Hello Susan thank you so much for your lovely message.nice to know that I am not alone with this.it sure can get to you.I some time's say why me but on the over hand why anyone.whish it would grow back but have been told that will never happen .I was scanning ebay this evening they have what they call a thin skin full lace wig on the but it cost some.looked good it was indian hair around £500.00 it was for a small head as well witch came as a shock.really wanted to get it but it's alot of money.think I will have to save for it.will let you no if I find anything,until then do take care and thank you god bless
Hello Susan Thank you for your message I have alittle hair on top witch I do shave because it become's sore.the lace wigs I am fine with.it's the cost I have spent so much on so call human hair lace wigs you would be shocked.I have even gone out of my own town.gone with out food and all sorts.can not look at myself do not have a partner because of my hair loss so very much alone..if you no anyone you can put in in touch with to make me a wig I would be so greatfull.by the way I have a small head but a big heart
Nope. Wore Sandy NYEve and to work the 1st, and will test drive Rizzo soon. No work scheduled yet, but I will print out the syllabus and get started on assignments at the college tomorrow for my class. Must go to some personnel agencies or network...but at least some friends came to my financial rescue this holiday, George Bailey Style. The NYEve friend lives 40 minutes away, and my local friend may go out-of-state this week, so I will be on my own!
Hope your start to the new year was reflective and peaceful. I ushered it in at the home of someone from my hometown (high school, church), and we got to talk like sisters. Felt good.
Hi Susan...thanks for the compliment. Your dogs are darling. My puppy is a rescue too...her mamma was rescued and she had 4 pups...I adopted my Missy and they drove her 199 miles to get her to me. No I haven't tried any hats or scarves. I've never been a "hat person"....don't think I've ever wore one. Hey...we're almost the same age but I have a couple of years on you. As soon as I can afford it I'm going to get me some cute turbans, hats and so on. Yes I do need to get out more. I did when the hair loss wasn't so bad, but when it got to having to wear a wig all the time, I'm not dealing with it as well. Haven't been to the gym in ages. I've just GOT to get a grip on this thing for my own good. The combination of the hair loss and the weight gain has kept me in even more. I have a whole closet full of clothes that don't fit...even my underwear (blush) doesn't fit anymore...so that keeps me in even more. I think I'll get a LOT of help and encouragement here. I have already and it's helping a bit...but I just joined. You have a great day and thanks for writing.
Hi Susan, I received your invite to Wisconsin Alopecians. I am the mother of a young women with alopecia. Where do you meet and what dates? I am interested in possibly joining the group. It would be nice to talk to other mothers who have experienced their child's journey with this disease.
Hallo Susan, thank you very much for your good warm message. You gave me a very good advise. I felt myself very often alone ,I was sitting very often about my problem, but I decided to begin another life now. I will make my life more interisting and be more aktive, maybe I will find Mr Right also, If not, I will be happy alone.
I saw you photos and I found you are a very nice woman. I think, it was also a large problem for you at the beginning when you have lost your hair, but you have managed this problem, I must manage this problem too.
I was in your country 1 year ago, I was in California.
Best wishes from Duesseldorf,
Natalia
That is great that you have 3 adopted dogs =) Yes these companion animals are my world, and even more so with all my medical trials in the last few years. Animals are the best!
Good morning Susan. Melbourne is on the east coast of Florida about 45 mins south of cape canaveral. Im actually 3 miles from the east ocean but a native Michigander. Ive lived here for just over a year now and am in love with the weather. Thought id miss the snow but it hasn't happen yet.
I am a little ashamed to say I have never been to naaf conference. I would love to go but am a 24/7 mom to 5 kids and simply never have time to escape to one. I know, unlike my kids, the conferences aren't going any where and i will eventually attend. Just have to be patient and wait till the time is right. Great thing come to those who wait, sometimes.
Hi Susan thanks for writing back. There used to be a support group out at Freodeart hospital is west Milwaukee some years ago. I had only been to one about 12 years ago. I recently found a few women from Mwaukee who's names were listed on the internet as contact persons. I called someone named Jennifer Trinko about 6 months ago and she told me that the group that was at one time still meeting there was now for kids or for parents with kids. But when I called her back about a month ago I was told that even that group had apperently disbanded because not enough people could get to the group regularly. So, I have to go. Got to get back to job search. Later, Thanks, Mark Hansen
L O, Soo - glad I can make you smile :)
The way I look at it, there's more than enough grief in life to go round - and there are certainly worse things to have happen than losing your hair. So if I can show that in a different perspective, and maybe make people see the funny side of things, that's Job Done for me!
