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Comment by Hatcho on October 10, 2023 at 9:15pm

You can always watch my webinar with Dr. Donovan and Dr. Maryanne Makredes Senna 
https://www.youtube.com/watch?v=FXnA_wb6hMQ&t=203s

https://www.youtube.com/watch?v=rAnUL8ACSZI&t=254s

Comment by Hatcho on October 10, 2023 at 9:14pm

I have a Scarring Alopecia group on Facebook if you want to join you can make a request but make sure you answer all the security questions 
https://www.facebook.com/groups/179660093699

Comment by Carlos Alberto Sobrinho on August 1, 2023 at 4:32pm

I got news that Dr. Shapiro, a renowned specialist, had success with a patient, testing PRP with Naltrexone 3 mg. It is a case of checking, as I did not have access to the publication of the study.

Comment by Nana on July 21, 2022 at 1:29pm

Hello everyone, 

is this group still active?

I'd love to get to be in  touch and share about living with cicatricial alopecia.

Blessings ,

Nana

Comment by Chris on October 13, 2015 at 4:07pm

My bald spots  are on top and on right side. I was told my scarring alopecia was from stress. That is all the info I was told. Would using Rogaine  help any.

Comment by Veronicasteele on October 13, 2015 at 12:56pm

Hi! Is it possible to be bold and bald with scarring alopecia? do the scars fade? Or do we not have the nice skin that accompanies other types of alopecia?

Comment by Chris on October 7, 2015 at 6:10pm

Diagnosed 10 mos. ago and don't know much about it. Dr.not much help. She put me on MGP which got rid of sores. She had done a biopsy. Am healthy except for hair problem. What can I use on scalp that might help hair to grow. Any help would be appreciated. What is best place to order a wig. I have to have a petite.

Any help would be appreciated.

 

Comment by Debs on April 30, 2015 at 2:23am

Hi Manda, thanks for the info re aloe vera. It is a fantastic healing plant for many conditions. I am only using diet and natural renedies so I will give it a go. I pretty much ignore my hair loss now, just accept it as part of my life and use herbal supplements to try and reduce inflammation in my body to prevent other illness in the future. I appreciate your reply. Xxx

Comment by MandaDeuce on April 7, 2015 at 8:35pm

Hey  @Debs!! I hate this message is so late!! I have CCCA..for the inflammation i've had great results with using aloe vera juice! I drink it(not always lol) and I massage my scalp with it as a "pre-poo", I use it with my shampoo, and even spray my hair with a mixture of aloe vera juice, glycerin, and water....There are moments when my scalp is sore from inflammation and when I use the aloe vera in any way it's stops the inflammation. I haven't  seen any hair loss since I've cut my hair out and started using it. I've actually seen much growth. I equate that to the aloe vera and my It Works Hair Skin Nails vitamins...i'm praying it stays but then again I am comfortable with whatever happens! Hope this helps! and good luck!! 

Comment by Debs on October 15, 2014 at 6:57am

Hello Ladies, thank you for responding. I stopped all meds back in February and am just focusing on looking after my health. Any holistic strategies anybody has found useful for reducing inflammation in their body I would love to know. I have also now developed episcleritis - inflammation in my eyes - not a serious condition but the cause is inflammation the same as my FFA.

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