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Permalink Reply by TD on January 2, 2024 at 12:08am

Very sorry to hear this but stay positive always. Our son when he was 19 underwent several alopecia and happy to share what we did as parents to finally help him cure. Feel free to email me at desaitushar@gmail.com. Hopefully wish and pray no one ever suffers from alopecia since we have been through hell and know how bad it affects the person mentally including severe depression. 

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Permalink Reply by Solange De Santis on January 7, 2024 at 2:14pm

Dear Denise,

Vent, my friend! That's what we're all here for. I think it's important to point out that AU can be a journey - but not to a single point. In 26 years with AU, I've changed my appearance according to certain factors. When it first occurred, I was horrified, wore scarves, wigs, etc. Then about four years into it, I got my eyebrows tattooed and decide to go au naturel - no wig. And I was out and about - got a good job, was on television occasionally, etc. Around seven years ago, I got a different, high-profile corporate job and decided I didn't want to be explaining all the time that I didn't have cancer, so I "wore hair." Now, I wear hair when I don't want to be bothered by unwanted looks and comments, but go au naturel at home, in the homes of people I know well, and sometimes outdoors with just a hat. See? It's kind of a case of "it depends." And it is very much YOUR choice. Best of luck to you. We're on your side.  

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Permalink Reply by TurboK on January 24, 2024 at 9:14pm

I have been suffering with this hideous AU for almost 20 years. I am so tired of it. I have lost a lot due to the chosen ignorance of others. I was living in NC when it hit. I lost my job and my home because of it. I lost friends, and family because I refused to admit that I did it to myself. I was kicked out of the church I was attending because I had said that God gave me this disease, which he did, and I would not admit that I prayed to God and begged him to give it to me.
I still cannot look at myself in the mirror without something on my head. Just the thought of seeing my bare skull still gives me a gag reflex.I will never get used to this.
I had been taking LDN and was having decent success, but now my body has built up a tolerance to it, and all the progress I had made disappeared almost overnight. The same thing happened when I was on the Cortisone shots and cream when it was AA.
I honestly don't know how others do it. No matter what I try to get rid of this disease, nothing works.There have been times I have wanted to end it, because I cannot live like this. This disease  has killed my soul.

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