Well, I didn't like the anti-androgen after three months anyways. I gave it a fair shot but just didn't 'feel good' on it. After being off a few days, I feel much better. So, hair or not, I guess it's worth it. I'm definitely suspect of PCOS. I will say though, the birth control pill after a few months greatly helped with the oily skin and acne. How long ago did you start the pill? After I started, my shedding seemed normal after a month. At about two months, I noticed a big increase in shedding which has gradually slowed down. Some women experience telogen effluvium from starting the pill, but more commonly diffuse shedding from stopping. Maybe that explains what's been going on with you lately? I think this would all be easier with an explanation/diagnosis. At least you could tell people what you have. Keep your chin up and keep looking for a hairpiece if you think you need one. I didn't purchase one but I found it at a hair salon in Houston called Shear Attitude. It was a human hair clip on topper but VERY expensive. WE ARE NOT OUR HAIR!!!!
I was glad to hear your shedding slowed down and am sorry it didn't last. Mine stopped for about 10 days and started again today - not terrible but definitely over the 100 hairs we are suppose to lose. I had to abandon the spironolactone I told you about. I just couldn't handle the side effects; mainly dehydration. I was always thirsty and could not sleep through the night anymore for the bathroom trips. I figure sleep is more important than hair! Hopefully, the acne won't get worse as it gets out of my system. Have you ever had a workup for PCOS? Some of the symptoms are oily skin, acne and hairloss. It may be worth checking it out. I'm seeing an endocrinologist next month for the workup.
As far as hairpieces - I actually tried on a clip on topper today. I REALLY liked it. It was human hair and could have easily been cut to fit my style (or what my style should be!). I didn't purchase it because it was $675. I don't think my husband would have liked the price on that one!! I have a ton of baby hair and with the recent slow down in shedding I'm going to try and wait a little longer.
That is a darn good question, Dawn. I used to work for the GA Geologic Survey as an Advanced Geologist. We drilled into the Floridan aquifer collecting cuttings every five feet to log the geology and identify the aquifers. We ran a ten mile long seismic line through that area and the information from the well was used to interpret the seismic data. By doing this, we learn how to manage water use from the Floridan aquifer, identify other viable aquifers, and hopefully avoid a law suit from Florida and South Carolina. The drillers and I ate a lot of lunches at the Nahunta Dairy Queen.
Hi Dawn,
I did a little work in the Waynesville vicinity a few years ago. I was on my way to a drill site when I had an interesting encounter. If you are coming from Brunswick and turn left in metropolitan Waynesville, at the school, then bear right at the fork, you come to a long, straight section of the road. One day, while driving on that section, I notice an armadillo waddling across the road toward Little Satilla Swamp. As I watched, the biggest gator that I have ever seen charges out of the swamp and grabs the armadillo! I watch with my mouth hanging open as the gator, with his head at an upward angle, crunches on the 'possum-on-the-half-shell. As I got closer to the alligator, he took his prey into the swamp. I will never forget Waynesville for as long as I live. I met some nice folks there. I did a little research and found out that it was a really happening town about 200 years ago - one of the oldest in the nation.
Thanks Dawn for the welcome, it means alot to know that someone was so willing to click on respond especially me not putting alot of information about me and my situaion orginally. Thanks, again
Hi Dawn! So sorry I haven't replied to you before now. I have been out of town. Thanks for your reply and I admire your strength in not letting this control your life:) I have a girl here in Memphis who is wonderful with wigs, hairpieces, etc. I have a hairpiece that I pull my hair through and it looks soooo natural. I have a friend with universalis so she wears a full wig and it's natural hair. I would be glad to get in touch with either or both of them. I know you would be pleased.
Hi Dawn!
I hope I am responding to you in the correct spot. I am looking at this on my phone, so some webpages don't format correctly on my phone. Ah, who am I kidding: I just can't figure out some of these things on my phone!
Thanks for the welcome!
I wanted to let you know where I get my wigs ... I have a friend who is a hairdresser ... and she has alopecia! A client to my husband ... I think 8 years ago ... introduced me to her hairdresser who had recently developed alopecia.
She orders wigs for herself and me and anyone else she meets who loses their hair due to alopecia or chemo and just charges her cosmetologist rate, which really helps since these things can be way overpriced.
I must say, my hair did not stick around long enough for me to try out the partial-type wigs.
For years we were ordering Revlon / Tressallure / and I think there's another similar line wigs. These were synthetic wigs, and although the hair is amazingly real when you first buy it, the fibers seem to dry out and mat up and it looks rather gnarly. For me, I was needing to reorder every 6 weeks or so ... and they would run about $90 + I paid for my friend to style it. I also discovered that buying longer haired wigs worked better for me ... as the ends got a matted / split-ends-outta-control look, My friend wowuld trim off the bottoms and I would have like renewed hair for a few more weeks.
A coworker to my friend also orders hairpieces, but she does have hair ... it's just really really thin. She has tried some of the partial type wig things. Some of them look like a wig that you pull your hair thru and it blends with your hair ... it looks nice on this girl, but I wonder how much of it is due to her years of doing hair?
Thing is: those wigs are ITCHY!! I found it helped to order wigs that have a lot of the monofilament cap to it for a scalp-look.
years ago, I had Noriko wigs ... those were nice, but the hairline/realistic looking scalp/part wasn't on the ones I had purchased through a salon in burbank. (a referral from a friend's-friend).
I just started ordering a custom wig thru my friend. I don't know what it would retail at, but I LOVE having human hair. This one I got in December, and I just placed an order -because it takes 3 months to process- but the hairs look nice, it's just shedding. I joke that my wig has alopecia.
