Hi Lynn, it was nice to log into my email and see a note from you. Your daughter and Melissa are the same age, and seem to be going through the same thing. Melissa's spots are along her hairline starting below her left ear, she has 4 spots as well. 2 of the spots grew together as one. Melissa is horrified of needles and will not do the shots, we tried when she was 9, she freaked out! We also use Rogaine and were using Clobetasol. I went out and bought the 3 pack of generic Rogaine when we found the 1st spot in March. We have not used much of the 1st bottle. Melissa doesn't much treatment this time around. 3 of the 4 spots are growing, and we just noticed the 4th spot the other night. It worried me when she started getting spots along her hairline, as I hear this is faster losing area and hard to grow back. But i'm pleased to see regrowth.

Ok, sorry so long. Please post again, i'd love to stay in touch!

Hugs,
Carla

Hi Mom,

Jeff in SFO

thank you! i actually did find a way to get my wig to stay on! =)

Dear Kristen: I'm sending very positive thoughts your way. I'm glad you've found something to trigger the eye lashes! A few years ago, at a Stanford Parent Support Group for Parents of Kids With AA, I met Dr. Vera Wang. Dr. Wang is a co-founder of the NAAF, and she practices at UCSF. She is known as a leading expert regarding AA, AT & AU. I wish there was some way you could check with her office to learn if there are any other treatments out there for AU? All of the beautiful people on this site have so much courage, inner strength and confidence to just go bald and say, "This is me." If it comes to it, I hope our kids would have the same attitudes. However, we have children, and we know things are rough enough going to school and growing up! We don't want our kids to go through any difficulties. If we can get this darned hair to grow back, let's do it! I'm sure you know what I mean. I hope you keep in touch. Without sounding like too much of a "Bible Thumper" I will keep you and your family in my prayers. Take care of yourself and those precious kids!!

Hello again, well we have tried what seems to be everything. We have done the cortisone shots in the eyebrows, they come then they go again. Just about every type of topicals, roggain, chemical reactions (dibutyal squarate, this causes a chemical reaction on the skin and is suppose to make the body fight against it,since it does not know what to fight against (SP)),creams, gels, and even steroid medication. I have trouble spelling some of these long words, that are made up for these things. We are working with the dermatoligist and our eye doctor one a new type of medication that is acutally for patients with glocoma (sp) one of the side effects was darkening of the eyelashes and eyebrows, and we do see it working. Fortuantly my 9 year old daughter has not shown any signs, but who knows what is in the future. Matthew seems to have always been my medical child, but he has not been sick since kindergarten. I have always thought that his ammune system was to strong, and it just has nothing else to fight. I am just hoping something will trigger the folicals to start again. Hope to talk again. Kristin

Hello Mom of 2, I also have 2 children of which my 13 year old son has AU, he was diagnosed when he was in 2nd grade. He started out with actually the nails, then the patches in the hair, in the last two years, he has lost his eyebrows, and now he only has a couple tiny patches of hair left. His eyelashes are now starting to fall out. He gets upset at times, he just wants to at least have his eyebrows back. So we have again started another treatment, with success, but I am afraid that if we stop, they will fall out. Lucky for us, he really has a great group of friends, who really look out for him.
Well enough right now. Tell me about your children. It is really great to actually be able to finally talk with other parents with the same problems and concerns that I have. We have just finally met other children with the same condition, and now he finally realizes his is not the only one. ---Kristin

Hi, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder

Thanks for letting me know. It's often harder on the parents than it is on the kids! There are many people around this site to support you. It might help to read my book -- you can get it on Amazon.com at a nice discount. Just google "If Your Hair Falls Out, Keep Dancing" and click on the Amazon link.
Let me know how you like it, and take care.

Hi Mom of 2~
Are your kids boys, girls or both? I know how hard it can be. I interviewed a lot of moms with children who have aa for my book, "If Your Hair Falls Out, Keep Dancing!" (That's my philosophy!) How are you doing? How old are the kids?
Just wanted to welcome you and say hello!
LeslieAnn