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no more treatments!
well, i have a doctor's apt tomorrow and i called and cxled it. i decided that i am done with everything that i have been doing to keep my hair. i am not taking injections anymore, or using foams, or creams on my scalp. i am losing more hair and it comes and goes. it seems that i am losing and growing hair and that it has nothing to do with the treatments. plus i am gaining weight from all of the steriods and that doens't help my state of mind at all either. i stopped the zoloft as well. i can't live my life on steriods and anti-depressants so i have to learn to deal with all of this. of course that is easier said then done because now i am growing black feathers right on the crown of my head. i call them feathers because it feels like baby chick feathers. the rest of my hair is completely white with 1 big black spot on the crown. it is the strangest thing that i have ever seen. plus all of the steriods make my scalp break out and that is NOT attractive at all. so for right now that is what i have decided. i am on an emotional rollarcoaster and i may not feel like this in a couple of days and may reschedule the doc's apt. i have decided to start walking everyday after work. i haven't done any exercise for 2 yrs, so the jogging is out, but i will work myself up. plus my friend keeps stressing that it will make me feel better and she is very right. i know it, but have not been able to make myself do it, so now i am.
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Comment by Cheryl, Co-founder on November 3, 2008 at 1:35pm
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Hi Jenn, I know the feeling you are describing. I remember when I decided enough was enough. Some felt like I was "giving up", I felt like I was finally starting to live. It was a crazy state to be in, trying to control the uncontrollable, but deep down knowing I couldn't. So I am glad to see that you are replacing these steps with things that you truly can control, like taking care of your health.
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Comment by Jenn on November 3, 2008 at 1:45pm
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thank you that is nice to hear - some are telling me not to give up with the treatments even the doc, but i just don't see any need to. it feels a little liberating right now anyway.
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Comment by JeffreySF on November 3, 2008 at 8:52pm
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Hi Jenn,
I quit all the treaments at the begining of this journey. I could clearly see they were not working.
The only treatment I take is a Biotin tablet and minoxidil. I have the white fuzzie stuff as well but no dark crown.
I always feel so good when I exercise. I do aerobic classes 3 times a week and I think that really helps alot.
Jeff
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Comment by Amber Lounder on November 3, 2008 at 10:31pm
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A cool rational head Thats the best thing I read today Can I use it? :)))
Jenn I also think you did the right thing I had an appointement too with my dermatologist I turned down any treatment Mostly because of what I read here. It's true that we have not much control C'est la vie
Big hugs xox
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yall are all so smart! i love reading other's stories no matter what they decide. it is hard to be human but we figure things out eventually even if it is just in small steps. i am no longer going to the derm and just going to focus on getting back to me. i have been in a hole for so long, i am trying to finally start crawling out. i felt so good after walking last night. i had energy and was up hangin with my daughter and will do it again tonight. walking is not a chore, but i am going to work my way (slowly) up to jogging again. "get on with your life" dom that is exactly what i am going to do!
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Comment by Celeste Edwards on November 4, 2008 at 2:10pm
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Good for you Jenn!!
You will find you have more GOOD days than bad when you go this route!! For me, it's control!! I want to control my decisions and my life!! Not a pill, not a treatment, not a myth!! Ya know!! So, get out there!! Take YOUR life back!! Get that body moving and SUPER SEXY HOT!! and on your bad days ... give me a shout!!
{{Hugs}}
C
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celeste your a nut and i like the way you think!
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Comment by Lee on November 5, 2008 at 1:24am
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I made the same decision and it was a good one! I felt like I was spending all my time at the Dr's office...for nothing. Do what makes you happy. Use you time to excersize, releive stress, and do your favorite activities. Don't let alopecia get the best of you...don't let it win. ; )
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Comment by Georgie on November 6, 2008 at 12:50am
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Yup, I'm at about that point, too. Went to the Derm. yesterday for kenalog injections and squaric acid on my latest bald patch. What's the point? The patches just keep moving around my head. It's a wild goose chase! Argh.
Soooo.....how did you quit the zoloft? I'm considering it myself. I'm at a good place in my life and I think it's time to give it up. Thank you for sharing your wonderful inspiration! ;)
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Forgot to mention that I started exercising again now that I FINALLY have some time to myself. It has made such a difference. Looking good in a pair of jeans means more to me now that patches of missing hair...or whatever else will happen up there in the future.
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