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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by Starshine on
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I agree, never took any drugs or smoked either, but my initial response was also slow and still not as impressive as others given the amount of time I have been on Zeljanz. As for Plaquenil, it is basically an immunosuppresant which taken with Zeljanz may help to further suppress your immune system. It is like methotrexate, but much safer to take with Zeljanz and you can stay on it unlike Prednisone. Your eyes should be checked when you have been on it for a year, as that is when eye problems may develop, at least that is what my doctor told me. I think having a very strong immune system is a contributing factor in those who are responding slower.
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Starshine how long have you been on xeljanz and plaquenil? And how many pills and mg plz?
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I started Plaquenil after about five months on Xeljanz with minimal results. Upping to three pills a day along with Plaquenil and cortisone shots every six weeks really helped. I take the standard dose of Plaquenil, 200 mgs., two tablets a day, one in the morning with Xeljanz and one in the evening with Xeljanz. It is best to take with food or a snack as it can cause nausea if you don't.
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hello, sorry for my english, I'm french and I'm new to the subject, I just want to know if there is someone who has had scondaire effects, that nothing is said on the subject of? thank you for your rethinks.
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Salut inggare je suis Francais je suis Tous SES POSTES DEPUIS le débuts en France il y'a Comme inibiteur jak ruxolotinib Qui est approved Mais non versez la pelade en France Mais CELA coute, plus de € 4,000 Une boite donc je Doute que un dermatologue le prescrive sinon en Turquie la boite de xeljanz coute environ € 550 mais bon ce est tres Chers aussi! CE Ne Pas Une question voiture de securité je ai Été Que méthotrexate plus prednisone en 5 mois 70% de mes cheveux Ont Pousses et Pareille versez les sourciles barbes et Le Reste de poil du corps 30% Mais le méthotrexate me rendais malade Nause Puis ce est vraiment non Traitement lourd pire Que Tous Les Autres inibiteur jak Fait pour moi cest Une Question de hauteur si tu veut Que l'Ontario se parle! Et Dans Tous Les Poste personne n'à eu d'effet secondaire Mais sache Que ce non Traitement Fait si tu Stop ou decend une dose trop basse juin tu que osée tout de rechute!
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Kevin thank you for your reply, I am with predenisone 25mg daily and methotrexate 10 tablets once a week, for 7 years, not secodaire effects, he foctionné, but since one years of hair, nothing, I still have 40% hair on my body. you're taking xiljanz? and you know how to find in turquie.merci
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salut non je ne prend pas xeljanz , oui en turquie a Istamboul en pharmacie le mec qui a fais se post se fournie labas et il la analyser au etas unis si c'etais bien le meme composant que ceux des etas unis et oui donc pas de soucis sur sa , si tu veut que l'ont parle de tous sa par telephone pas de probleme si c'est vraiment long je pense aussi aller en turquie et pourquoi pas aller ensemble avec d'autre personne qui ont la pelade peut etre que le cout serais moins cher apres j'ai vue sur ali expres il vende xeljanz en gros il faut contacter le vendeur qui se trouve en chine a voir aussi je te laisse le lien et fais part au amercain lol parceque moi et l'anglais c'est la crise ... http://www.alibaba.com/product-detail/Medical-Xeljanz-Tofacitinib-C...
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I went to Turkey and I've got three boxes weljanz, but if there would be another chance less expensive would suit me too, do not know how I can still afford this price weljanz
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lu391 hello, thank you for your rethinks, your interesting approach, I want to know how much you paid 1 box of xeljanz?you have presented an order to remove it from the pharmacy?
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paid 1,770 Turkish lira, about 570 Euros, you can buy without a prescription, it does not need to turkey
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Hello I am French to look I have to find xeljanz on site of which think of it you
http://www.alibaba.com/product-detail/Medical-Xeljanz-Tofacitinib-C...
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