Tofacitinib Results after 9 Months

Hi All,

Here are my results after 9 months.

Notice, virtually no results until about 5 months

Note that I kept buzzing my head the entire time, hence no growth in length, just filling in.

XELJANZ%20RESULTS.jpeg

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Permalink Reply by Manesh (AKA) BiggBaddBoss on December 19, 2018 at 12:35pm

Hi Nicole,

you look amazing. I have sent you a message regarding request for details for generic supplier.

Thanks

Permalink Reply by NicoleT on December 21, 2018 at 9:32am

Hi!

I replied back to you I believe with email addresses!

Thanks!

Permalink Reply by JeffreySF on December 21, 2018 at 1:15am

Hi Nicole,

Your results look pretty darn good!

Were you in a trial or on your own?

Jeff

Permalink Reply by NicoleT on December 21, 2018 at 9:31am

Hey JeffreySF,

I am under the care of Dr. Filamer Kabigting at Columbia University Dermatology in NYC, but not a trial, just a prescribed dosage.

Thanks!

Permalink Reply by JeffreySF on December 21, 2018 at 1:13pm

Interesting! 

Did your insurance pay for the medication?

Permalink Reply by Smitty on January 28, 2019 at 2:56pm

Hi Nicole,

I am new to this site and was wondering if you might answer some questions for me.  I have been dealing with AA/AU for about 10 years.  I have regrown my hair some, but last year, had a real setback and I want to try Xeljanz.  I was denied  insurance coverage (par for the course on this disease).  I was wondering if your doctor at Columbia is doing your labs. Is he the one that prescribed Xeljanz for you?  If so, does he know about the generic and is still willing to monitor blood work for you?  I am hoping to find a doctor that is willing to monitor my bloodwork if I go the generic route.  Thank you. I want regrowth, but "monitored regrowth".  I really appreciate your help!

Permalink Reply by krishna sharma on December 21, 2018 at 4:48am

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Permalink Reply by annoyingdesigirl on December 22, 2018 at 8:35am

Hi! My family’s from Bangladesh and my dad’s actually going to go visit next month, so I was going to tell him to go ahead and bring me back a few packs from Beacon. Do you suggest I see a dermatologist first, however? I haven’t seen a dermatologist in years because I kinda just gave up on it, honest. If so, does anyone here know any good /affordable/ dermatologists in Los Angeles? For reference, I’m 20 and I have AU.

Permalink Reply by Nat on December 22, 2018 at 9:47am

Hi, I would recommend to get it. It's so cheap. Dermatologists order TB test, Hepatitis B and C. Other than that they don't do any more testings.

Permalink Reply by NicoleT on December 22, 2018 at 12:06pm

I agreed with Nat! If you have someone going definitely have them bring a bunch back it’s so affordable there! 

Permalink Reply by Football fan on December 24, 2018 at 1:00am

Dr Madkan is good  and has a lot of Alopecia patients but she doesn’t take insurance which is a pain.Her office is on Wiltshire in Santa Monica.

Permalink Reply by Ashy on December 22, 2018 at 8:02pm

For us Europeans: Wikipedia says this "Tofacitinib was not approved by European regulatory agencies because of concerns over efficacy and safety.[5] Animal studies with tofacitinib conducted prior to human trials showed some carcinogenesis, mutagenesis, and impairment of fertility.[6]

The most commonly reported adverse reactions during the first three months in controlled clinical trials (occurring in greater than or equal to 2% of patients treated with tofacitinib citrate monotherapy or in combination with DMARDs) were upper respiratory tract infections, headache, diarrhea, and nasopharyngitis (the "common cold")"

Tofacitinib is required by US FDA to have a boxed warning on its label about possible injury and death due to problems such as infections, Lymphoma and other malignancies which can arise from use of this drug.[3] Serious infections leading to hospitalization or death, including tuberculosis and bacterial, invasive fungal, viral, and other opportunistic infections, have occurred in patients receiving tofacitinib. Epstein Barr Virus-associated post-transplant lymphoproliferative disorder has been observed at an increased rate in renal transplant patients treated with tofacitinib while on immunosuppressive medications. Patients are warned to avoid use of tofacitinib citrate during an "active serious infection, including localized infections."


Always good to know. Think I'll wait a bit :)

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