Update: 1 year on Tobacitinib!

HI All!

March 1, 2019 marked my 1 year Tofacitinib.

Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.

Started on 10mg per day and bumped up to 15 mg per day in August of 2018.

I saw my doc at Columbia University in NYC on my 1 year mark.

He drew my labs and everything came back great!

I've currently been on 3 pills per day of Tofacinix (approx 15mg per day with probable slight dosage variation due to it being a generic)

My doc has me starting to wean off the meds, here is his plan for me:

I went down to 2 pills per day (10 mg per day) starting March 1,2019

After 3 months, if no shedding, no patches, he wants me to go down to 1 pill per day.

After 3 months, if no shedding, no patches, he wants me to try to go off completely.

Update on Pfizer Xeljanz co-pay coupon. The Co-Pay coupon is now 3 months FREE

You can use it once per year. It wasn't free for me last year, but it is now!

I called in and activated the coupon with Pfizer and next day walked out of the pharmacy in NYC with 180 free pills of Xeljanz. So I will be on the name brand for 3 months and then will switch back to my stockpile of Beacon generic.

No side effects. Current pics below. Last time I buzzed was Dec 16, 2018

Also a baseline pic from March 1, 2018

Thanks for all of your support guys and wishing everyone here healing in whatever way it comes.

Love of love,

N

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Replies to This Discussion

Permalink Reply by Angie on March 15, 2019 at 8:36am

What is the place you went to in New York and which doctor you saw?

Permalink Reply by NicoleT on March 15, 2019 at 9:58am

HI Angie,

I see Dr. Filamer Kabigting at Columbia University doctors Dermatology

at 51 W 51st St, New York, NY 10019

(212) 326-8465

Permalink Reply by Angie on March 16, 2019 at 5:20pm

Thank you so much!!!

Permalink Reply by Sad_Rapunzel on March 17, 2019 at 1:46am

Do you, by any chance, have his email?

Permalink Reply by Lauren on March 15, 2019 at 9:11am

I’m so happy you are having such amazing results!!!!  Thanks so much for keeping us all updated on your progress. Keeps me hopeful!! 

Permalink Reply by Ryan on March 15, 2019 at 1:56pm

Your regrowth is phenomenal! Very happy to see your spirits seem high!

I have been trying for over a month to order Tofacitinib from Beacon Pharma but have yet to receive a reply. Did it take a long time for them to get back to you?

Thanks for your updates they really help a lot!

Permalink Reply by NicoleT on March 15, 2019 at 2:07pm

Hi Ryan!

So weird some ppl are not hearing back from beacon and some ppl are!

do you have all the email addresses I posted?

Permalink Reply by Ryan on March 15, 2019 at 3:48pm

The only one I know of is shamiul@beaconmedicare.com.bd

I've also tried to apply another quick order on the site. I'll check your posts for the ktger email addresses, I was just curious if there had been a long wait before hearing back from them. Thanks for your reply!

Permalink Reply by Football fan on March 16, 2019 at 12:22am

Sent an email to the one one you did and always got a reply within 15 minutes. I always sent it when I knew they were in the pharmacy.Did not realize there are only 30 pills in a pack now I’m really glad I got 20 boxes.

Permalink Reply by Ryan on March 16, 2019 at 1:58am

Oh wow that's really quick for them to reply. I've sent more than one email to them over time but maybe they were overlooked by accident. I just happened to get a reply from tgem a bit  ago and replied with my order so hopefully they get back to me soon!

They mentioned about the Tofacinix 11mg, is there a difference other than how many mg there do you know?

Permalink Reply by Ryan on March 20, 2019 at 8:40pm

I finally got a response and placed and order :)

Did it take a long time for them to receive your wire transfer when you order?

Permalink Reply by NicoleT on March 20, 2019 at 8:49pm

About 24 hours for them to get your wire

then they will send you tracking within a couple days, then if you are in states is can take up to 14 days to arrive from when you receive the tracking number.

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