This morning when I woke up, the scalp was feeling very itchy. I was scratching it all over just before I went into the restroom to take a look in the mirror. When I got there I was not surprised to find three spots in addition to the infamous spot in the back. I didn't even think twice. I took the clippers and took off what was too long for my razor and then it was back to blade on scalp again, as I clean shaved the head to once again be completely bald. I took my shower to take my mind off of it for a while, then it was back to square one, razor in hand. I have realized that hair is not important. Plain and simple.
My mother told me the other day that I "should not accept this disease as something permanent because there have been people who have been sick and they would not accept it, they say "no I am not going to have this"... and they got better. But, you have accepted Alopecia with suck ease".
I told her that yes I have accepted Alopecia and being bald. I have accepted that apart from my Fibromyalgia Disease I am healthy. Alopecia has not crippled me. It has not bed ridden me. It hasn't caused me to change my life in any way. The other thing that has changed is just way other people feel or think when they see me with no hair. I know that my mother is worried about me and that she can't really stand the thought of her only daughter being diagnosed with two different diseases, but especially one that alters my physical appearance. She even told me "You might not think that it effects me that you don't have hair, but it does. It's hard for me to look at my beautiful daughter and not remember her long, black hair, and not wish for her to have it back".
I know that it must be strange for others who know me... who have known me for my whole life, to now look at me without the long, black hair that I once had, and not either feel sorry for me, scared for me or scared for themselves that they too might contract this disease. It is human nature to fear the unknown, and since this disease is still somewhat rare, the average American has not yet heard of it. So, when they see a bald woman they must automatically think that we have caner or that we just shave our heads out of sheer pleasure.
I am one who is happy to educate to the best of my knowledge about Alopecia. I usually let people get curious and ask me a question or make a comment to me. But, sometimes I see them looking at my head and being pretty damn sure that I dont have any hair under my bandanna, (the looks on their faces are priceless) I will offer the information. "I have Alopecia Areata which is an auto immune disease that causes my hair to fall out". After I tell them what's "wrong" they let out a sigh of relief as if they feel better now knowing that I am not contagious. I usually end up laughing inside my head, because they seem so frightened like they don't want to come near me, not alone touch me.
Ok, so here I am Beautiful, Bald, Bold and Under Control. I love it. I love me!

Views: 6

Comment by Mary on June 14, 2009 at 10:06am
How sad that your mother reacted as she did, and said what she said. I experienced the same thing with my only sibling - my older brother (who lives in another state). When I shaved my head last year, he refused to look at the photos of me that I emailed family and friends. He didn't want to watch the videos of me on YouTube. He basically rejected what was happening to me.

Finally, I confronted him on the phone and told him he had been extremely unsupportive of me during a very difficult time, and that it had upset me greatly. He responded that he thought I was being "militant" in my refusal to wear a wig, and in speaking out about the right of bald women to be bald in public! He thought I was "choosing" to be bald by shaving my head and go out uncovered!

I set him straight by: (1) telling him I only had to shave patches of stubble for 2 months before it was all gone, and that I'm completely hairless and smooth now and there's nothing that will bring back my hair, (2) asking him if he'd reject my appearance if I had a life-threatening disease or if I'd been disfigured or disabled in an accident, and (3) describing to him in detail how uncomfortably hot and itchy I find wigs - and asking him if HE would wear one (he's lost most of his top hair to male pattern baldness). He finally got it...like me, his head gets very warm, and he admitted he couldn't imagine wearing a tight-fitting full-head wig that kept heat locked in on his scalp.

We simply have to keep educating family, friends and strangers about AA, and asserting our right to be bald if that's the way we're most comfortable and that's our choice. I'm hoping the National Bald Out will be a beginning, and become larger every year.

Mary
Mary
Comment by Ajithkumar on June 14, 2009 at 1:21pm
Be Bold as ever!
Comment by Kristen Viveros on June 14, 2009 at 1:31pm
Everything is still going well. Everyone is getting used to seeing me without hair. Thank you Mary for the story about your brother. My brother doesn't think anything of it... or at least he doesn't say anything to me about it.
Thank you Ajithkumar... yes I am bold and I will always be!

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