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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by singh on
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Wow your beautiful Sadele! Can you's these questions to Dr King please. The first question is..
How long does it take for xeljanz to kick in blood ?
Why has he put people on predisolone whilst on xeljanz if he knows the drug cannot be used long term ?
3)has he just put them on predisolone short term for a boost ? And if so does he reccomend to take for example 10mg of pred a day or would he reccomend just to take a certain amount of predisolone for 1 day a month ?
Thank you so much in Advance Sadele!!
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I was diagnosed with RA my reummatolagist told me it takes 3 and a half months to get into you're system and start working at full capacity some doctors give the Celljanz along with prendisone at first then switch to a once a week regimen of methotrexate that is the protocol for RA. I am currently takeing 2 5 mg tablets of Xelljanz a day I am 6 weeks in. I would advise anybody with alopecia to be tested for RA these autoimmune diseases seem to come in more then one form I had no idea I had RA but it showed up on a MRI it is a progressive disease in my case I have RA without a reummatoid factor before you consider going to another country for Meds get checked out by a reummatolagist in my case I get the Xelljanz fed Xed to my front door for free thanks to my doctor and his staff. Good luck to all
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Thank you very much to your message have you au ot at? just have any new hairs?
The doctor said you this cure for all your life???
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I had a rapid case of AU lost all hair the strange part is I am 60 years old and never had any hairloss issues I have regrowth on my face and inside my nose after 6 weeks of Xelljanz yes most likely as of now I will continue for life beings I have R A
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Hi James, would you continue to take Xeljanz if you did not have R A? and just to treat AU?
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Yes peach fuzz I would def take it if it means getting back my hair I could care less about the body hair and have semi adjusted to the scalp but the eyebrow and eyelash thing really freaks me out
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Cheers James, yeh I was just curious on if people don't have RA then why is Dr King prescribing it along side xeljanz and at what dosage and time limit.. Hopefully Sadele has asked Dr King. Any new updates people I have been on it for 8 weeks tomorrow.
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Can anyone tell dr King about this site. Maybe he can answer a few question for us.
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Permalink Reply by Xeljanzmiracle on
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No. I sent a reply yesterday asking how visit with Dr. King went. No response yet.
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