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What a feeling that must be !! So happy for you Nicole :)
Hi Nicole,
How long can you take Tofacitinib? Your progress is amazing!!!
HI Nat!
Most doctors work to try to reduce your dosage over time, but currently, most people need to stay on it to keep their hair.
I currently have no plans to decrease my dosage.
I personally have no problem taking a daily medication to maintain my bodys autoimmune balance.
You will be in such good hands with Dr. Fil he is amazing and so calming and reassuring!
It's great to hear. I can't find any good doctor in my area. I have an appointment with Dr. Fil on November 28th. Please text me if you can meet for coffee. I appreciate your support!
HI Nat!
So bummed im going to be working in new jersey that day but lets talk after your appointmet! If anything changes and I can meet you i will let you know!
Hi Nicole! Did you go to Columbia university in the United States for your appointment? I’m looking for a doctor to visit about my condition
yes just sent you his info in a separate thread!
number is
212-326-8465
Dr Kabigting
Love him!!
Hi guys,
Just a wee update from me. I started the Beacon tofacitinib on the 25th of October with zero eyebrows, 50% eyelashes and around 5% head hair. I had a wee cold to start with but I had it slightly before starting, but it went away pretty quickly with some good old TLC.
My head hair loss progressed rapidly within this time frame but I think it was just hair that was already gone. I have noticed significant difference in my eyebrows. I had literally none and now I have lots of white hairs back. Please see the photo attached. I will take more photos shortly for full progress but this seems like a good start to me!
All the best.
Hi Steve
did you find a doctor to monitor your blood? I asked a dermatologist whom I previously attended and she replied by saying she was unwilling to supervise as would my GP as the drug is unlicensed I would’ve too worried to take it without medical supervision /advise
.... and great to see you’re responding! Good start. There’s a private medical company ( (aspire) I’ll check with and let you know how I get on- look forward to hearing of your progress :-)
great Steve!
Would love to see pics in a month!
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