My twelve year old daughter Kiah has universalis. I just want to keep networking, learning what I can from others, and finding other kids that she can hopefully be friends with! We have been attending NAAF conferences and supporting NAAF for about 8 years now and want to keep doing as much as we can to raise awareness!
I am Miss Margaret, I hope you are in perfect condition of health. I went through your profile and took interest in it, i will like you to write me on this ID ( firstname.lastname@example.org ) I have something VERY important to tell you. Thanks
Hi Josh and Kiah, My daughter, Natalie, said she met you at the Capital. She works for a congressman in Washington D.C. It was during the NAAF convention. Someday I would like to attend one of the conventions. Anyways, I know you are organizing a fundraiser at Harley Davidson in September. I have a couple baskets to donate for the auction. One is a basket with coffee and mugs. The other baskets have an array of primary and intermediate books. Let me know how I get in touch with you...phone? E-mail?
Hello Josh and Kiah - A donation for the Bowl-A-Thon is being mailed to NAAF this week. Although a friend and I were planning to attend the event yesterday, storms were passing through during the morning (close to leaving time) so we decided it was not going to be good for 2 old ladies to be driving on I94. Really sorry to have missed it; we were looking forward to meeting you. Hope the event was a great success!!!
Hi Josh! It is nice to know there are other people in the area who have experienced some of the same issues as us. Your daughter is young. My daughter was a bit older before she lost all of her hair. It has been an interesting ride. My daughter is very independent and now lives in Washington D.C. and is doing very well. Yet, we both are willing and able to help in any fundraiser/ awareness event. Kiah is beautiful! She is at the age that tends to love winter. Enjoy the little snowfall we have gotten. If you hear about any events in the area, let me know. Thanks! Don't visit this site too often anymore. But will try to check in periodically.
Hello Josh and Kiah- In case you are interested, I just formed a new Wisconsin group in this organization so all of us Wisconsites and new members looking for local people could share local information and events. Hope you will join! ((Hugs)) Susan
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