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Update: 1 year on Tobacitinib!
HI All!
March 1, 2019 marked my 1 year Tofacitinib.
Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.
Started on 10mg per day and bumped up to 15 mg per day in August of 2018.
I saw my doc at Columbia University in NYC on my 1 year mark.
He drew my labs and everything came back great!
I've currently been on 3 pills per day of Tofacinix (approx 15mg per day with probable slight dosage variation due to it being a generic)
My doc has me starting to wean off the meds, here is his plan for me:
I went down to 2 pills per day (10 mg per day) starting March 1,2019
After 3 months, if no shedding, no patches, he wants me to go down to 1 pill per day.
After 3 months, if no shedding, no patches, he wants me to try to go off completely.
Update on Pfizer Xeljanz co-pay coupon. The Co-Pay coupon is now 3 months FREE
You can use it once per year. It wasn't free for me last year, but it is now!
I called in and activated the coupon with Pfizer and next day walked out of the pharmacy in NYC with 180 free pills of Xeljanz. So I will be on the name brand for 3 months and then will switch back to my stockpile of Beacon generic.
No side effects. Current pics below. Last time I buzzed was Dec 16, 2018
Also a baseline pic from March 1, 2018
Thanks for all of your support guys and wishing everyone here healing in whatever way it comes.
Love of love,
N
Replies to This Discussion
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Permalink Reply by Ryan on
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Great progress!
I'm coming off Prednisone myself as it didn't show enough evidence to be working.Did you experience any acne while on Prednisone?
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I had a "moon" face on 60mg and acne. Reducing to 20mg is helping a lot with acne.
What dosage are you taking?
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Permalink Reply by NicoleT on
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Nat this is great!!!
I didn’t know you had made the move to xeljanz.
Looking beatiful!! I’m so happy for you. Are you still working with kabigting ?
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I have to thank you, Nicole, for all my progress! From this site and you, I found out about Xeljanz.
I am working with Dr.Kabigting but I increased Xeljanz to 15mg by myself. Also, I am working with a local rheumatologist who prescribed Prednisone and gives me Xeljanz samples for free.
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Permalink Reply by Sad_Rapunzel on
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wooow
what doctor gives you free pill?
Please please please give references! :)
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Hi Nat ! You look amazing !
Can I ask how long was you AU?
Did you take xeljanz first then predisilone? Or take them simultaneously?
And what is your regime for take the both tablets ? As I’ve heard you cannot take them both at the same time/day?
Thank you !
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Hi Singh,
My AU was for 1 year.
I take 5mg of Tofacitinib first thing the morning, then prednisone with breakfast. And Xeljanz XR 11mg before bed.
I reduced Prednisone from 60mg to 20m now.
I tried Prednisone before without Xeljanz and all hair fell out within 3 weeks of stopping Prednisone. I hope, that Xeljanz will be able to keep my hair when I get off Prednisone completely.
Thank you
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Thank you for replying Nat!
Oh cool, as I am considering taking it to give my head a boost as I have tried Pred in the past and 80% of my hair grew but fell out once of it. Do you know anything about steroid pulsing ?
What does your dr feel or say about you taking pred along side xeljanz ?
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