Comment by lunablue on February 29, 2012 at 8:51am

Hey Izzy,
I understand where you are coming from. I have good days and bad days dealing with my AA. Yesterday wasn't so good. I found another spot :( I try to keep it to myself now days because like you everyone I know doesn't quite understand and I know they are tired of me crying, being sad about it. I just try to remember that I can't stop living life, I can't let this stupid disease take me over. But I know its hard.

Comment by You can do it : ) on February 29, 2012 at 5:52pm

Hey,
I totally feel for you, good luck you can do it
We are hear for you : )

Comment by Pat on March 1, 2012 at 2:07am

I see you've had really encouraging responses and I can't add much to them except to say that whatever we have lost..our leg, our breast, our eye,...or our hair...its definitely emotionally devastating and also we're pretty much on our own to cope with it. No matter how supportive our friends and family are [and often they're not because they feel so helpless] this is a journey we take alone. Yet complete understanding is only a click away...thanks to AW and other online support groups. Hang in there. I've learned it's okay to feel sad, angry and pissed off. But it gets better..eventually.

Comment by Christine on March 1, 2012 at 2:23am

Well lzzy, if your a cry baby, I'm right there with you, It is very emotional losing ones hair, and frankly tho we may have friends and family to talk to about it, can they really relate? Lets face the fact that very few of us ever even meet another person with Alopecia in our everyday life (work,school,church) I've never in my life met someone that is going through what we are, except on this wonderful site (thank the Lord for it!) so people have never really thought about it as a possibility, so the empathy is not already there for them. The hard thing about it is, I believe stress is a contributor, and when we are actively losing it, it is so stressful, a catch 22. Please don't be so hard on yourself :) I've often thought that If it would all be gone, it would be less stressful, and hurtful, than this losing and regaining it. right now I've lost quite a bit again after a long time of it being pretty good, mines mostly underneath so people can't always tell. and I did have a pretty stressful time around Nov/Dec so it's about right for me it takes a few month before it will become active, now its the long wait for it to grow back, or actually stop falling out so much, that the Rogaine can't keep up. Keep your chin up, and do what you can to help yourself right now. Do you use any meds for your AA? Hope things get better for both of us real soon:)

Comment by thinlizzyfairy on March 1, 2012 at 10:23am

i think the best people around are the sensitive ones - and i think it means we appreciate the little things that others might not notice :) this is a really shitty tough time right now, am in the same sorta place as you and i know how devastating it can feel at times but we will get through it and be even nicer people for it at the end :) keep smiling beauty, things will get better :) x x x

Comment by alamogirl/ aka Judy on March 2, 2012 at 3:54pm

So, Izzy, by now you have read all these wonderful responses and you know you are NOT alone. And you are NOT abnormal and you ARE worthy and you ARE beautiful and you DO have a right to your grief. You may vent here. This is a safe place. May God bless you.

Comment by Izzy on March 17, 2012 at 11:24pm

Thank you all for your very sweet words. Sadly I was going through a hard time in my life at that moment but like life things are going a little better right now. I have hardly no hair on my head but I made myself realize Iv had this disease my whole life why cry about it this time around. You all are very brave and strong women I hope one day I can be that strong also. Hugs to you all!!

Comment by You can do it : ) on March 18, 2012 at 12:35pm

Glad to hear things are looking up for you. Your attitude is really inspiring keep it up.

Comment by Ashley on March 23, 2012 at 9:15pm

Hi Izzy, I'm a crier too, even before I lost all my hair I cried a lot. People tell me I cry at the drop of a hat, but I can't help it. I'm on anxiety pills, but I still cry at times. I hate when people tell us how we're suppose to feel, tell us to get over it, they have no idea!! And you're right sometimes even the closest people to us just don't get it, they think that we should just go on, and that really pisses me off. This isn't like a pet died or we lost something trivial. Stay strong, we're all in this together

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