Alopecia World
www.alopeciaworld.com
That Answer in the Night
Isn't it remarkable that in 2010 we can put out our alopecian thoughts and fears (be they medical, personal or social) online...and that someone, somewhere, whom we have never met, from anywhere in the world, may be reading and answering at any time of the day or night? That someone, somewhere, may be putting out a little thought of hope or prayer for our situations, or have the very answer we need? Imagine how amazing it is for those of us who went through MANY years of no computer at all (before 1986?), or who never met another person with alopecia!
Keep connecting, everyone! This place is more special than you know, because we can say IT, reveal IT, discuss IT and STILL be accepted and understood!
Keep connecting, everyone! This place is more special than you know, because we can say IT, reveal IT, discuss IT and STILL be accepted and understood!
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Comment by Pam Hagler on August 12, 2010 at 2:27pm
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And let us not forget our 'family members' who are rockin' those scarves, hats, and wigs! If I haven't learned anything else from my hours spent on this website I've learned that covering or no covering, bald or not bald... it doesn't matter! What matters is that this is a place where I (we) can be free to be me - and hopefully that will manifest itself outside of the parameters of the web.
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Comment by Mark S. Hansen on August 12, 2010 at 3:49pm
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Yes it's great that we all have a site like this to bring people like us together for understanding and compassion. But then again its also sad that the rest of the world (the one I am subjected to every day, is not as, or even rarely as accepting. Marky218 (single never married, alopecia universialis for over 40 years.)
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Comment by Leslee on August 12, 2010 at 4:42pm
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This website has helped so many people feel they have support and someone to turn to. I wish more Doctors knew about this place.. and were able to give their patients the information. It has helped my daughter cope and come to terms with this condition. It has helped me too, feel less helpless.
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Comment by Bald and Fabulous AKA Terri on August 12, 2010 at 10:05pm
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only been here for a very short time and I find it wonderfully encouraging. I have dear friends that are understanding and always have encouraging words, but its nice to talk and hear from those that are experiencing the same things.
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Comment by JeffreySF on August 12, 2010 at 11:30pm
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I've been saying this for 3 years now. Thanks everyone at Alopecia World.
Hugz,
Jeffrey
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Comment by Loraine and Sammy on August 13, 2010 at 1:45am
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You're very very right - I would find this so much harder without that real understanding and empathy found on this site.
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Comment by stephanie a ponteau on August 13, 2010 at 6:02am
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I'm new to the site. Still dealing with going bald. The hairloss has started accelerating since January of this year and now my hairline is receding. Still dealing with the devastation, but I am not wearing a wig. I don't like them.
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This site has been a life-saver for me. I found so many solutions here to everyday issues that arise not to mention the emotional support.
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Hi Everyone
I too am new to this site and yes it is wonderful .
I have been living with alopecia since I was about 12 ( doctors say it is a result of trauma I suffered when I lost an eye in an accident when I was young ). Iam 58 now and still find it hard to cope. I met a wonderful woman when I was mid 20s and she seemed to accept me ( the alopecia was restricted to my scalp and I had facial hair and body hair ). About 5 years ago almost overnight I lost all hair on my body and things seemed to change I could sense she had changed. Things deteriorated and about 2 years ago she left me. I was and still am heartbroken and I feel ugly . I look in the mirror every morning and think...My god you are ugly and why wouldnt she leave .
I have always covered my bald head with a hat but want to be free of the damn thing. I recently started a new job some miles from where I live and decided to leave the hat at home...nobody bats aneye and I feel much better but wouldnt dare walk into my local pub without my hat....Maybe one day !!
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Tony - my heart goes out to you. But I must say (and please remember that I am a Christ follower so any comment I make is going to come from that place!) - God made you exactly the way He knew would benefit you and the world around you. If your wife cannot yet accept that... that doesn't make you ugly! It just means that as human beings we all have 'stuff'. Perhaps you can give her some time while YOU use the time to deal with and come to terms with the cards (stuff) you were dealt. And whether you choose to wear the cap or go for broke, know that your AW family is here to support you. And please post a picture. :-)
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