Xeljanz (Tofacitinib Citrate): My experience on the trial

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.

I thought it would be nice for everyone if I documented my progress on here. 

Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.

The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results. 

I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.

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AW:  Other discussions on Xeljanz / Tofacitinib

https://alopeciaworld.com/main/search/search?q=Tofacitinib

 

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Permalink Reply by Football fan on March 9, 2016 at 12:44am
Hi SpO6 very happy for you.I have a question had AA for 5 years never lost all my hair and 3 years ago 60 percent grew back fell out again and now have about 30 percent.My question is I have been on xeljanz for 10 months for 5 months 3 xeljanz and 2 plaquenil even started using the cream and no growth at all should I give up or is there something else I can try.Thanks
Permalink Reply by Summer2000 on March 9, 2016 at 4:04pm
I asked Dr King that last visit. He took a deep breath (made me a bit nervous); got interrupted and never answered. I will ask him again next month.
Permalink Reply by Beth on March 8, 2016 at 10:20pm
Oh yes!!!
Can you please ask if any one plans to test Topical Jak on patients who suffer with androgenetic alopecia any time soon? I am networking with teenage female and males with this. Dr. King did state this is a strong possibility. Please?!
Permalink Reply by gowml on March 8, 2016 at 11:03pm

Please find out if anyone is having response to that 2% topical xeljanz alone without taking oral. If so, how long does it typically take to get response.

Permalink Reply by sultan h on March 8, 2016 at 5:07pm
Sp 06 we would like all world's dermatologist doctors
Admit it Xelijanz.
and we want to show all people our Results .
No steroid No injections No worrid

Right !!!
Permalink Reply by sultan h on March 8, 2016 at 5:10pm
Also the price it's really
expensive for us think about it
I would say Xelijanz killed Alopeica ,
Permalink Reply by Jcortez05 on March 8, 2016 at 6:45pm
Has anyone stopped taking xeljanz and continued to grow hair ?
Permalink Reply by aladdin on March 9, 2016 at 12:15am

i wonder if we will develop immunity to xeljenz after 2-3 years of using it..if i use i will cycle it ..2 month on 2 month off  or 1 month off .:(

Permalink Reply by sultan h on March 9, 2016 at 1:02pm
I'm so excited I will meet the dermatology in Dubai next week,
but the doctor said in the fist I will give you
1 pill for Tow months!however I have AA
and Eyelash / Eyebrows Are Gone
Do you think all it's good step?
or I have to take 2 pills
please
thankful For All
sultan -Dubai
Permalink Reply by Nicolas on March 10, 2016 at 10:19am
Can you ask him what think about vitamin d in our patology? i read a lot of interesting things about vitamin d.
Permalink Reply by Nicolas on March 10, 2016 at 10:21am
Can you ask him what think about vitamin d in our patology? i read a lot of interesting things about vitamin d.
Permalink Reply by sultan h on March 10, 2016 at 11:48am
Nicolas how are you ?
you think that Vitamin D
it may help for Alopecia add with
Xelijanz !

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