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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by Xeljanzmiracle on
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Thank you Karen. If you would like to read more about my background and latest doctors visit and their plans to present my case at Grand Rounds and their next Alopecia Conference, please visit my discussion called "From Totally Bald to Regrowth in One Month". I just updated it this morning.
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Permalink Reply by icarus on
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i already told you my point.
You may fool yourself as much as you want but you, personally, are making so much noice about an "miracle" that needs some serious miracle to look like a decent solution. in your case, strictly.
Your name (xeljanzmiracle) obviously suggests, either you are totally naive (spititual crap) or you are a paid agent for Pfizer.
No other tester of xeljanz makes such noise.
You have the poorest results and yet you are the more enthusiast person around here, recommending it to others, whats going on with you really?
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Please stop, if you are against this discussion thread, please just leave. Theres no need to make disgusting remarks about others who have had enough to deal with in the past. Go find a better treatment for alopecia before you continue ridiculing those who use xeljanz. If you find this drug and its use so repulsive, why do you continue to monitor this discussion, just leave. Stop trying to persuade people into being hopeless and negative. The fact that she has gotten hair after not having any for years shows that there are results, it might just take longer, but theres no reason for you to bash upon her hope. The only way for us to know if this drug is effective is to give it a try for a while. There is still plenty of time, and she will prove you wrong.
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Thank you Sp06. I'm reporting Icarus to Alopecia World and I hope you and others will join me in having him blocked from posting on this website entirely. He has bashed me on another discussion as well, actually calling my regrowth "crap". You and others have repeatedly asked him to stop, but he continues. Thank you again for your encouragement and support. Valeri
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Permalink Reply by serg navaro on
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You have made no point at all, go somewhere else with your negativity cause it's not welcome on this thread, we're all staying positive and will remain positive.
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Thank you for your support Serg. Icarus has given me no choice but to report him to Alopecia World at this point. Maybe he is racist as well and doesn't understand that Black hair grows in a different way and at a different rate than other ethnicities. But it doesn't matter, as Katiegirl said "slow and steady growth is still growth" and I am thankful for it. Plus, after having no hair at all for 6 years, to have my hair start growing back in a MONTH on Xeljanz is a miracle to me and many others. Like you said, we are happy to be out of our wigs after so many years! They were a constant, irritating burden and handicap. I even stopped going to amusement parks and riding roller coasters for fear my wig would fly off. It happened before when I was on a first date, lol! I can laugh now, but at the time I was mortified!
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I find that carus is not wrong I find that in your case does too much you for few results you did not even be 5 % of your hair either eyebrow or lashes I am not whole against for xeljanz
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Icarus I agree with Serg. What is your deal? No one is saying that you need to be happy or supportive for anyone on this thread. Bring your negativity elsewhere many of us experience negativity every day dealing with alopecia we don't need more of it.
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