You seem to have a handle on it as well, and dish out good advice.... it's cool to bat some witty banter about with ya! Some of us don't need hair to be ace, do we? ;)
I am very grateful for your words. I am starting to realise that this is a crucial point in both our lives.
My fiancee does not seem to be suffering as much as I am with this situation, although she is the one with alopecia.... I am the one reading about treatments and possible solutions/ consequences...I know what wig types there are and pro and cons of minoxidil and fue transplant
She initially was in denial and now she more aware of what the near future will reserve.
She is the most caring person in the world and thinks the world of me. And says she is happy as long as I am.
I must admit that for me, it is a horrible pain to see her having less and less hair on her head. The image I had of her is changing daily.
I should also admit that this influences how I am physically attracted to her.
she is the woman of my life and I do love her, but I fear that I will not be happy if I do not feel attracted to her.
This is the most selfish thing I have ever written and I am consumed with guilt and fear. I just dont know what to do anymore.
Thanks for the email Susan. I actually have a BFA it was my initial major in under grad and I was a middle school art teacher for a bit but always had the "tough" kids in my class as I think they were always my love =) So I went and got my masters in special ed specializing in behavioral issues. I always use art in my classes though and these kids are often excellent artists and musicians. Animal rescue is my other passion that is wonderful what you did. Thanks for sharing take care and have a great day =)
Many thanks Susan for your kind words of encouragement its good to find a site like this where you can be excepted for who you really are :)
Kind Regards
Keith
X
Hi Susan, Thank you for the names of some wig companies that sell more natural looking hair. I think my biggest problem is going to be finding a natural looking wig in a petite size. I like many of the Jon Renau wigs but the petite selection is very minuscule. I think you mentioned needing a petite size as well. Have you found that it is possible to special order any of the Jon Renau, or Rene of Paris wigs in a Petite size?
Joan
Joan
Hi Susan, I have only been to one wig shop in Medford (it is the biggest one in town) but I could find nothing that looked slightly real and the selection for petite sizes was very limited. It seemed like the gal was ready to sell me anything, even if the style was very different from my wishes. That experience has left me feeling like I will have to end up with a wig that looks unreal. Does synthetic hair always look so shiny and fake? Is it best to get a human hair wig? Is it possible to find a petite, mono-filament, front lace wig for the most natural look? I am so new to this...any help is appreciated.
Thanks for the kind comments, Susan! DC really is a great city! So beautiful - so much to do and see! Hope you are have a great Fall (autumn in WI is the best!).
Susan, Thank you so much for your kind words, I am with a man who is there for me but i still feel alone, I dont think anyone can comprehend what we go through unless you've been through it yourself. thats awesome that your so close id love to go get some lunch one of these days.
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Hello Susan thank you so much for your lovely message.nice to know that I am not alone with this.it sure can get to you.I some time's say why me but on the over hand why anyone.whish it would grow back but have been told that will never happen .I was scanning ebay this evening they have what they call a thin skin full lace wig on the but it cost some.looked good it was indian hair around £500.00 it was for a small head as well witch came as a shock.really wanted to get it but it's alot of money.think I will have to save for it.will let you no if I find anything,until then do take care and thank you god bless
Hello Susan
Thank you for your message I have alittle hair on top witch I do shave because it become's sore.the lace wigs I am fine with.it's the cost I have spent so much on so call human hair lace wigs you would be shocked.I have even gone out of my own town.gone with out food and all sorts.can not look at myself do not have a partner because of my hair loss so very much alone..if you no anyone you can put in in touch with to make me a wig I would be so greatfull.by the way I have a small head but a big heart
Nope. Wore Sandy NYEve and to work the 1st, and will test drive Rizzo soon. No work scheduled yet, but I will print out the syllabus and get started on assignments at the college tomorrow for my class. Must go to some personnel agencies or network...but at least some friends came to my financial rescue this holiday, George Bailey Style. The NYEve friend lives 40 minutes away, and my local friend may go out-of-state this week, so I will be on my own!