This newer custom wig thing has a cap that is way more comfortable (not that horrid lacy-itchy-cap), and although I think it's supposed to use wig tape, I found it actually sits pretty securely on my head. The tape is messy and sorta gross. I only use it IF I think to, for Legoland trips, etc.
So this company that I ordered my wig from is called 'New Concepts Hair Goods, Inc'. From looking at their catalog, looks like (for you, since you have very thinning hair?) they offer a 'micro-link attachment system' and stuff to achieve 'partial integration' and this looks cool: called a 'Seamless Hair Extension System' for thinning hair ...
But if you've already seen all that, I'm sorry to be repetitious...
Wow Dawn, you look really young, I thought you were in your early twenties. I will keep you in my prayers concerning the heart condition. You, like most of us Alopecian women, are beautiful, stay blessed!
Hello Dawn,
Thanks for the welcome! I will be on the lookout for someone in your area to help you out with hair, should you desire. Otherwise, should you ever feel like bringing your son to Disney in Orlando, remember that we are a quick hour drive away!
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I was glad to hear your shedding slowed down and am sorry it didn't last. Mine stopped for about 10 days and started again today - not terrible but definitely over the 100 hairs we are suppose to lose. I had to abandon the spironolactone I told you about. I just couldn't handle the side effects; mainly dehydration. I was always thirsty and could not sleep through the night anymore for the bathroom trips. I figure sleep is more important than hair! Hopefully, the acne won't get worse as it gets out of my system. Have you ever had a workup for PCOS? Some of the symptoms are oily skin, acne and hairloss. It may be worth checking it out. I'm seeing an endocrinologist next month for the workup.
As far as hairpieces - I actually tried on a clip on topper today. I REALLY liked it. It was human hair and could have easily been cut to fit my style (or what my style should be!). I didn't purchase it because it was $675. I don't think my husband would have liked the price on that one!! I have a ton of baby hair and with the recent slow down in shedding I'm going to try and wait a little longer.
St. Cloud is by Kissimmee/Orlando area..
Thanks for the welcoming!
How are you?
I did a little work in the Waynesville vicinity a few years ago. I was on my way to a drill site when I had an interesting encounter. If you are coming from Brunswick and turn left in metropolitan Waynesville, at the school, then bear right at the fork, you come to a long, straight section of the road. One day, while driving on that section, I notice an armadillo waddling across the road toward Little Satilla Swamp. As I watched, the biggest gator that I have ever seen charges out of the swamp and grabs the armadillo! I watch with my mouth hanging open as the gator, with his head at an upward angle, crunches on the 'possum-on-the-half-shell. As I got closer to the alligator, he took his prey into the swamp. I will never forget Waynesville for as long as I live. I met some nice folks there. I did a little research and found out that it was a really happening town about 200 years ago - one of the oldest in the nation.
I hope I am responding to you in the correct spot. I am looking at this on my phone, so some webpages don't format correctly on my phone. Ah, who am I kidding: I just can't figure out some of these things on my phone!
Thanks for the welcome!
I wanted to let you know where I get my wigs ... I have a friend who is a hairdresser ... and she has alopecia! A client to my husband ... I think 8 years ago ... introduced me to her hairdresser who had recently developed alopecia.
She orders wigs for herself and me and anyone else she meets who loses their hair due to alopecia or chemo and just charges her cosmetologist rate, which really helps since these things can be way overpriced.
I must say, my hair did not stick around long enough for me to try out the partial-type wigs.
For years we were ordering Revlon / Tressallure / and I think there's another similar line wigs. These were synthetic wigs, and although the hair is amazingly real when you first buy it, the fibers seem to dry out and mat up and it looks rather gnarly. For me, I was needing to reorder every 6 weeks or so ... and they would run about $90 + I paid for my friend to style it. I also discovered that buying longer haired wigs worked better for me ... as the ends got a matted / split-ends-outta-control look, My friend wowuld trim off the bottoms and I would have like renewed hair for a few more weeks.
A coworker to my friend also orders hairpieces, but she does have hair ... it's just really really thin. She has tried some of the partial type wig things. Some of them look like a wig that you pull your hair thru and it blends with your hair ... it looks nice on this girl, but I wonder how much of it is due to her years of doing hair?
Thing is: those wigs are ITCHY!! I found it helped to order wigs that have a lot of the monofilament cap to it for a scalp-look.
years ago, I had Noriko wigs ... those were nice, but the hairline/realistic looking scalp/part wasn't on the ones I had purchased through a salon in burbank. (a referral from a friend's-friend).
I just started ordering a custom wig thru my friend. I don't know what it would retail at, but I LOVE having human hair. This one I got in December, and I just placed an order -because it takes 3 months to process- but the hairs look nice, it's just shedding. I joke that my wig has alopecia.
This newer custom wig thing has a cap that is way more comfortable (not that horrid lacy-itchy-cap), and although I think it's supposed to use wig tape, I found it actually sits pretty securely on my head. The tape is messy and sorta gross. I only use it IF I think to, for Legoland trips, etc.
So this company that I ordered my wig from is called 'New Concepts Hair Goods, Inc'. From looking at their catalog, looks like (for you, since you have very thinning hair?) they offer a 'micro-link attachment system' and stuff to achieve 'partial integration' and this looks cool: called a 'Seamless Hair Extension System' for thinning hair ...
But if you've already seen all that, I'm sorry to be repetitious...
Thanks for the welcome! I will be on the lookout for someone in your area to help you out with hair, should you desire. Otherwise, should you ever feel like bringing your son to Disney in Orlando, remember that we are a quick hour drive away!
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.