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Random stuff
I went out last night and had a great time- took myself to a local tea house and did their Friday night tea tasting. I sat at the bar across from a mirror, which at first thought was a bad idea, but I now see it wasnt. I have been becoming increasingly(as if I wasnt enough already!) self conscious about losing my eyebrows, my alopecia has turned from areata to totalis this time, I am losing hair everywhere, not just my head and a few places on my arms and legs.
The loss of my eyebrows has been as much if not more difficult to accept than losing my hair. It makes my face look, well, not complete. Weird. I know there are those here who boldly go without wigs and brows...and someday I hope to be that brave. Im actually thinking of participating in the National Bald Out...but havent seen anyone on here from my area. Im not sure I could do it by myself. I just havent reached that level of acceptance. I am still grieving the loss of a facial feature.
I know there is more to me and everyone else than eyebrows. I try and tell myself that.
I bought some eyebrow pencils on my way home last night and tried them out. At first it looked very fake, and reminded me of some old ladies in the nursing home I worked at years ago who drew on their eyebrows and wore heavy makeup to hide the effects of aging. I dont want to look like them. I dont wear alot of makeup anyways, only when I go out, and even then its only eyeshadow, mascara, eyeliner and lipstick. After a few minutes, and a couple swipes with my finger, they softened a bit and looked more natural.
I will definitely keep working at drawing them on.
This morning I looked around on Cafe Press for alopecia related things..and wow- they have over 8,000 items! Tshirts, cofee mugs, tote bags, very cool stuff, for girls and guys too! Here's a link : http://shop.cafepress.com/alopecia?page=1
Id love to add, and maybe I will, a t-shirt that says "Go Ahead, Ask about it" or "Go ahead, ask!" As I think many times people want to ask but dont want to be rude. To me, asking is not rude. Coming up behind me and tugging on the back of my wig as you act like your reaching for something is rude. Yes, that happened to me.She came up behind me and out her hand on my hair, and as she was reaching for something across the table, she tugged at my wig. I said nothing, but if it happened now, I would definitely point out the rudeness! Just f-ing ask!! LOL
The loss of my eyebrows has been as much if not more difficult to accept than losing my hair. It makes my face look, well, not complete. Weird. I know there are those here who boldly go without wigs and brows...and someday I hope to be that brave. Im actually thinking of participating in the National Bald Out...but havent seen anyone on here from my area. Im not sure I could do it by myself. I just havent reached that level of acceptance. I am still grieving the loss of a facial feature.
I know there is more to me and everyone else than eyebrows. I try and tell myself that.
I bought some eyebrow pencils on my way home last night and tried them out. At first it looked very fake, and reminded me of some old ladies in the nursing home I worked at years ago who drew on their eyebrows and wore heavy makeup to hide the effects of aging. I dont want to look like them. I dont wear alot of makeup anyways, only when I go out, and even then its only eyeshadow, mascara, eyeliner and lipstick. After a few minutes, and a couple swipes with my finger, they softened a bit and looked more natural.
I will definitely keep working at drawing them on.
This morning I looked around on Cafe Press for alopecia related things..and wow- they have over 8,000 items! Tshirts, cofee mugs, tote bags, very cool stuff, for girls and guys too! Here's a link : http://shop.cafepress.com/alopecia?page=1
Id love to add, and maybe I will, a t-shirt that says "Go Ahead, Ask about it" or "Go ahead, ask!" As I think many times people want to ask but dont want to be rude. To me, asking is not rude. Coming up behind me and tugging on the back of my wig as you act like your reaching for something is rude. Yes, that happened to me.She came up behind me and out her hand on my hair, and as she was reaching for something across the table, she tugged at my wig. I said nothing, but if it happened now, I would definitely point out the rudeness! Just f-ing ask!! LOL
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Comment by Christine Peck on June 13, 2009 at 11:01am
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Can I hire him??LOL How friggin rude!! I have only had that one experience, thank goodness. Back then, it was a couple years ago and I was very much a quiet little doormat, I said nothing. Today, I would definitely have pointed how her rudeness, in a loud way! As I said...just f-ing ASK if you want to know if its a wig or not...good grief!
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Comment by JeffreySF on June 13, 2009 at 2:24pm
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Omg!!! That is crazy. I can't believe someone would go and give a tug. I would tug back and say nice roots B!!!
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Comment by brenda kay on June 13, 2009 at 10:20pm
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chris, i have had the same horrific eyebrow dissapearing act happen to me, after all the other hair went south.....i found a powdered eyebrow product that i apply after fudging on the pencil... it softens it a bit and people haven;t a clue. first draw your line ( i have a hard time making them even, but am getting better with practice) the few remaining eyebrow hairs which i had used as connect the dots, have fallen off this week so it takes some practice now keeping symmetrical. Eyelashes are another story.... i am a creature of the 60's and have used them before but a dark, matte eyeshadow smudged around the eye makes them show up on your face even without lashes. hang in there!!! bk
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Comment by Felicia on April 11, 2011 at 9:53am
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I know this post is a couple years old but I was interested in the woman who created "Alantans with Alopecia". I was wondering how far in the 2 years you have evolved in your acceptance of Totalis? Has it gotten easier for you? I also wanted to tell you how much I relate to what you are going through because I also have Alopecia Totalis. I have a few straggling hairs that just refuse to leave but that's about it. I remember when my eyebrows gave up and it was a very traumatic experience for me also, it was just a very weird look on my face and penciling it in made me feel like a clown. I cried and cried to say the least. It has gotten easier for me and recently I had permanent eyeliner done. I feel better on a mental aspect of it and my husband is always complimenting me on them. Little things like that can help the psyche and I am all for it if it makes me feel better. That might be something to look into if you are still struggling with the weirdness. Anyway, I truly hope you are doing better and thank you for creating this group. <3
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oops correction..I have Universalis..gosh where do they come up with these sill names?
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Thanks, Felicia. I just posted an update on my blog. I have gone bald since July 2010, and I dont think I will go back. It has been so freeing. I still have ugly moments- moments where I feel ugly and long for hair and to be "normal"- whatever that is ;-) They are much more fleeting.
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you know what Christine? I had ugly moments when I had hair too...lol .. I read your update blog and thought it fantastic of how well you have evolved. keep your chin up and keep on keepin on lady. you are a great inspiration.
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So did I...lol
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