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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Erdem on
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Hello guys , I am new in this forum and i am using Xeljanz since 3 months and half . ( 2 pills in a day)
I have Alopecia Universalis since 7 years, My scalp now is covered with vellus hair . I wonder how long does it take to see dark hair /terminal hair in Scalp ?
Thanks in advance for your replies.
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Welcome There is no definite timeline everybody is different the fact that you see a change is positive. Just be patient and the Hair will come
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Hi all -
Just wanted to give an update. I have been on xeljanz for almost 15 months now. Recently went down to one pill a day and now I have completely stopped it about two weeks go. No hair loss yet, hoping for the best. I am planning on starting a family soon so I hope the hair doesn't fall out again, will see. I have attached my latest picture. Six inches of hair was Progressing to AU prior to starting xeljanz! This drug has been a miracle for me. My doctor at Columbia said they recently got a large amount of donations to further there research. Any new research is a step forward for all of us alopecians. - Attachments:
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image.jpeg, 585 KB
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Wow that looks beutiful thanks for shareing very encouraging good luck to you as you move forward.
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You look great!how long were you on one pill?
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Wow you looks good Katiegirl.and beautiful eyelahses,
when your eyelashes grow ?
because I'm on Xeljanz about 4 months everything was good only eyelashes !!
thank you
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Eyelashes took a while. Maybe about eight months in. I do also use Latisse and I continue to use it. It's about 150$ as my insurance does not cover it
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Permalink Reply by Xeljanzmiracle on
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Congratulations Katiegirl and much success in starting a family!
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It looks great! So 14 months of xeljanz 2x per day and 1 month of 1x per day?
Did you take anything else? Like plaquenil?
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Yes correct. Nothing else prescription. I did use rogaine for about five months in the beginning my doctor said it would help. Regaine for women 5% I used.
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