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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by kevin on
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quite agree with you it do too much hair for 10 we are sold the dream for nothing
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it is not me, who will judge if xeljanz can be a regular treatment for AA or not.
Its fda or other authorities responsibility.
It works on some people but this is a small part of the Big Picture.
selling hope is not an honest way to go, when it comes to such an overpriced medicine.
And some scattered brittle hair is a fools miracle.
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Permalink Reply by Xeljanzmiracle on
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That's it, ICARUS. You have been warned and asked repeatedly to stop vilifying me by myself and many others on this site. You will now be reported for your false, nasty and negative comments to the owners of Alopecia World. I am an honest, Jehovah's Witness Bible teacher, as well as a semi-retired medical assistant, legal secretary and paralegal for 40 years. I do not appreciate you calling me a liar and a scammer to thousands of people who read these posts all over the world. You are putting yourself in a position to be sued for libel.
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you cant stand the opposite opinion, that is.
You are welcome to report me.
My comments are targeting only you exclusively and i explained my view on this.
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Wildstar, even tho you are replying to negative posts from 2 months ago that were attacking me and my regrowth, I just want TO THANK YOU SO MUCH! We haven't heard from that particular negative guy in awhile. I hope AW banned him or better yet, lots of POSITIVE supporters on this thread made him realize how unkind and rude he was being. Valeri
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Amazing Katiegirl! Thank you for letting Icarus know that I'm not alone in my feelings about Xeljanz. Your picture is ABSOLUTELY BEAUTIFUL! I'm so touched by the support I'm receiving today after being called a scammer. My results are real and so are yours. We don't have any motive to lie to anyone. We don't work for Pfizer and we're not getting paid to endorse Xeljanz. We're on this site to share our experiences and give each other mutual support.
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katiegirl has a full head of hair.
You too have a full head of hair, only not visible to the naked eye. LOL
Yehoba God is no way a good dermatologist.
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Permalink Reply by serg navaro on
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Icarus, have some respect man, what is your deal? how is this in any way funny?
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Icarus, I can't believe you. You are beyond rude and SO DISRESPECTFUL! All of us are progressing at different rates. Most of us that were AU started with tiny, white/blondish regrowth that is barely visible, even to ourselves at first. In fact, on September 1st my friend noticed my regrowth outside in the sun when I didn't see it in my mirror at home. But within 2 weeks my hair started turning terminal (dark) and growing much longer. When I increased my doseage to 3 pills a day, and added Biotin, my resistant areas started filling in also. Just because they're not yet visible ON CAMERA doesn't mean they are not there. Others can see them and feel them. But for some reason you have decided to personally attack me and my Godly beliefs and label me a liar and a scammer. But that's ok, just keep reading my posts and looking at my future pictures. The Truth will become evident, even to you.
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Thank you for sharing your story. The treatment options for alopecia are progressing because of people like you that are seeking treatment. Medicine has made great advances in the last year. I believe that we will get a reliable treatment in the coming years. I too am praying for answers.
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Thank you Karen. If you would like to read more about my background and latest doctors visit and their plans to present my case at Grand Rounds and their next Alopecia Conference, please visit my discussion called "From Totally Bald to Regrowth in One Month". I just updated it this morning.
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i already told you my point.
You may fool yourself as much as you want but you, personally, are making so much noice about an "miracle" that needs some serious miracle to look like a decent solution. in your case, strictly.
Your name (xeljanzmiracle) obviously suggests, either you are totally naive (spititual crap) or you are a paid agent for Pfizer.
No other tester of xeljanz makes such noise.
You have the poorest results and yet you are the more enthusiast person around here, recommending it to others, whats going on with you really?
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