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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by singh on
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Eu have to pay fees that's why they not willing to approve it, unlike FDA they not have to pay fees. Also EU have plenty of immune suppresses approved ! It's a Money game mate just something to think about.
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If in Europe rejected Xeljanz it's a bad thing but are you sure? Cause they sell in Austria that is in Europe.
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Wow Xeljanzmiracle,
You're really progressing.
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Ruxolitinib is very expensive in EU.
Certainly costs more than Xeljanz but not a massive difference.
NHS Scotland approved it for certain bone marrow disorders
But NHS England and Wales rejected it for Economical reasons not for safety concerns.
I read the report.
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In the EU country I'm right now. Jakavi costs around 1800 euro for 56 pills . The 15mg and 20 mg versions around 3k€ each. I went to one compounding pharmacy to ask them if I buy one box they could turn it into cream, they said yes. However they'd need all the ingredients, which I have no idea. I guess going to a dermatologist to ask them what ingredients could offer the best results is the next step. But since I am already talking xeljanz, I think I' d better focus on my work, and wait.
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Hi, thanks I am writing to him. Do you think he will reply,? I am not one of his patients, and I guess he must be really busy with the people who is actually paying him, or supporting his research.
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The first time i ever emailed him for an appointment, he responded the very next day. So im fairly certian he will respond asap, but since its the new year he might be a little more busy, but he'll definitely reply
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Would love to know the formula also.If you find it out please share .
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I am also interested in the formula. Please post if he replies. I wonder if one needs the actual prescription to take to compounding pharmacy in US?
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in the EU I need a prescription from a MD , but I guess any dermatologist can do that after telling them what to prescribe .
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