Alopecia World
www.alopeciaworld.com
Update: 1 year on Tobacitinib!
HI All!
March 1, 2019 marked my 1 year Tofacitinib.
Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.
Started on 10mg per day and bumped up to 15 mg per day in August of 2018.
I saw my doc at Columbia University in NYC on my 1 year mark.
He drew my labs and everything came back great!
I've currently been on 3 pills per day of Tofacinix (approx 15mg per day with probable slight dosage variation due to it being a generic)
My doc has me starting to wean off the meds, here is his plan for me:
I went down to 2 pills per day (10 mg per day) starting March 1,2019
After 3 months, if no shedding, no patches, he wants me to go down to 1 pill per day.
After 3 months, if no shedding, no patches, he wants me to try to go off completely.
Update on Pfizer Xeljanz co-pay coupon. The Co-Pay coupon is now 3 months FREE
You can use it once per year. It wasn't free for me last year, but it is now!
I called in and activated the coupon with Pfizer and next day walked out of the pharmacy in NYC with 180 free pills of Xeljanz. So I will be on the name brand for 3 months and then will switch back to my stockpile of Beacon generic.
No side effects. Current pics below. Last time I buzzed was Dec 16, 2018
Also a baseline pic from March 1, 2018
Thanks for all of your support guys and wishing everyone here healing in whatever way it comes.
Love of love,
N
Replies to This Discussion
-
Permalink Reply by magmck on
-
Hi Nat
last question ! Re prednisone. Did you take 60 mg 3
days each month or did you take them daily ?
Thanks for your help !
-
-
Hi Magmck,
I took 60 mg/day every day for 30 days, then 50 mg/ day every day for 30 days. The plan was to reduce 10mg each month. But I had to reduce quickly due to side effects. My third month I took: First week 40 mg/ day, Second week - 30mg/day, third week 20mg/day, fourth week - 10 mg/ day, fifth week - 5 mg/day.
I think that 60mg per day was too much for my weight (140lb).
Please be careful with Prednisone.
Good luck!
-
-
hello, I am a bad responder of xeljanz in the hair, it will be 1 year and 4 months, I developed a strategy I take 10 mg of generic xeljanz and 2 mg of generic baricitinib I have not tested in the laboratory I hope to trust beacon, I have already tested tofacinix, I paid 650 euro and I have to pay a new 650 euro the laboratory. if any of you can do it cheaper or for free I can send some pills. it's been a week since I'm under xeljanz and baricitinib. I'll let you know if it works because baricitinib is an inhibitor jak 1,2 and xeljanz 1,3 according to some research classes 1, 2 are more effective especially ruxolitinib
-
-
Good luck Kevin ! Can I ask how much hair growth have you had with just using xeljanz? Was you AU?
And good luck Kevin I hope you get all your back !
Kind regards
-
-
Good luck with your new therapy. I too am looking at starting generic xeljanz from beacon and also concerned if drug is genuine and safe. I finally made contact with beacon and looking to find a reputable laboratory to test a sample of the medication. Please let me know what you find out and I will do the same.
Cheers
TS
-
-
I’m shedding a lot! Please if someone knows something that helps, DM me.
-
-
Would love to know also. I stopped taking it because of the shed. Was losing the hair I had left and got too scared.
-
-
What do you mean? Did u lose your hair because of Xeljanz?
-
-
After a few days of taking zelijanz I started shedding hair rapidly all over. Including my eyebrows which I’m trying to hold on to as long as possible. Got scared and stopped, wondering if anyone has a similar experience.
-
-
I’m taking Xeljanz 15mg everyday. I’m shedding really much hair.
When you stopped did your hair stopped shedding?
© 2024 Created by Alopecia World.
Powered by
