Replies to This Discussion

Permalink Reply by Rose Marie' on July 8, 2009 at 4:45pm

Hi Aimee

In my daughters case she has had every type of alopecia in the last six years. AA, AT and AU twice. She currently has about 70% regrowth with eyelashes and brows back. It's the same old story Aimee, nobody can predict what's going to happen and if and when it is going to happen. I think that is the very worst we have to deal with, the lack of control can become crippling, so do your best to keep moving forward.

Hang in there, be proactive with this condition finding things that help you, whether they be support or more concrete things like your new hair.

If you ever just want to chat come into my page and say hi.

Take care

Rosy

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Permalink Reply by Ronda on July 8, 2009 at 10:10pm

HI Aimee.
Yes it is hard to understand why, and when.
Mine just all went at once.
I really do miss my hair on my head and my eyelashes.
Think about it you save on razors and shampoo and coloring your hair.
I have 13 wigs in all.
And you can change as often as you like.
Hang in there.I know where you are coming from.

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Permalink Reply by Blessed Soul on July 9, 2009 at 1:07pm

I am afraid its true Aimee. My alopecia also progressed this way, from AA to AT to AU.
I will always pray that God gives u strength to go throu the tough time.
God bless,
Priya

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Permalink Reply by Lori Van Decker on July 9, 2009 at 2:15pm

Not to alarm you, but that was the progression for me. But everyone is different!

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Permalink Reply by Jennifer Krahn on July 9, 2009 at 7:43pm

Hey Aimee,
I'm right with you...okay ahead of you. I've lost it all. Thankful for legs armpits and naughty bits (why not) but I do really miss the brows but I'm becomming quite the brow artiste. It's another adjustment...and it does get better. You're gorgeous and always carry yourself that way.

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Permalink Reply by Karina Louise on July 9, 2009 at 11:58pm

Hi Aimee,

I don't think there is a 'normal' progression, it's often said that the only thing predictable about alopecia is its unpredictability.

In my case, my alopecia actually started with the loss of an eyebrow before I ever lost hair on my head. That eyebrow did grow back and then a couple of years later, I started losing hair on my head. I lost my eyebrows, lashes and other body hair (like legs and arms) while I still had enough hair on my head to cover up the bald patches. All the hair on my head stopped growing last year and I was very close to AU save for a few random body hairs.

Now, I have a lot of regrowth on my head but still no sign of lashes, brows or much body hair. Alopecia is so frustrating, if only you could chose where to lose hair from (ie. I'll switch my underarm hair for some eyelashes, thanks!)

Hang in there, wishing you every success with regrowth. You're pretty new to this, so you still have a good chance of regrowing the hair.

K.

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Permalink Reply by Amy on July 19, 2009 at 1:34pm

I have at times (AA 20 years on and off) lost patches of arm and leg hair and once, small spots in brows and about 10 lashes on one eye...they all ultimately grew back. Currently I have my worst ever AA- abou 90% loss, patchy loss of arms-legs, one spot in each brow. I'm hoping that it doesnt progress, but as it's AA, we all know, no one knows.

Still, I have experience in losing spots on the body and then regrowing them. I've had full remissions with no AA in the interim. So, body loss doesnt always progress to AU.

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Permalink Reply by Christine on July 24, 2009 at 1:37pm

Hi Aimee,
When I read this is was as if I could have written it myself, the only difference is I've lost my eyebrows in spots all along, I also noticed that I have little leg hair, actually none from ankle about half way up, Ive always lost spots, progressively worse each episode on my head with full regrowth in between just to happen again, I did lose the lower lashes on one eye, I have tried to be positive about my AA, thinking to myself, it always grows back and so far I've gotten by not wearing a wig (although last big loss I bought one) But the loss of eyebrows and leg hair scares me, as I think it means AT,AU I was not young when I developed AA, mid 40's so I thought that was on my side, but I have had eczema most of my life and hay fever and I have read that people who also lose in the Ophiasis pattern have a 75% chance of going AT,AU. I can tell you this upset me, I am struggling still (7yrs) to accept this, and most of the time think I'm doing pretty good, but I will not lie, I want my hair to stop falling out, and grow back. I hold onto the fact that AA is so variable. Christine

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