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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by Starshine on
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I think once your hair has mostly come back on 3 a day, dropping back to 2 should not cause shedding, you may just not exoerience as much new growth. I don't think anyone knows for sure yet what the maintenance dose will be, if there is one. It will probably be different for everyone, and will most likely be trial and error. Just a guess though.
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Permalink Reply by AlopeciaDestroyedMyLife on
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Some good news guys,
The results are in:
Thank you for contacting Pfizer and returning your product sample.
After conducting forensic analysis, we would like to inform you it was determined the product you returned was authentic Xeljanz manufactured by Pfizer for the Turkish market.
We thank you for bringing this matter to our attention. Pfizer is committed to supplying products of the highest standard of quality and it is through product complaints that any apparent product related problems are addressed. Should you have any further questions, please contact us on 01304 616161 and quote the complaint reference.
Kind regards,
UK Quality Operations
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Permalink Reply by Xeljanzmiracle on
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Yaa! I'm happy for those that can get it there at a much reduced cost, especially those in the UK and other locations where it's not available at all.
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It means it is a legit product. As long as it comes from Pfizer, it's good.
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Is there any way to get it without actually going to Turkey? I know someone provided a pharmacy phone and fax number, but still not sure how that works.
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Permalink Reply by Megn on
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Update: 10 weeks on 2 pills a day with AU. Still pretty bald all over. I see all the peach fuzz, but not nearly what I was hoping for and what I have seen happen for others. Going to stay on until my Patient Assistance runs out in Dec, but not sure I will continue. Wish I could do Stem Cells!
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