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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by Sp06 on
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Please stop, if you are against this discussion thread, please just leave. Theres no need to make disgusting remarks about others who have had enough to deal with in the past. Go find a better treatment for alopecia before you continue ridiculing those who use xeljanz. If you find this drug and its use so repulsive, why do you continue to monitor this discussion, just leave. Stop trying to persuade people into being hopeless and negative. The fact that she has gotten hair after not having any for years shows that there are results, it might just take longer, but theres no reason for you to bash upon her hope. The only way for us to know if this drug is effective is to give it a try for a while. There is still plenty of time, and she will prove you wrong.
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Permalink Reply by Xeljanzmiracle on
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Thank you Sp06. I'm reporting Icarus to Alopecia World and I hope you and others will join me in having him blocked from posting on this website entirely. He has bashed me on another discussion as well, actually calling my regrowth "crap". You and others have repeatedly asked him to stop, but he continues. Thank you again for your encouragement and support. Valeri
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Permalink Reply by serg navaro on
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You have made no point at all, go somewhere else with your negativity cause it's not welcome on this thread, we're all staying positive and will remain positive.
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Thank you for your support Serg. Icarus has given me no choice but to report him to Alopecia World at this point. Maybe he is racist as well and doesn't understand that Black hair grows in a different way and at a different rate than other ethnicities. But it doesn't matter, as Katiegirl said "slow and steady growth is still growth" and I am thankful for it. Plus, after having no hair at all for 6 years, to have my hair start growing back in a MONTH on Xeljanz is a miracle to me and many others. Like you said, we are happy to be out of our wigs after so many years! They were a constant, irritating burden and handicap. I even stopped going to amusement parks and riding roller coasters for fear my wig would fly off. It happened before when I was on a first date, lol! I can laugh now, but at the time I was mortified!
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I find that carus is not wrong I find that in your case does too much you for few results you did not even be 5 % of your hair either eyebrow or lashes I am not whole against for xeljanz
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Icarus I agree with Serg. What is your deal? No one is saying that you need to be happy or supportive for anyone on this thread. Bring your negativity elsewhere many of us experience negativity every day dealing with alopecia we don't need more of it.
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wonderful you just begun to take 1 pill ? or again 2 pill? noone side effects?
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I believe the soon to be published results from the tofacitnib trials will be proclaimed as successful. Long-term safety profile for tofacitnib may not be acceptable for many people. Let's face it, most people on here have been on the drug for less than a year and some have reported side effects. The price tag is a big deterrent at this time. Not may people can afford being set back by $12-$35K a year. Perhaps this will change in the future. And worst of all, this is not a cure - one would most likely have to be on the drug to keep their hair. So given all that, I can see how some people don't see it as a miracle. The topical formulation may address the safety risks, but I don't see how one can keep applying the cream once hair is long enough. What do you guys think?
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7 months later and still waiting for my miracle.So happy for everyone who it has worked for .Is it possible to have have happy and sad tears at the same time?
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