? mine seemed to be overnight out of no where .
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Hi Letcia, I feel the same way you do, i am very scared and dont know what to expect..My hair fell out virtually overnight too actually very odd..I do not have any auto immune disorders nor do any family members, so I am at a loss..what bout you any auto immune disorders?
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Comment by Aliennation on October 12, 2010 at 2:50pm
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Hi Trish
Finally I found someone who has the same exact feeling as I do.. everytime I post something on here someone always writes to me and tells me how negative I am about this and I need to go some other website..
But really I thought thats what this one was for .I really feel alone also no one knows what Im going thru eaither. I have no one to turn to I even went to a drematologist and she told me I should get conseling and even tried to make go talk to a another Dr. about getting anti depressents..Its so hard going thru this alone.Hopefully we can become friends and try and get thru this together..
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Letcia and Trish I had depression 8 years ago after I half my son. I am beyond depressed and stressed, I feel Like I have no control over my life, I am a take control kind of person and Alopecia is unpridictable. My life feels like a roller coaster. The times when my head itches and burns I swear I am going to go crazy.
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Aw, I am sorry to hear that Sonny..We can def be friends and hopefully be able to help each other through this horrible disease..
Kim, I feel like I am losing control slowly and feel like I am either going to have a nervous breakdown or I am gonna crack it is very scary, hopefully we can be here to help each other as much as possible..
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