Hope your start to the new year was reflective and peaceful. I ushered it in at the home of someone from my hometown (high school, church), and we got to talk like sisters. Felt good.
Hi Susan...thanks for the compliment. Your dogs are darling. My puppy is a rescue too...her mamma was rescued and she had 4 pups...I adopted my Missy and they drove her 199 miles to get her to me. No I haven't tried any hats or scarves. I've never been a "hat person"....don't think I've ever wore one. Hey...we're almost the same age but I have a couple of years on you. As soon as I can afford it I'm going to get me some cute turbans, hats and so on. Yes I do need to get out more. I did when the hair loss wasn't so bad, but when it got to having to wear a wig all the time, I'm not dealing with it as well. Haven't been to the gym in ages. I've just GOT to get a grip on this thing for my own good. The combination of the hair loss and the weight gain has kept me in even more. I have a whole closet full of clothes that don't fit...even my underwear (blush) doesn't fit anymore...so that keeps me in even more. I think I'll get a LOT of help and encouragement here. I have already and it's helping a bit...but I just joined. You have a great day and thanks for writing.
Hi Susan,
I received your invite to Wisconsin Alopecians. I am the mother of a young women with alopecia. Where do you meet and what dates? I am interested in possibly joining the group. It would be nice to talk to other mothers who have experienced their child's journey with this disease.
Hallo Susan,
thank you very much for your good warm message. You gave me a very good advise. I felt myself very often alone ,I was sitting very often about my problem, but I decided to begin another life now. I will make my life more interisting and be more aktive, maybe I will find Mr Right also, If not, I will be happy alone.
I saw you photos and I found you are a very nice woman. I think, it was also a large problem for you at the beginning when you have lost your hair, but you have managed this problem, I must manage this problem too.
I was in your country 1 year ago, I was in California.
Best wishes from Duesseldorf,
Natalia
I think your new group sounds awesome. You are JUST the person to run it!
That is great that you have 3 adopted dogs =) Yes these companion animals are my world, and even more so with all my medical trials in the last few years. Animals are the best!
Hello Susan thanks for the comment on my photos. Camber and Chloe are my pets and Boo is my dad's dog. I will be sure to add more pictures.
I am a little ashamed to say I have never been to naaf conference. I would love to go but am a 24/7 mom to 5 kids and simply never have time to escape to one. I know, unlike my kids, the conferences aren't going any where and i will eventually attend. Just have to be patient and wait till the time is right. Great thing come to those who wait, sometimes.
Hope you enjoy today new friend.
Paty
Hi Susan thanks for writing back. There used to be a support group out at Freodeart hospital is west Milwaukee some years ago. I had only been to one about 12 years ago. I recently found a few women from Mwaukee who's names were listed on the internet as contact persons. I called someone named Jennifer Trinko about 6 months ago and she told me that the group that was at one time still meeting there was now for kids or for parents with kids. But when I called her back about a month ago I was told that even that group had apperently disbanded because not enough people could get to the group regularly. So, I have to go. Got to get back to job search. Later, Thanks, Mark Hansen
The way I look at it, there's more than enough grief in life to go round - and there are certainly worse things to have happen than losing your hair. So if I can show that in a different perspective, and maybe make people see the funny side of things, that's Job Done for me!
You seem to have a handle on it as well, and dish out good advice.... it's cool to bat some witty banter about with ya! Some of us don't need hair to be ace, do we? ;)
Later!
- The (Social) Norm ;)
I am very grateful for your words. I am starting to realise that this is a crucial point in both our lives.
My fiancee does not seem to be suffering as much as I am with this situation, although she is the one with alopecia.... I am the one reading about treatments and possible solutions/ consequences...I know what wig types there are and pro and cons of minoxidil and fue transplant
She initially was in denial and now she more aware of what the near future will reserve.
She is the most caring person in the world and thinks the world of me. And says she is happy as long as I am.
I must admit that for me, it is a horrible pain to see her having less and less hair on her head. The image I had of her is changing daily.
I should also admit that this influences how I am physically attracted to her.
she is the woman of my life and I do love her, but I fear that I will not be happy if I do not feel attracted to her.
This is the most selfish thing I have ever written and I am consumed with guilt and fear. I just dont know what to do anymore.
Thanks again
jf
Kind Regards
Keith
X
Joan
Joan
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.