Alopecia World
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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by singh on
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I agree but people do need to understand this is not a cure but more a treatment and just hope more advance treatments and cure comes out ! And yeh seen that but am hoping she grows the hair she has lost back being on 2 pills.
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19 full head of hair from being completely bald on xejianx since March of this year!!!
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That is all how it starts megn. Very exciting! I am wearing my extremely short pixie cut now. I couldn't b happier and you will get there as well :)
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Permalink Reply by Megn on
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Katiegirl,
How many weeks or months until you were able to wear your pixie? :)
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I didn't know what to expect and if this is about the normal place for 7 weeks. I'm pleased with what I am seeing, just hoping to wear a pixie cut one day :) and mascara again :)
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Everyone is responding very differently. I feel fortunate that I've only being taking it 5 months and have full regrowth on head. Hoping for eyelashes soon but I'll take this for now! I was also diagnosed in February became AT within one month and was progressing to AU. If you are seeing growth I'd say its a very good sign!
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Permalink Reply by Xeljanzmiracle on
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Can you upload a picture?
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