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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Ahmed on
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Thanks a lot Xeljanz2015 :)
I'm so happy for you it must feel great having your hair back. Thank God my throat isn't sore anymore and I started feeling normal from yesterday. Still following a gluten-free, dairy-free healthy diet while on Xeljanz and hoping for the best! ;)
And good luck to you too!
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Permalink Reply by Talia on
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Took my first dose of Xeljanz today! Wish me blessings! Is it ok to have an occasional cocktail on this medication?
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Good Luck be patient and don't stress everybody responds Different some fast some it takes longer. And yes an occasional cocktail is fine.
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Permalink Reply by Xeljanzmiracle on
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Congratulations Talia, your persistence paid off and you finally got your Xeljanz! Look for transparent, blonde hairs in a month or so.
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Permalink Reply by aaron on
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Almost the end of week 5 on Xeljanz.. I have had AU for 24 years (I'm 25) and for the first time in 13 years, my eyebrows and eyelashes are starting to come back. You can see tiny vellus hair barely visible on my scalp (it has always kind of been there), but I am hopeful and waiting for progress in that area as well. Facial hair is making a come back as well. Caught a cold from my gf that took a little bit of time to fight off, but it wasn't all too awful. I would suggest eating particularly well while you're on this medication to ensure that you're receiving an adequate amount of nutrition to support your immune system. I am absolutely thrilled that in the near future, I might see myself for the first time in my life with a head of hair. I lost it all at the age of 1 and growing up with alopecia was definitely a struggle, but I would never imagine getting to this point. It took a lot of work finding the right derm, scheduling countless appointments, going back and forth with Pfizer and my insurance, and here I am a year later. I have kept this condition a secret from many of my friends for quite some time, to include my girlfriend, and I somehow found the courage to open up to her about it the other day. I explained what it all entailed and how I might look significantly different in the next few months. It was quite relieving, especially knowing that she thinks no differently about me with or without hair. So at this point, it's more of a personal preference. I will be sure to post some before and after photos sometime in the next few weeks. You all have been tremendously supportive and I wanted to show my appreciation. Good luck everyone! :)
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SUPER wonderful Aaron, to have hair for the first time since you were a baby! I'm so happy for you.
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Aaron I am a 25 year old male who went from one spot on my beard for 6 mths to Au this last year. I have been trying 300 mg of cyclosporine a day with no hair growth. I would love to try Xelijanz but live in Canada and don't have 2200 a mth. Did you ever try other medication. You look really good and I notice u have eyebrows in your photo. Are they tattooed? I may consider them as they look good on you and you said your friends and girlfriend didn't even know you had AU. I appreciate your help. Thanks so much
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I have taken Xeljanz for 5 months, 2x per day. There is regrowth, but there is not yet any regrowth of black hairs on my scalp.
I see some great results from other people, I hope I'll get there too.
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How long did it take for most people to regrow scalp hair? Did some people have a full head of hair in 4-5 months?
Did people take any additional supplements?
I have some regrowth on parts of my body. The eyebrows are back, but I've been injected in December, so that helped. I'm considering upping my dosage to 3 pills a day to see more progress.
I took xeljanz with st johnsworth for 2,5 month, which is a bad combination, so I dropped the st johns worth, maybe that affected it too, maybe not.
Thanks in advance!
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Permalink Reply by Jcortez05 on
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I had full regrowth by month 4-5 but then had some anesthesia and am not losing my hair again or severely thinning mostly around the front .. Pushing my hair line back .
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I am Midway thru month 5 I switched to the Xelljanz Xr once a day time release 3 weeks ago Iam haveing sudden regrowth arms legs eyebrows lashes and scalp it's very exciting I also went to a health conscious diet and a lot of anti inflammatory supplements the regrowth is mostly white hairs but some spots are now regaining color. Has anybody out there have there hair regrow back to original texture and density thanks and good luck to All
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